On December 11. 2009 my 44 year old husband was diagnosed with APL Leukemia. It's a subtype of AML; very aggressive with a median survival rate of one month if not treated immediately. However, it is the most curable of all Leukemias when treated. My husband was at UNC hospital for 5 weeks and was just discharged last Monday. He is tolerating his treatments well and has his second bone marrow biopsy on Friday. He was high risk when he arrived at the hospital with flu like symptoms, fever and even bruising. His ANC counts have increased as well as platelets. He has lost vision in his left eye from a retinal hemorhage but the docs are hopeful it will correct itself. My husband says all of this means we were probably destined to take care of one another. I had just celebrated my 3 year anniversary from being in remission from breast cancer at 39 years old. Strange that we are young and both experiencing cancer - I never thought we would be shaving each others heads before chemotherapy. I suppose you deal with what you are dealt the best way you know how and that's what we're doing.........
Hi Jennifer, like your husband, I too have APL. I was diagnosed November 9th, 2008. I don't know what risk I was considered to be at when diagnosed but I did present with pneumonia and my liver was not functioning properly. I did well with the treatment and recently celebrated one year of remission. I am on maintenance drugs right now and have 6 more months and then I am DONE, DONE, DONE!!! :-)
I hope your husband's bone marrow shows him to be in complete remission and he breezes through the rest of his treatment. I'm sorry to hear of the struggle you both have been through with cancer. I agree that I never thought I'd deal with cancer at such a young age. I was 31 when diagnosed... I'll be celebrating my 33rd birthday in 6 days. :-) Everyday is a gift isn't it?
Take Care,
- Jenny
Hi, Jennifer. Like your husband, I was diagnosed with APL. I was hospitalized on May 10, 2008 and got my diagnosis on May 14, 2008. I went to the ER because I had large, dark black and blue bruises, high blood pressure, severe headache, and overall fatigue and lack of energy. I spent 7 weeks in the hospital and did my induction chemo there. Then I did 10 weeks of consolidation and 1 year of maintenance. I finished my maintenance therapy in November 2009. I know it is extremely hard (I cannot even imagine since you had breast cancer) but stay strong and keep the faith. I'm glad his ANC and platelet counts have increased. I will pray for him that he is in remission when the results of the bone marrow biopsy come back. It is hard to believe the number of younger people that get cancer these days. I was 33 years old when I was diagnosed. I am so glad the two of you have each other to lean on and take care of each other. God Bless you and your husband and I'll be praying for you!
Kim
On May 19th, 2009 I went to the hospital for a scheduled c-section. The admitting nurse noticed some bruising on my arm. When I told her I had at least 30 more just like it, she got my OB. Blood work showed my platelets were 7,000! After rapid infusing bag after bag of platelets they decided it was safe to continue with the c-section. They were able to safely deliver the baby, but I almost bled out on the the table.
I started chemo the next day and spent 5 weeks in the hospital waiting for my ANC to come up. Three more rounds of chemo, another 2 weeks in the hospital, two bone marrow tests later and I am in REMISSION!!!
Hang in there! He will beat it. My oncologist always tells me that if an APL patient makes it through the first few days after beginning diagnosed, that their survival rate increases exponentially!
I was just diagnosed with APL on January 14th... the only symptom that I presented was with extremely easy bruising. I began treatment imediately. During the course of treatement I developed a reaction to the ATRA that i was taking. flooded my lungs with fluid and sent me to the ICU for 5 days 3 of which i was intubated.
It really has been one bizzare road that you suddently find yourself on. Things have moved so fast that I haven't had the time to be scared i dont think. Right now I am just getting ready for my second bone marrow biopsy which hopefully shows that the induction was successful. In any case I begin round 2 march 2.
Just keep reminding yourself... how good the prognosis for people with this diagnosis... thats what I do!!!! ![]()