The Leukemia & Lymphoma Society - Fighting Blood Cancers
25 Replies Latest reply: Feb 21, 2011 1:10 PM by MomMom RSS

So what have we all been up to?

PhilB Registered Users
Currently Being Moderated

It seems like we've been a bit short on general banter lately, so how about this: what have been the best, worst or silliest things to happen to you in the last few days?

Foe me it's:

Best

Lying in the sun finishing a good book (The Enchanted April) when I should really have been working.

Worst

My seven-year-old was reading to me today from his science book -  which turned out to be all about the different types of blood cell (I think it may be the book which Trey uses). This in turn made me wonder if I should be taking the opportunity to tell him what's wrong with Daddy? And the next thing I know, I'm shaking with a major anxiety attack for the next hour and a half from nowhere.

Silliest

Being on stage, wearing a platinum blonde, curly wig and supposedly doing a seductive dance during a production of Marlowe's Dr Faustus - I knew it was a mistake having a seat in the front row.

 

So how about the rest of you?

 

Phil

  • Re: So what have we all been up to?
    everonward Registered Users
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    Best : Getting to the point where our hallway and upper landing is nearly finished - I have been decorating  and it has been long overdue.

     

    Worst :  finding odd bruises on my left thigh - most strange and spending valentines on my own as hubby away - still he's back tomorrow which will be another best,

     

    Silliest: Planning to continue with the decorating and our bedroom and the dining room.

     

    If this rain ever stops in south east England - I will also get hubby to finish my raised beds and get some crops in. That will bring a whole new load of pleasure.

  • Re: So what have we all been up to?
    HeatherZ Registered Users
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    Good idea to lighten things up Phil!

     

    Silly - My 9yr old came home one day last week and told me she lost part of her recess that day because she couldn't stop laughing.  When I asked what she was laughing at she said "there was a booger on the wall and we made up a song about it."  Needless to say, she has come home every day since to report that the booger is still on the wall.  Gotta love Catholic School!

    • Re: So what have we all been up to?
      everonward Registered Users
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      LOL

       

      Reminds me of when my son was 9 yr old - I was having The Talk with my daughter - patching up the sex-ed that a catholic school gives. he strolls into the room and suddenly says " I know how to make a woman happy"  my heart was in my mouth as I wasn't sure what, if  anything he had heard. So I said " Oh eally how do you do that?"  His response " Give them chocolate". 

  • Re: So what have we all been up to?
    jrsboo Registered Users
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    Best:  Flying in to San Jose to be with Husband for Valentines and meeting his old army friends and having a blast with them before heading out to Monterey for a 3 day Valentine's Day present.

     

    Worst: Flying exhausts me, and after staying up late talking and laughing with aforementioned friends, am so tired today I am in hotel room with curtains closed while Hubby plays golf.  Also got caught thinking that "clamboring" meant "clamoring", and husband was RIGHT, darn it!

     

    Silliest: Told my absolute FAVORITE joke to new friends and was laughing so hard I couldn't get the punch line out and thought I would pass out..........Why did the Robot cross the road?   Because he was stapled to the chicken.    I love that joke, it is so stupid, and it makes me fall over laughing.........

     

    Caroline

  • Re: So what have we all been up to?
    reedgirl Registered Users
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    Great idea Phil....

      The BEST... we are packing up and heading to Florida for 11 days...so tired of this dreary, grey weather in Western Pa!

      The WORST...my hubby had his triple lumen removed last week and a port implanted, he has a terrible terrible fear of needles, yeah not a good thing to have when diagnosed with a blood cancer.  On the way home from the hospital he got sick...in the car...all over the floor   Also found out that day he is no longer taking Tasigna due to intolerance, so on to the next drug...

      The SILLIEST....hmmm  thats a tough one, cant really think of anything silly that's happened or that I'd want to share

     

    What a nice way to read some fun things and lift the spirits!

    Audrey

  • Re: So what have we all been up to?
    CallMeLucky Registered Users
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    Best - Exchanging Valentine's with my wife and kids and seeing how my kids are growing up and starting to do them on their own.  I was shocked when I frantically went to them on Saturday morning and said "ok we have to sit down and make mommy's valentine's cards" and they both looked at me and pulled out ones they already made.  My kids are really loving kids and its a great feeling watching them interact with each other.

     

    Worst - Fortunately nothing too bad, have been feeling pretty light headed lately, in a way it kind of feels like being high.  If I wasn't worried about it, it would actually be pretty cool.

     

    Silliest - Using my CML as the topic for a term project in school.  Professor will have to be a heartless bastard to not give me an 'A'

  • Re: So what have we all been up to?
    hannibellemo Registered Users
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    Great idea, Phil,

     

    Best - Taking the TT out for a drive yesterday with the top down in 40 degree weather! It's been a crappy winter and the sun was shining and there was actual warmth - I smiled the whole time!!

     

    I'm  stopping there!

     

    Pat

  • Re: So what have we all been up to?
    Marnie Registered Users
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    Best:  Finally got up snowboarding on Friday.  No ski traffic, no lift lines, and OUTSTANDING powder in the trees!!!

