Hey Sue, i have a question.
What was the process when your son started back to work as far as his disability payments. Did your son work full time/part time etc? What was your experience? Thanks.
interesting question - i am on disabilty too ( i am 35 years old). I want to go back to work soooo bad - but i have questions about can I go back part itme and then do i stil receive benfits?
Maybe this will help.... I am 24 and have not worked a ton inn my life so my payments are kinda low. What I was giving in my sheet, and when i spoke to the person I was told I can make up to 670 a month without it effecting my disability at all. If I make over 670 or something like that and I must report it. I have a total of 9mo that i can make over 670 until my disability is cut off. So I guess if I continue to work and make less than the 670 I will continue to recieve my disability. the 800 can be made at any time, switing to below or above, with the above totaling up to 670...so say in 4 months i make 624, 700, 660, 600, 600, only 1 month counts torwards the 9mo period.
But here is the thing,. If I start working and make any income I loose my medicaid, which covers all of my copays, which I am there 2 times a week, and it really adds up...and I am on a ton of meds too. So if anyone has a tip o how to keep medicaid I would soooo appreciate it!
These numbers are estimated and i believe they are different based on how much disability you are paid.
this is what I was told and read, but I could be wrong or it could be different for you. I would call to make sure.
Its called the ticket to work program....or not, that might be something different, but look into it any ways lol.
~Frank
Thank you frank. Is your medicaid the same as SSI? Are you getting one source of income or disability and ssi?
Ok, talk about being slow on the response here. My son went back to work full time, he was making approximately 1,000 per month at the time. That job was a summer job as a camp counselor. Last fall he went to work as a residential specialist for the developmentally disabled at that job he made approximately 1,400 per month at 30 hrs per week, but it was counted as full time. He has recently switched to an IT job for a perscription company and will make even more. We both had spoken to disability as sometimes his short term memroy sucks so I talked to them as well. I was told that he had a 9 month back to work trial period, and there was no income limit, I believed that since they counted the summer job even though it was temporary that they may count a part time job as well. Since, he has his new girlfriend and sports car to pay for, he couldn't afford to risk losing disability over a part time job and thus why he decided he needed to make enough to cover his lifestyle and looked for full time. We were told by the oncologist that when it came up for his review time for disability she would not say he is disabled anymore, so he decided to pursue a full time job to see if he could handle it before he lost his disability completely. I am not sure how often they review temporary disability cases as my son has been receiving it since June of 2006, someone had told me every three years. So, either way, by June he will have an accumulated total of 9 months of work and he'll be up for his review anyways so he's likely to lose his disability then. My son did not lose his medicaid during this 9 month trial period. He is covered by private insurance as well, but while he has been on the back to work trial period even though his income has exceeded his disability payments they have not taken anything away. My son's disability payments were about $750 per month. He didn't have much of a work history either, he was 20 and in college, or so it seemed, and I almost fell off my chair when the lady at SS said he had enough work credits...lol.
Thanks sue, steven gets 2 checks, one from disability and one from ssi. It looks to me like he can continue getting his disability during the 9 month trial period but do you know if the SSI gets prorated according to his income from his job.
He did an internship for a few hours a week for college this semester and they have offered him a position with the company but part time 10-16 hours a week. He is still in college.
I too was floored when steven initially got disability. He was in highschool and had worked part time but pretty much full time in the summer trying to get enough money for a car. He earned the exact amount of credits he needed. Although it was a small income for him, it was a blessing. After transplant when he was 21 he applied for the SSI.
Perhaps since it is only part time it's a whole new criteria. Since all of Chad's positions have been full time maybe why he is considered to be on the "9 month back to work program". Chad has lost his SSI since he has started working again and currently only gets the disability. That is probably true for Stephen too, the best way to know for sure is to call them. I know that people on disability do work part time, as I am a property manager and I have several tenants on disability and they claim they can only work so many hours/part time. I would imagine that Stephen went on SSI and disability around the same time frame as Chad, has his oncologist suggested that he has any ongoing issues that would prevent him from working? If not he may lose everything when he is up for review. I told Chad with this next job he will lose disability, he gets food stamps because he has his own apartment, and medicaid. Although he minimally used medicaid over the years because he had private insurance that company only garuanteed him coverage until the age of 25. That will be this next coming birthday in February, I think if he can't handle the new job because he suffers post transplant fatigue and ends up leaving it, I'm concerned he could find himself without any type of coverage. I wish that he could continue to at least get some sort of partial disability for a while because of the fatigue issues, I don't know how that works. Prove he isn't tired is what I say, and of course their theory will be prove he is....of course the full time employment, full time college and the new girlfriend accumulatively probably wear him down...lol. I know that the medical coverage will be a life long issue for these young men. But, of course in spite of all the issues that their history creates, we are blessed, there is life to celebrate!!!
Steven went on disability in 2004 when diagnosed. He did not go on SSI until 2007 when he was 21. At 21 they specifically went by his income for SSI. He has never been reviewed but when he went on SSI we brought in medical records and informed them of relapse, translant etc. We were told by a social worker at the hospital that AML would not come up for review for at least 2 years.
You may want to check your health insurance policy if you have family coverage to see if your son would be covered. A new law came into effect in the past year in florida which totally surprised me. It states....A child up to 30 years of age may be covered through the end of the calendar year in which the child attains the age of more than 25 and up to 30 uears of age provided that he/she (1) is unmarried and does not have a dependednt of his/her own: and (2) is a resident of Florida OR a full-time or part-time student: and (3) is not covered under any other health insurance policy or eligible for medicare or medicaid.
This came about because of so many people without insurance. Maybe your state has followed suit.
http://www.socialsecurity.gov/work/receivingbenefits.html
Also, read the paragraph on how does work affect medicare and/or medicaid. Would your son possibly be covered under that?
Thanks for your help, sue.