The Leukemia & Lymphoma Society - Fighting Blood Cancers
35 Replies Last post: Dec 1, 2009 1:19 PM by sharkboysmom   1 2 3 Previous Next
sharkboysmom   16 posts since
Sep 17, 2009
Currently Being Moderated

Sep 28, 2009 2:24 PM

Low Absolute Lymphocyte Count?

I am a mom just seeking advice from those knowledgeable in blood counts and what they mean.

 

My 5 year old son has been ill for about 1 month with recurrent fevers. A week and a half ago his pediatrician ran a cbc and it was mostly normal. His total WBC was normal, but the absolute lymphocyte count was low (1000, and normal for his age was 3000-9,500) and absolute monocytes were high (I can't remember the number, but the percentage was 17%.) His hemoglobin was the lowest of the normal range (11.5) and platelets were normal, but on the lower end (just under 200k.)

 

His ped. put him on antibiotics for 10 days, and he just finished them, but he is still running an almost constant low-grade fever (99-100.) He keeps missing school because of this. I had him back in the dr. on friday, and he said that the low lymphocyte count can be causing his body to run a fever, but he couldn't really explain why.

 

Does anyone know what low lymphocytes mean? Should I be alarmed or is this just no big deal at all?

 

I am familiar with these boards because I was here almost exactly one year ago researching information regarding this same child. (He had a lymph-node in his neck that persisted for several months and when finally removed it  was over 2 inches in diameter, but  thankfully came back as benign.)

 

Anyways, I feel silly asking but I know that many of you are basically experts when it comes to blood counts and I am pretty clueless.

 

Thanks.

Wobbles   308 posts since
Apr 3, 2009
Currently Being Moderated
1. Sep 28, 2009 3:02 PM in response to: sharkboysmom
Re: Low Absolute Lymphocyte Count?

There are numerous reasons for why lymphocytopenia can occur.  Most often it is a result of an infection, often viral infections.  I’ve also gotten lymphocytopenia when I was on a cortisol (prednisone).

 

Since your son has not responded to antibiotics, this might suggest that he has a viral infection.  Have they tried an antiviral medication?  Have they tested to see what type, T- or B-lymphocyte, is low?

 

Joe

rgaild   63 posts since
May 20, 2009
Currently Being Moderated
3. Sep 28, 2009 9:13 PM in response to: sharkboysmom
Re: Low Absolute Lymphocyte Count?

With the low lymphocytes and high monocytes its sounds like he is fighting off an infection or some kind. I'm glad to hear they will be repeating the cbc, I'd keep an eye on the hgb to see if it drops further and the platelets to see if they remain in normal range. If the hgb and the plts drop I'd probably want the Dr to repeat the cbc again in a week.The constant low grade temps are something to keep an eye on as well. Most likely its just some bug he's fighting, I know there is a lot going around the school right now here in Wisconsin. Until his labs are back in the normal range I'd want to continue cbc's every week. I'm sorry your child has had such a rough start in life, his little body just sounds more susceptible to infections, please keep us updated.

rgaild   63 posts since
May 20, 2009
Currently Being Moderated
5. Sep 29, 2009 2:40 PM in response to: sharkboysmom
Re: Low Absolute Lymphocyte Count?

I want to comment on your situation but I want you to know I am probably not the right person to get an open opinion from because we have dealt with childhood cancer in our family, so when ever I hear parents list certain symptoms I automatically think the worse since sadly thast all I know, so having said that please just take it as information, I am not saying this is what your son has, I contemplated on commenting because I don't want to cause you more worry, on the other hand if I don't comment and there is something I can help you with and I don't I'd feel terrible too, so with that said when I read your childs symptoms, the leg pain, belly pain and temps that bothered me. I am glad though to hear that the first cbc that was done showed pretty much normal labs, thats good news. My child had leukemia, the main symptoms are leg pains so bad they don't want to walk,(pain can come and go) belly pain from enlarged liver and or spleen and low grade temps that seem to come and go for no reason, night sweats. My child had a loss appitight , fatigue, paleness (from low hgb) my child never had the common symptom of bruising or nose bleeds but those are two main symptoms also. I would wait for your appt on friday, unless of coarse you feel your child is getting much worse, but it would be best to wait atleast a whole week between cbc's, mostly because doing it too soon might just show the same labs his body needs time to recover from the possible illness he is fighting. I'd look at the wbc with leukemia that will be high (although I know in some cases the wbc can be really low also, its more common for it to be high)get a copy of the labs, normal ranges should be listed, some kids(with leukemia) will have crazy high wbc up in the 100,000 my child's was around 21,000. Also the hgb (hemoglobin) you mention it was on the low end of normal with leukemia you would see this drop from lack of redblood cells, which you may or may not notice paleness in your child, also plts (platelets) the plts are usually this first count to drop with leukemia, I think you mention your sons was just under 200 (which is actually 200,000) so his plts are very good right now, I believe under 140 is considered low. A.L.L (acute lymphoblastic leukemia) comes on very acutely, meaning that if your son had these symptoms for 4 or more months it most likely is not leukemia but a virus of some sort. My child continually got sick over       1 1/2 months, he would get strep go on antibiotics for 10 days just finish the meds and then get sick again, ear infection then another 10 day of meds then sick again this went on for 1 1/2 months finally he was looking so pale and his belly was so tender the dr drew labs and at that point his counts were pretty low, he was dx the next day (a bmb and bma- bone marrow biopsy and bone marrow aspirate are needed to confirm a dx of leukemia) So now I feel like I have said way too much, please know there are other illnesses and viruses that can cause low hgb and low plts so its a process of elimination. ight

please feel free to contact me if you have any questions.

gresh14@hotmail.com

TannersMom   12 posts since
Sep 6, 2009
Currently Being Moderated
7. Sep 29, 2009 11:15 PM in response to: sharkboysmom
Re: Low Absolute Lymphocyte Count?

