The Leukemia & Lymphoma Society - Fighting Blood Cancers
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  • AALL0932, Arm C or D?

    Hello, hello,   I've been meaning to start this thread for ages, but I've finally just sat down at my computer and remembered. We just started maintenance back in April (yeah!) and we are on Arm C of the clinica...
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    created by burmang
    AALL0932, Arm C or D?

    in My Child Has Cancer

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    • 13 months ago - on the topic of hope

      My daughter, Elsa (dx. 7/2011, currently in month 5 of LTM), is spending the day with a friend of mine since I am feeling a bit run down and needed a day off. My friend just texted me and said, "Elsa went down for a n...
      burmang
      created by burmang
      13 months ago - on the topic of hope

      in My Child Has Cancer

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      • Starting Preschool; letter to teacher?

        Hi there,   Elsa is 4 months into LTM and starting preschool is a couple of weeks. She will just be going for 2.5 hours, twice per week, but, of course, I'm nervous. Nervous, but excited! I'm just writing a lett...
        burmang
        created by burmang
        Starting Preschool; letter to teacher?

        in My Child Has Cancer

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        • IVIG?

          Just as we are sailing along through maintenance, enjoying our summer, we get some news today that Elsa's IgG level is 253. She was below 300 last month too, but we were hoping it was just a fluke. Guess not.   ...
          burmang
          created by burmang
        • For families on AALL 0932

          As we approach Maintenance in April (yeah!), I have been more and more interested in our treatment options. As of right now, we are on-study 0932, average-risk. Some months ago, we had asked our Onc, "If we are not ra...
          burmang
          created by burmang
          For families on AALL 0932

          in My Child Has Cancer

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          • Vincristine pain

            I just went back through the archives and found a few of the threads about vincristine. Just wanted to post again and see if there were any updates.   Here's our story today: Elsa (19 months, pre-b ALL) finally...
            burmang
            created by burmang
            Vincristine pain

            in My Child Has Cancer

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            • ANC 0?

              Hi there,   So we are inpatient during DI (trial 0932) and I was just wondering how many other ALL kids out there experienced ANC's of zero. Zero! Perhaps we have just been lucky so far, but her counts have neve...
              burmang
              created by burmang
            • Facebook?

              While I am weary of social media and what it has done to our lives, I have to say that, thank goodness I am a parent of a kid with cancer today in 2011. Sometimes I think about how, 15 years ago, Elsa would be the ONL...
              burmang
              created by burmang
            • Consolidation anyone?

              From the recent posts, it looks like there are quite a few kids on the board who are approximately at the same point in treatment, nearer to the end. It made me want to check and see if anyone else is closer to the sa...
              burmang
              created by burmang
              Consolidation anyone?

              in My Child Has Cancer

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              • Toddler questions

                I've searched the boards for other parents of toddlers, but I haven't really found what I'm looking for, so I thought I would start a new discussion.   Elsa is 18 months old, diagnosed 14 days ago with Pre-B ALL...
                burmang
                created by burmang
                Toddler questions

                in My Child Has Cancer

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