Hello, I was Diagnosed with PV about a year or so ago. I have found that as my blood count goes up, not only do I have the headaches, but I also have these sharp pains on my scalp from time to time and hot flashes too. Just wondering if anyone else has anything like this.
Hi! It's mimi from the discussion boards of the LLS. I was just perusing around our site and came across this question--not answered! I have never seen this before--but I can kinda answer your Q! I would have to say yes to whether or not your headaches and pains are from the PV and definitely the hot flashes are related to PV. There are all kinds of different symptoms associated with PV and I know that some of us do get headaches when our counts start getting high. And generally after a bleed, the headaches go away or at least ease up. My main symptom from PV is the horrible pruritus (itching) especially after a hot shower. I've never been bothered by the headaches, but I do have the hot flashes and night sweats--I am 62 though and that makes a difference as far as if you are a lot younger than I am. Coz, I'm still bothered by the hot flashes due to menopause! Anyway, hope this answers your question or helps you out to some degree. Ciao bella,...............mimi
All these symptoms are related to PV , its a great idea to get copies of all your labs.What is your HCT ?As your being treated you headaches should ease/Are they putting you on any meds?Hope you get this and find your way back .