Hi, Everybody! My name is Kelly and I have a 6yr old daughter who is battling some troubling symptoms. My husband and I are very concerned and am hoping you all might be able to help me understand some of what is going on. She's are youngest, and we've never experienced anything like this before. Any input or advice would be great!
Our daughter has been sick on and off for about 9 weeks. We never really thought much of it. She has had fevers on and off with no other symptoms, but they were low grade (99.5-101). She has also missed school at least 6 times for a few days at a time, with what we thought were viruses accompanied by higher fevers (102-103.5). From Oct 26 to Nov 7, she missed school three separate times, and the 3rd time I immediately took her to the doctor. In the doctors office she was running a low grade fever(99), had a rash, a bad cough, and was having trouble walking. Her pediatrician admitted her to the hospital and ordered a chest xray and a myriad of bloodwork. She came back negative for strep and influenza at first, but later that day, a repeat test came back positive for strep. She had a positive M Pneumo IGM and her IGG came back slightly high. She also had a high CPK level of 331 ( normal values per hospital lab 21-215). She had a urinary track infection and a high PH. Her CBC was the most troubling. Her hemoglobin/hematocrit was low, and her white blood cell count was 2100. Her lymphocytes and monocytes were high, but her neutrophils were low, at 600. By the next morning, after very strong IV antibiotics, her total WBC had dropped even lower, and her absolute neutrophils were at 300! We are so frightened. She has had many symptoms of a much bigger problem for a long time and we didn't put anything together until now. Night sweats, so bad that she needs a bath in the morning, extreme fatigue, the ongoing low grade fevers, and just generally not feeling well. She has complained of headaches and hasn't had a great appetite for several weeks. She has lost weight, and is very pale. I feel horrible! I have 4 other daughters and none of them have been sick. They are all in school with her, but they all had perfect attendance. I feel like I should have known something was wrong. My husband and I both have a strong family history of Leukemia, and both Hodgkins and non-Hodgkins Lymphoma. Our Pediatrician is concerned and has put her back at home with us but she is basically isolated. She has to wear a mask and he has said she will be out of school for at least 2 more weeks or until we find out why this has happened. We are to have no visitors for awhile, and she is not allowed to go anywhere except the dr's office. He is looking at Leukemia, but he says we need to be patient. We're waiting for the latest CBC differential results. Am I overreacting? I am a mess. I'm not sleeping well and I feel like it's taking forever to find out. Am I wrong to think this is not just a simple infection? Our doctor doesn't act like he thinks it is. I'm assuming the worst, and maybe I'm paranoid, but I don't know how to feel any different.
Does anyone have any ideas, any questions I should ask? Anybody have any Idea why her Neutrophils would drop so low when her other WCB's were high? Why would here CPK be elevated? She's never had heart problems. And, is being anemic along with the low WBC and neutropenia significant? I just figured you might be able to give me info in a way I can understand. I feel like the doctor isn't telling me everything, and then again, I'm not sure what I am looking to hear. I guess I just need to understand the possibilities better.
Thank You!
