My 15 year old son is in the process of being diagnosed with Cutaneous B-cell lymphoma marginal zone type. The has four lesions at this time. I don't know of anyone who has had this diagnosis and I very anxious to hear from others that perhaps have dealt with this disease. Please let me know if you or anyone you know has this and how its going. thanks
I'm waiting for two additional biopsies to come back before a decision gets made. They mentioned waiting (the lesion was already removed completely), localized radiation, or rituxan depending on the results. I'm being seen at UPMC in Pittsburgh so I'm confident in the doctors, which has helped me so far.
Thanks for repyling so fast. My son had three lesions biopsied all with the same diagnosis. Since then (2 months ago) he has a few more so it will be interesting to see what they say when we see them on Feb. 25. He has also developed ulcerative colitis at the same time. No connection so far other than they are both autoimmune disorders.
Did they have any feeling that there was some autoimmune link going on? This is my third autoimmune related disease in the last 5 years; thyroid, mastocytosis (rare skin problem), and this. I also had some lesions removed in 2007 and 2009 that were diagnosed as pseudolymphoma, or benign lymphoid hyperplasia.
The one the diagnosis was based on was from my left shoulder, the previous pseudolymphomas were on my left triceps. The other spots they are checking are on each wrist, but my other skid condition also causes small lesions which these could be. How is the program at Stanford? I grew up about 10 minutes from there and just moved to Pittsburgh this year.