My husband (40yo) started his first round of chemo 2 wks ago, had the preliminary results with CLEAR bone marrow.
He will be in a hospital for few more days until his blood counts will get better.
My Q - do I need to make any special arrangements in a house to make it easier for him to get back to "open" world.
I'm thinking additional in room init for cleaning air, new cleaning supplies...
If you have any suggestions please let me know.
Thank you again for your support in our battle!
Hello Kay.The only suggestion I would have is to make sure the house is cleaned well.I spray lysol on the door knobs and in the bathroom I use 10% bleach and water mix.Wash the shower curtains and keep the Kitchen area cleaned as well as the refrigerator shelves.Have LOT'S of hand sanitizer on hand and try to keep people that are sick away from you're hubby......best wishes
I am so excited for you both. Not everyone goes into remission with the first induction. Especially remission on the day 14 BMB. Congratulations!!!!! This is such Great news. Celebrate!!
I also had AML m5. If I can help in any way let me know.
My husband and son kept the disinfecting wipes in every room and constantly wiped down door knobs, faucet knobs, refrigerator handle, light switch plates, commode handle. They did this several times a day. Of course this was while I was at home.
Before I came home there must have been 6 to 8 women (friends & family) came to my house and cleaned for 2 days. They even disinfected the inside of the frig. I really don't know everything they did but my house hadn't been that clean since it was brand new ![]()
Many Blessings!!!
Sherry
Hi Kay,
Welcome to our little community, and congrats to your hubby on achieving remission. That's a great first step.
You've already received some good advice about prepping the house, and the nurses are also good ones to ask for guidance as to do's and don'ts once you get him home. I was given a handout at the hospital with general guidelines, so you might ask if something like that is available. We used different knives/cutting boards for meat and for vegetables/fruit, and he will still need to be careful about certain foods if he is able to do his consolidation treatments on an outpatient basis during the periods when he is neutropenic. We got rid of the sponges in the kitchen and were careful about only using paper towels instead of kitchen towels.
No cleaning litter boxes or toilets...there's gotta be an upside to all this, and I guess that would qualify! ![]()
- WBF
Kay,
I'm glad to hear he's in remission! I was also an M5'er.
You've gotten great advice on keeping the house clean. Have him use paper towels instead of cloth towels - they can carry germs. Just be extra careful with germs . Have visitors wash their hands when they enter your house. If you go out of the house just be alert to anyone who coughs or sneezes and keep them away from him. If you attend a church - be careful because people will go to church whether they're sick or not. Churches and grocery stores are among the germiest places.
Take care,
Kelly
Also, if you go to a church or anything similar, club meetings, AA, whatever, he's going to need to beg off the hugs for awhile. That's probably the easiest way to get an infection. And have wipes for him after he shakes hands. I felt like Monk for months.
You asked about air filters? I had one in my hospital room and we already had some at our house so we defninitely put them to work. Whether they actually did any good is a good question I can't really answer.
However, as WBF said, the nurses should educate you about what to do. If not, as the doc for some educations and s/he will probably get the nurses on it.
It is great that he's gotten into remission so early. I hope he's established a trend.
Blessings
Everyone has given you alot of good advice. I do remember trying to avoid public places. no grocery stores, church, schools with sick kids, it just is better when your counts are not up that high and when you are recovering from each treatment in between to take extra care to not catch anything. I avoided fresh fruits and vergs till my counts were way back to normal, didn't have fresh flowers, stayed away from plants and dirt, and did not clean out our bird cage or even hug the dog too much. Wear a mask when you go out to the hospital or doc office for your blood count checkups and take hand sanitizer everywhere and use it periodically throughout the day. Avoid being by people who smoke also. It is great that he is in remission after the first induction treatment. That is a great sign!
Thank you all for your advice, we got dismissed from the hospital just before the snow storm.
My husband feels relax at home. When we were leaving the hospital blood results came in with 12 %blast.
Its not a good news but doctor said we need to try different options with new medications.
Our biggest problem to be in a hosptal for 3 consecutive weeks. How do you cope with such a long stay?
My husbnad is claustrofobic and likes variety of senery so for him to be in the same room for 21 -25 days is very hard.
We'd appreciate if you can share your experience.
Thank you again and our prayers for all cancer patients!
My first induction for aml nearly drove me insane--not the physical so much as the mental anguish. Here's what I did for induction #2. I bought a laptop and an exercise mat. The hospital didn't have wireless but we paid a small fee to aol and did dial-up. I was able to read the newspaper and surf the web, write emails and keep a journal. I'm not much of a tv watcher, so this kept me out of trouble. My experience with second inductions is that as long as there are no fevers/comlications, they sometimes discharge you shortly after the chemo. As for the exercise mat, I used it twice a day and that also kept my mind on an even keel. I knew I was helping myself to heal.