    Worst:  I am so out of shape (first time snowboarding in 2 years) that I hurt so bad I couldn't walk the next day.  Yes, I'm getting old.

    Silliest:  After the big snow, the husband got out the ATV with the plow. . .plowed the driveway, plowed the sidewalks in the cul-de-sac, then I saw him zipping down the street and he disappeared around the corner.  I ran to catch up and saw him driving up and down the street with a big silly grin on his face, so I jumped on the back and we rode around the neighborhood plowing all the sidewalks we could find.  Felt like a 5-year-old again.  

    • Re: So what have we all been up to?
      jrsboo Registered Users
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      @ Marnie: AWESOME.  That sounds like so much fun!!!

       

      @ Billie: Sorry, I over scheduled myself and had to find the inner strength to get my butt up and out to court for hearings last week, and just felt generally crappy, so spent every possible extra moment on the couch communing with the dog.  And then clean the house and get ready for this trip.  I love to travel, but it is harder since dx, not that I let that stop me!!!!  And I am so glad you liked my ridiculous joke.  I have loved that one for over 10 years.  My step son told that to me when he was about 10 years old, and he just couldn't believe that I fell over laughing the way I did...........

       

      Caroline

    • Re: So what have we all been up to?
      cyclejoy Registered Users
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      Oh wow, I totally missed skiing this year as Atlanta isn't the place for that.  Sounds like you had a ball. And, remember, you are getting old-er, only. :-))

  • Re: So what have we all been up to?
    PaulB Registered Users
    Currently Being Moderated

    Where to start?

     

    Best:  My daughter wishing me a happy day, a theraputic massage, and my Bone Marrow FSH test being normal.

     

    Worst:   A little stuffed up and tired of sniffling all day, oh well.

     

    Silliest:  My daughter bought a pink shirt with "Daddy's girl" on it as my Valentines gift.  The silly part is the shirt was for her!

     

    Not a bad day!

  • Re: So what have we all been up to?
    5tigercubs Registered Users
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    Hey evry 1.

     

    best : had my daughters sweet 16 and I made it thru and she loved it.

    worst : cant even begin to describe and not cry

    silliest: got a great pic of my kitten but when i looked close saw he actually was sticking his tongue out.....ugh

  • Re: So what have we all been up to?
    GerryL Registered Users
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    Mine is

     

    Best: finally starting exercising again

     

    Worst: learnt how unfit I have become

     

    Silliest: got bitten by a horse fly on the weekend - for those that don't have them, it is a fly that bites you and removes some skin and when the blood pools, they lap it up. The first thought that occurred to me after I got bitten was "I hope that fly overdoses on Glivec".

    • Re: So what have we all been up to?
      hannibellemo Registered Users
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      GerryL,

       

      Congratulations! Please let me know how you are starting out, unless you were an elite athelete to begin, in which case we won't have anything in common.

       

      http://www.atkins.com/Science/UnderstandingNutritionAndExercise/HeartHealthyExercise.aspx

       

      This article helped me understand the reason it's said that exercise helps with fatigue (see #2 on list) and it makes sense to me. I always find I overdue when starting out and on Sprycel I pay for it for another day or so. I need something that I can build on.

       

      Please feel free to contact me via my e-mail if you are so inclined. Thanks!

       

      Pat

      • Re: So what have we all been up to?
        GerryL Registered Users
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        Hi Pat,

        Not an elite athlete, though my blood pressure has dropped since I've been on Glivec, it is under the normal 120/80 range. Looked it up to see if it was an issue and apart from feeling light headed every so often, elite athletes have low blood pressure LOL.

        I think with exercise, you have to find something you like doing to maintain it. I used to do Latin American dancing, but can't afford it at the moment, and haven't been to a class for about a year. So I've gone back to walking, doing floor exercises (crunches, hand weights etc) and will start yoga in a couple of weeks. Eventually I'd like to go back to dancing as it is something I really enjoy. It was the crunches and leg squats that reminded me I hadn't done anything for a while.

        Phil mentioned that he got a Wii Fit and it was lots of fun.

        • Re: So what have we all been up to?
          PhilB Registered Users
          Currently Being Moderated

          I did indeed recommend the Wii fit.  It's never going to turn anyone into an elite athlete, but, judging by the way I sank like a rock when I took the kids to the swimming pool yesterday, it's definitely reduced my body fat percentage since Xmas.  They cost a few hundred dollars byt the time you've got the console, board, controllers and software, but compared to a year's gym membership it's a bargain (certainly at UK gym prices)

          I like the fact that I can choose what to do depending on how I feel, so on a good day I can work up a real sweat with some of the more aerobic exercises, but if I'm feeling rough I can just do some gentle yoga and maybe a snowball fight or two.  The virtual trainer's quite fanciable too!

          • Re: So what have we all been up to?
            hannibellemo Registered Users
            Currently Being Moderated

            Hmm, I have Wii Fit - have had for about 3 years...right now I use my Wii mostly to watch Netflix and play the occasional game - this could be part of the problem. I liked ski jumping, although I tended to resemble Eddie the Eagle, and the slalom. Guess I'll have to get the board back out again. Thanks.

