I feel like loss of parents, and loss of children are a very common topic with grief, and there is a wide body of knowledge, research, books, etc on those categories of loss. I am finding a surprisingly fewer number of resources when it comes to loss of siblings. I wanted to make this a place for those who have lost our siblings to talk, and share, and gain support.
I lost my older sister this past June after a year and a half battle with AML m2, she was 22. After a lot of rounds of treatment, remission, and relapse, she had opted for palliative care instead of going into a high risk treatment regiment that had a low probability of successful outcome, and very high probability for the treatment itself to be fatal. We knew it was coming, whether it was before she made that decision or after, we all knew it was coming, but that doesn't make it any easier.
Thats my story, and now I hope that others in my situation can come and share their stories and difficulties with the loss of siblings.
Thank you for this area. I too lost my sister, she was my only sibling and 8yrs younger. At 18, she was diagnosed with Hodgkin's Lymphoma. After multiple relapses treated with chemo, radiation, her stem cells and then my stem cells... her body was too weak to fight. Rachel died 2 weeks after her 23rd birthday. She left behind 1 niece and 4 nephews that miss her very much. And while I can not imagine the pain of losing a child, I sometimes feel as though I've fallen through the cracks. No one called me to ask how I was, there were no sibling loss groups in my area, no books to read. It has been 4yrs now and I am in pre-nursing to become a nurse oncologist to help other cancer patients and their families.
Thank you again for this area. I hope that other siblings find this place and are able to find a place of peace.
I'm sorry for your loss. My sister was diagnosed at 21, just two weeks after her birthday (her 21st was spent in the clinic, getting checked out what we knew later as preliminary signs). My sister died at twenty two, and since we were so close in age, and so many of my friends new about the situation (since I took a semester off from school) I was well supported by my friends and community. However you are correct, there are so few areas of support for us, no groups, very few books, etc. Good for you and your career choice!
I am curious, for you, what was your method of dealing with those times that everything just seems too overwhelming to function? What did you do to get over the initial loss?
I hate to hear when anyone has lost someone in their life due to cancer. Especially someone so close to them. I can not blame you for taking the semester off. I found that keeping any train of thought for an extended time was hard.
I started volunteering for the LLS here in Lexington. Rachel passed in July and Light the Night was in September. It was a great way to talk to other people who could understand what I was going through. Megan Reilly is over the Lexington branch and is also a Hodgkin's survivor. It was a great experience. This was my first year I didn't work LTN because school and my kids.
So I would say volunteering, alot of tears, alot of writing poetry has helped me. Some days are better than others. When I'm sick or my kids are sick I often think about what really being sick is. She is horribly ill for most of the last 2-3yrs of her life. At the end, it was so difficult to see her that way. I noticed most of her friends one by one fell off the face of the earth. A couple she hadn't spoken to in years, showed up out of no where. I had a cousin that was able to come in and see her more than me. i felt very bad about that but thank god that I asked my sister before she died if she felt bad towards me because of it. She told me that I was the only one who came in and sat beside her and didn't ask how she was, or if she felt better. I just sat quietly until she asked me if she needed anything. And that meant more to me than anything.
I don't believe that you ever get over losing a sibling but if you don't try to go on with life, you end up with some serious health or mental problems. I think helping other people, helped me...
Well the semester was taken off in anticipation of a SCT, for which i was the donor, and it was just easier to be home. Ive been finding that same issue with keeping thoughts organized is a challenge and i frequently feel scatterbrained. My goal one of these days (when there is actually a TNT group in the city I am living in) is to do a marathon with TNT. Its so unfortunate that before relapse my sister made going to LTN a big deal and was so excited for her white balloon, which ended up being short lived. Why did her friends "fall off the face of the earth"? where they not sure how to behave when they visited, or they just ceased being friends?
Thanks for the advice for myself and for others out there who will be reading this.
I lost my youngest brother in August to Hodgkin's Lymphoma. He was 22. It is really hard for me still, and there isn't a day where I don't cry at least once. You are both right that there doesn't really seem to be too many resources for this kind of loss. Though I am sad to read both of your stories, it is nice as well because I don't feel so alone.
I am sorry for your loss, and hope that you find places of comfort. I remember the first time someone (who didnt know me) asked me after my sister's death whether I had any siblings, and saying I have, then correcting myself, had a sister. My question for you guys is when this comes up when meeting new people and what not, how much do you say? When is it too much information for other people? Or do you find yourself unwilling to even engage new acquaintances in that conversation?
How do you guys find yourselves dealing with the particularly challenging days when the memory and coping with the loss just seems so overwhelming?
I lost my brother in August 16th 2009. He died at 44 years of age and was born with Down Syndrome.
It has been hard for because I was hoping that he would stay alive for two years, but he was only able to live about a year after being diagnosed with
early B-acute lymphocytic leukemia. I was upset when my parents decide to put my brother on hospice basically I felt like we were giving up on my brother.