Hello Kay....good to hear you're hubby is home.It's always more comfortable.Todd spent 43 day's in the hospital,because he required two inductions.He was driving everyone crazy so I think the staff was more than ready to spring him.He had typhlitis as well as thrombosis so he had complications that kept him longer.What I did was kept alot of reading material around for him.And alot of crossword puzzles to try to keep him busy.He was so sick I think he was more or less just wanting to feel better so other thing's just did'nt give him much interest.As he got better he started to work out in his room which helped with his muscle mass that he lost so that may help as pj said.Do you have a stationary bike for him???It's good to work out and keep the circulation flowing and I think it may help him feel better.
I had to have 2 inductions as well. The 2nd one was easier. The chemo was a couple of days shorter and I didn't have as many side effects. My hospital stay was a few days shorter as well.
I found having a structured day really helped me. So I made up my on schedule. I would awake around 6:30 or 6:45 brush my teeth. The onslaught of doctors and breakfast arrived at 7:00. After the doctors left I would reheat my breakfast and eat. Then shower and get dressed. This sometimes took awhile depending on how I felt. Then I would go do my walking around the whole 6th floor. I tried for at least 20 minutes of walking 3 times a day!!!
Then I would come back to my room and surf the intenet and answer emails until lunch. Then I did more laps around the 6th floor.
Anyway you get the idea. I just like structure in my life. I like knowing what's coming next. Now there were a few disruptions, special tests and such.
Also on the weekends when my husband would come he would take me down to the main floor of the hospital to walk around. As long as it wasn't a chemo day we were allowed to go pretty much any where in the hospital. I had to wear a mask.
If the weather was nice and my numbers weren't too low we could go outside as well.
Please Keep the Faith! There are a lot of us that have to have 2 inductions and we go on just fine!!!!
Many Blessings!
Sherry
Depending on what his original blast count was, 12% is probably pretty good for one induction. It shows the chemo is working.
I was in the hospital for seven weeks for my first induction and eight weeks for my second induction and transplant. Now, I'm a bit of a homebody so it didn't bother me too much to be in one room. But I did get out of my room and walk around the hospital a lot. That provided a change of scenery. On the days I couldn't walk, well, I really didn't care where I was as I was mostly in bed anyway.
I also enjoy playing video games and I had my Xbox with me when I was in a suite in OKC for my first induction and my laptop and games for my SCT in Seattle. I also like to read but I couldn't focus well enough to do so. But maybe he could.
Those are the things that helped make my stays possible. I just stayed distracted and, luckily (?!) I slept a lot. ![]()
Hope this helps.
Blessings
well I can tell you I was too parinoid to go out into the halls with the "public" when my counts were down low. It was flu season approaching and I wanted no germs by me. Kept my door shut 24/7! Oh I hated it but kept tellling myself it was temporary. Did alot of puzzle books, read some books, magazines, watched tv, and had a laptop to check email although I couldn't get alot of websites in the hospital. Even did some crafts, made some bracelets. It wasn't that bad during the cheemo hospital stays cause I usually felt pretty good then it was the after chemo stays when I had the evers, infections, etc. and didn't feel good that were worse to deal with but that was temporary too, just waiting period for counts to come up and antibiodics to keep it at bay. Hopefully he likes tv cause he can get alot of that, most men do don't they?lol
A lot of us have had to have more than one induction before getting remission, Kay, so try not to worry about that. I know it's hard to be in the hospital that long; I was in the first time for 33 days, and released on my 50th birthday---probably the best present I have ever gotten! But you know, the time will go by. As Karen said, I did a lot of puzzles, read "light" reading, like magazines and newspapers with short articles. I found I couldn't concentrate on novels, couldn't maintain that much focus. I watched too much TV, movies, etc. I walked the halls whenever I could, and my doctor let me go outside (of course, this is a different time of year) to this patio area sometimes. I had family visit. He'll get through this time period. Hang in there...
Hugs,
Pam.
Hi Kay,
I dunno, I don't think any of us like to be locked up. I'm an outdoorsy sort, but thankfully I went through my induction and month-long stay during one of the worst Decembers on record in these parts - much like what the East coasters are dealing with this week. Still, I left plenty of noseprints on the windows! Maybe get him a calendar so he can cross the days off??? ![]()
You've had some good suggestions already - I would have had a much harder time if I couldn't have had my laptop, and thankfully the hosital had Wi-Fi. I am not much of a TV person, and the books I managed to read were pretty light fare, not much thinking required. I found my ability to concentrate was greatly diminished, and my eyes were affected by the chemo so it was hard to read. I walked the halls as much as I could, got up every day and sat in the chair instead of laying in bed, got cleaned up whether I felt like it or not, even tricked the night watchman into offering me a guest pass after visiting hours because the only time I wore the hospital garb when when I was having fevers/sweats - at that point, I let the hospital do the laundry! I've heard some say they watched movies - comedies to make them laugh.
I just kept telling myself that every day was one step closer to being out and free of the IV pole. You'll both be in my thoughts.
- WBF