             

            Pat

            • Re: So what have we all been up to?
              PhilB Registered Users
              Currently Being Moderated

              Hi Pat

               

              If you've had it a few years you probably only have the original Wii Fit disc rather than the Wii Fit Plus they sell it with now.  I have to say I probably wouldn't be using it so much if I only had the original.  The two big differences (as I understand it) are:

              Extra Games and Exercises

              I believe the 15 games in 'Training Plus' are all new, and these are generally much more fun and 'game' like than the original balance games.  The flying chicken game is an excellent spectator sport (watching the player rather than the screen), the obstacle course is highly addictive and a good way to burn a lot of energy and the snowball fight is a somewhat more morally acceptable take on the idea of a irst person shooter for anyone who doesn't like the idea of their kids slaughtering hundreds of people with a virtual Uzi. There are also a few new yoga poses and muscle exercises.

              My Routine

              You can put together a bunch of the yoga and muscle exercises into a personalised routine lasting up to 60 minutes.  The downside is you don't get scores or to vary the reps.  The upside is you get a much more continuous workout without being told incessantly to practise your yoga every day.

               

              I should also point out (before Trey says anything) that I was referring to the female virtual trainer.

              • Re: So what have we all been up to?
                everonward Registered Users
                Currently Being Moderated

                yeah that's what you say Phil  -

                 

                actually you are right about the wii - I really should get the board out - I also like playing the grand slam tennis game disc. Still it will have to wait  off to York tomorrow. Local hospital blood draw and possibly PCR first thing. Then railway musuem for the lads and university for me and daughter. Having a look at one of her back up choices.

                 

                Marian

              • Re: So what have we all been up to?
                jwbwater Registered Users
                Currently Being Moderated

                Hilarious, I actually laughed out loud (but refuse to use that stupid abbreviation).  Thanks Phil!

              • Re: So what have we all been up to?
                Marnie Registered Users
                Currently Being Moderated

                My sister has the wii fit and she loves it.  She's taken off a few pounds (not that she's all that heavy).

                 

                Virtual women must be a guy kind of thing.  My husband insists on having the sultry Brit female voice on our gps.  He'll take directions from her before he will from me.  He calls her Jill.

                 

                Marnie

  • Re: So what have we all been up to?
    janner25 Registered Users
    Currently Being Moderated

    Love this idea...

     

    Best: Got a raise and bonus from work and was told it was my best year yet!  (AMAZING considering the last 3 months of the year I felt horrible!)

     

    Worst: Can it be spring already?  Saturday night, while my husband was working OT, I had 2 sick kids that I was sitting in between...the 8 year old had the stomach bug and the 4 year old had a fever that would not go below 101 with the tylenol / motrin mix.  Now both my husband and I have caught something (thankfully not the stomach bug yet).

     

    Silliest: 8 year old is totally into music so I shocked him one day and learned the words to one of his favorite songs (by Big Time Rush)...he started playing the song and I busted out singing.  His face was priceless!!!!

     

  • Re: So what have we all been up to?
    Tedsey Registered Users
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    Here is hoping that the best gets better, the silly gets sillier and the worst goes away for everyone.

     

    BEST:  So many I cannot count.  Now it is the little things that invoke absolute joy, like being able to take my kids out and breathing freely.  But a big thing is that we booked our fight to Japan and we will visit one of my best friends and her family.  It has been my dream that our children meet and that I can share my home away from home with my husband.  I'll drag the fam to my old haunts when I was a youngin'.

     

    WORST:  Hearing about an old friend's death.  Lately, I have been feeling sad and mourning.  Plan to travel to visit her grave with friends in Japan.  My anemia is getting worse again.  WBC also taking a dive.

     

    SILLIEST:  Well, it is non-stop with two little toddlers.  This is a little old, but remembering it always gives me a chuckle.  My 3-year-old told me after eating some sweets, "Mama, I think I am a junkie."  (as in "junk food junkie", which I sometimes call him).

     

    Teds  

  • Re: So what have we all been up to?
    Gene Registered Users
    Currently Being Moderated

    What a great idea Phil.  I get anxiety attacks every once in a while (like today).  I think as a CML patient, I shouldn't feel so happy, active, normal, etc.  I guess sometimes I need permission to enjoy life.  So I come to the board, read the posts and realize we are all chugging along with life (the good, the bad and the funny).  Reading this post especially made my day.  Thanks everyone.

     

    Best:  As a family, we have been skiing and are about to take our first ski trip.  My kids learned this season.  My husband and I came back to it after a long, long break.

     

    Worst:  A friend of mine "unfriended" me because I haven't been giving her enough attention since I was diagnosed.

     

    Silliest:  Trying to dance.  Enough said.

  • Re: So what have we all been up to?
    MomMom Registered Users
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    I've been off the forum for a while and it's been a blast to read the posts today.  Great idea, Phil.  So is there a video of your dance'?

     

    Best:  I am officially retiring June 30.  But will be in England again the last two weeks of June for work.

     

    Worst:  Two close friends died within a day of each other last week.

     

    Silliest:  Staying up late to watch Willie Nelson and Asleep at the Wheel on Austin City Limits last night.  It was good, though.

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