My Husband was diagnosed with CMML in April 2008. We came out to Seattle, to the Seattle Cancer Care Alliance.We are from Florida. He had a double Umbilical Cord Transplant 2 weeks ago, August 26, 2009. he did not have a family match or an international donor. The SCCA does all the work for you, and was the pioneer in Bone Marrow Transplants, the only cure for CMML. Yes, it is true that it is a potential cure. That is why we came here. Our insurance company is covering the cost of living here, and the procedure. You must live in Seattle for a few months, conditioning time, and at least 100 days post-transplant. The social workers at the SCCA can help with logistics.

My husband is 55 years old. He is doing pretty well, with complications that are inevitable. Transplants are difficult, and there is no data for CMML, but there is hope! Go to their website at Seattlecca.org to find out more. It is a very rare disease and few others know about it. You will need a caregiver for the entire procedure. They need to be dedicted, and can not work or have other obligations at the time.

He had this disease for quite some time before it became neccessary for him to go through with the transplant, so as long as your disease is not accute, you have time to make plans, from what experience I know. It is important for you to get with doctors who know your disease.

I am going to copy this post and give it to anyone else with questions about CMML. I'm no expert, but I'm living with the experience, and learning as I go. I wish you all the best, and hope that you find the answers that will lead to your cure.