Do you have a children's hospital nearby?  I would go to the emergency room and explain that your pediatrician has not found anything and you want to know what is going on.  Five weeks is way too long to have a child with fevers and leg pain that bad.  You need to demand that someone figure out what is going on.  My daughter, too, has Leukemia and her only symptom was back and leg pain initially.  It would come and go over several weeks and then was extremely severe one night.  The ER doc at a non-children's hospital told us she was constipated.  Then, she got a fever the next day and we went to the pediatrician who sent us to the Children's Hospital where they could see blast cells in her blood work.  I'm not saying he has leukemia; there are probably lots of things that could cause his symptoms.  But, you know something is wrong with him.  Trust your Mommy radar and fight for him.  Sadly, that is sometimes what it takes, especially with vague symptoms.  If it is leukemia, you need to know quickly.  If it's not, you still need to know what is going on and that sweet little boy needs to feel better.

 

If you don't have a children's hospital nearby, I would find a new pediatrician tomorrow.  Yours is not trying hard enough to figure out what is going on.

 

My Mommy Radar is almost always right, and I would be willing to bet yours is, too.  A good doctor will respect your intuition.

 

Good Luck,

Beth

TannersMom   12 posts since
Sep 6, 2009
Currently Being Moderated
9. Oct 2, 2009 12:10 AM in response to: sharkboysmom
Re: Low Absolute Lymphocyte Count?

Tanner's leg and back pain started about two weeks prior to diagnosis and came and went over the next two weeks.  Then, she woke up screaming one night and wouldn't stop.  We went to the ER and she was more comfortable briefly due to the codeine they gave her, but she developed a fever the next morning and when I took her to the pediatrician at 9:30 her CBC was normal except for hemoglobin on the low side of normal.  By 12:30 at the Vandy Childrens Hospital ER her CBC showed blast cells and all her levels were off.  That's the thing about acute leukemia... those cells can be building and replicating in the marrow for weeks before they finally spill out into the blood stream and are detectable by CBC.  Tanner's bone marrow at diagnosis was 95% leukemia cells, a very high infiltration, yet we had seen no fatigue, no bruising, no illnesses, nothing except the back and leg pain.

 

Again, I'm not saying your son has leukemia, or any other type of cancer for that matter, I am just suggesting that your pediatrician is not actively looking for a reason for his symptoms and that a children's hospital might have knowledge beyond that of your pediatricians and might be able to better diagnose his problem.

 

Good luck and I hope your son gets better soon.

 

Beth

rgaild   63 posts since
May 20, 2009
Currently Being Moderated
10. Oct 4, 2009 1:05 PM in response to: sharkboysmom
Re: Low Absolute Lymphocyte Count?

Thinking of you guys....how did your sons Dr. apt go on Friday? Hope all is well.

Robin

rgaild   63 posts since
May 20, 2009
Currently Being Moderated
12. Oct 7, 2009 10:05 PM in response to: sharkboysmom
Re: Low Absolute Lymphocyte Count?

I am worried about your son, I really wish your dr would have just run the cbc, your right your son could be pale from being sick but her could also be pale from a low hgb, I tend to overreact too, but with all his symptoms I'd be consernd. As your dr said his labs will show an elevated wbc from fighting an illness but it could also be extremly high would would indicate other things, the fact that he got sick right after that antibiotics has to mean there is an underlining cause. I'm sorry if I seem pushy, but something here doesn't sit well. If I were you I would take him back in tomorrow and get a cbc done, you need to know if his hgb is critically low, of his platelets are critically low, I'm not sure he can wait the 10 days to finish the antibiotics for the cbc, please take him in tomorrow.

rgaild   63 posts since
May 20, 2009
Currently Being Moderated
14. Oct 9, 2009 12:41 PM in response to: sharkboysmom
Re: Low Absolute Lymphocyte Count?

I'm sorry your son isn't feeling well again today. I know I don't know you but I've been thinking about your little guy alot, I'm so glad that you will be having a cbc done today, like you said it probably is nothing serious but its a simple test to rule some things out. I  don't know if you do already but get copies of all his labs in case you decided at some point to see another dr it will help to have these on hand. I'll be checking back for your update, thanks for doing that, oh my son had something last year that looked like chicken pox, it was really strange, he too was vaccinanted, his rash followed his sternum down and aound his rib cage on both sides.I though maybe shingles but shingles is usualy only on one side. Also I don't know if he uses a loofa (sp) or other sponges in the bath but the hold in lots of bacteria, I learned that the hard way, my son also got these pimple like spots on him on random places, turns out it was from the sponge that he had been using for about a month, threw it out and have stuck to washclothes and never had the problem again. Hope all goes well today.

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