Hi Pat & Matthewsmom,

Thanks for the good wishes. They do sound like they are working their magic don't they?

Otherwise, they would have been higher if she hadn't got the tablets.

Mum has been very sleepy and slept in until 1.30 pm today. She couldn't keep her eyes open. She felt a bit nauseous but hasn't physically been sick.

Dad has said that she has improved by this evening though and feels ok.

Hows Matthew doing?

Binnie xx

Hello Sheri

I hope your mom is doing ok. What a worry they are eh? It's an awful time for us all isn't it....

Mum is doing ok but has thrush in her mouth/throat now and a Macmillan Nurse came round today to give her some spray to keep her mouth lubricated as the chemo is drying her mouth out.

She was very helpful and told my parents that they are entitled to some money for mum being ill and dad can also claim as her carer.

I think mum thought her time was coming to an end when the nurse came as they hadn't had anybody round before, and when the Macmillan nurses come round, my mum thought it was bad news.

I told her that they are only here to help and it is good that we have them in this country. I think she has settled down a bit now.

She did have a high temp last night but after taking paracetomol, it has brought her temo down again.

Binnie xx

Hi Sheri

My mum is at home with dad and my brother.

I live about 10 miles away so not far. Going to see her tomorrow, but won't stay too long as she will be at risk of infections.

Dad thinks she has some sort of infection now . Her temp went up again last night to 30 degrees and taking two paracetomols brings ir down again.

She has thrush of the mouth and is on anti fungal tablets and anti biotics.

Mum feels poorly, and down in the dumps. She thinks she won't get through this round this time and her moods are up and down.

Dad says she is ok when she is chatting to people and comes to a bit, but then feels sick.

A district nurse will be coming round on Monday to give mum some injections for infection control.

I told dad that if he is very worried and panicking to ring the hospital and take mum over to it and then they can check her out again.

He said he would do, but at the moment, says he is not panicking ...

I've just rung Leukaemia Care which is a support group in the Uk and a lovely woman listened to me expressing my worries about mum.

She couldn't give advice on chemo, treatments etc, but she will be trying to locate someone in my area who I can chat to who are going through the same thing as mum, and maybe we can help each other.

I never go with my parents when they see the doctor. Dad wouldn't want me to, and I suppose Iam afraid to.

I have been with her when she was an inpatient though and saw the nurses etc and they said how well she was doing at the time.

This time now she has relapsed, I haven't , I just rely on dad to inform me.

Her next appointment with the hospital is wednesday, so fingers crossed that it will show better results.

Hows your mom Sheri?

Binnie xx

Hi Sheri

Sorry to confuse you, what I meant was by "Coming to" it was the fact that mum felt a bit depressed about relapsing and wouldn't be her normal talkative self.

But when she gets visitors she comes to, meaning she is chatty again.

No she isn't out of it, but she just feels very tired.

I went to see her last night instead of today and she was lying on the sofa after doing some ironing. She was just having a little rest.

We made her laugh and she seemed like her normal self again. I think it did her good to talk to me.

She just aired her worries about relapsing and was afraid she wouldn't go into remission this time. Also she didn't want to go into hospital for 2 months as she gets bored. But underneath she knows it's for her own good and the doctors have definetly not given up on her.

Mum is managing to eat , but even though she feels hungry, it's obviously the chemo is making everything taste funny. Plus she has got thrush on her tongue, which doesn't look like it to me compared to some photos I have seen of people who have it.

The nurse gave her some spray which is like "Fake Saliva" to keep her tongue lubricated.

Her temperature keeps going a bit high, to 38.7 the other night, not 30 as I mistakenly wrote in the other post. But as soon as she takes 2 paracetomol tablets, then it brings it down.

The Mamillan nurse said this can happen and if dad couldn't get her temp down, then he would take her to hospital.

He is a very kind and caring man and has been wonderful with mum. He's always there for her and stayed through the whole hospital stay when she was in for months with the other rounds of chemo.

There is a nurse coming to see them tomorrow and will be giving mum an injection for infections, so I am sure she can check to see if mum is anaemic or not, or if she is concerned with mums progress.

Other than that, mums appointment is on wed at the hospital where she will be having her blood tests to see if the chemo tablets are working.

God I pray that they are.

If the doctor is happy that the tablets are working, then they are looking to put mum on a new trial with a new cancer drug and to give her intensive chemo again.

They can't have given up on her as they are looking for ways to help her. They say a bone marrow transplant will only give her 3% survival and they don't want to take that risk.

The hospital is called Christies and is a well known hospital all over the world for being a leading cancer clinic.

They are building a 38 million pound building which will be used just for new trials and are also opening a holisitc centre, so I do have every faith in them.

Thanks for your concern Sheri, I really do appreciate it, but I honestly don't think they have given up on mum afterall she sees the Top Man most of the time and he has hope for her still.

I hope your mom is ok and sleeps a bit better. Will they give her sleeping pills. My mum has them sometimes especially when she was in the hospital and found them ok, but she didn't get addicted to them and only uses them if she gets desperate.

Binnie xx