I have an elevated WBC of about 15,000. I recently had a bone marrow biopsy that didn't turn up anything although it said suspicions of myeloprofeliferative disorder.
All cells are normal and I am negative for JAK2 and BCR-ABL mutations. My doctor still seems to think I may have something. Why wouldn't the biopsy show evidence of the disease if I had it?
How many biopsies does it usally take to be diagnosed?. I also have other issues like shoulder bursitis that I am hoping is causing the elevated count.
Thanks for your insights.
Hi Holly. Maybe, perhaps, because your first BMB showed "suspicious" your doctors want another one to check and double check?? I would certainly ask them, and in my mind, better safe than sorry, yes?? Good luck to you,
Hi Holly,
I think you need to ask your doctor why the pathologists are “suspicious” of a myleoproliferative disorder. Perhaps, your doctor can also tell you of which myleoproliferative disorder the pathologists are suspicious. That would be helpful information for you.
I’ve had two BMB’s and both times I’ve seen the words “highly suspicious”. I have the impression that not all disease processes can be neatly put into a box. Sometimes, the diseases take time to develop, hide out in odd places or take on unusual characteristics.
I wish you good luck in uncovering whatever is ailing you.
Joe
i am having my second BMB tomorrow, my 1st one was inconclusive, however, my new hemo doc says there is something wrong with my cells, and it could be too soon to tell on my last one.
my WBC count is 1, and i get tired very easily and catch every thing that comes my way. this can test ones resolve can't it?
i've always thought of myself as a strong person, but this can be very difficult at best sometimes. i hope they give you news soon, i understand the waiting game, i've been playing it since june.
keep us informed, you are in my thoughts!
caoimhe
Thanks all for your kind responses. The waiting game isn't much fun.
Caoimhe, I wish you the best and hope you get well soon!