Sara,

I have no answers but we have been dealing with a similar issue for months now.  My daughter is in her first year of LTM and has had a distended tummy and daily tummy pain, in about the same location, for months.  The onc has finally decided to let a GI dr take a stab at it.  We're pretty sure it's not constipation, because it happens even when she's been very regular for quite some time.

We are seeing the GI dr on Wednesday and will let you know what she thinks.  I have a pessimistic feeling, though, that there will be no "aha!" moment, and it may remain a mystery (we are also going to the GI dr for another matter, so it won't be a complete waste if that happens). I'll try to remember to report back.

Ann

Sara,

the GI dr had no "breakthrough" for us, as expected.  Her advice was first, to make absolutely sure that Elke is not backed up by taking Miralax daily for two weeks regardless of her symptoms, and then, if that didn't do it, to increase the dose of Prilosec Elke takes every morning.  BUT, Elke was dxed with a UTI and started taking antibiotics for it last week.  After she began her antibiotics, and before I even started up the Miralax, her stomach pain went away.  Completely.  She hasn't had any pain since she began the antibiotics.  And she had been in pain for months.  So go figure.  Have NO clue what that means, but am just happy she's doing better.

Sorry -- this probably doesn't help you with your situation.  But this is what happened with Elke.  Hope your daughter's pain is better soon!

Ann