AT this point they don't see a need to redo it. We are not sure of who did it originally as there was an intern also and Karl was out for the procedure. We can't prove that is what caused the problem but still don't know.  The upper GI test also came back negative for any cancer so they still don't know why he has the "hot" spot in his colon area.  He is doing a lot better today-I would say about 90 percent-just hope the diarrhea is under control.  That has not been fun at all.

He will be at the hospital next Wednesday.  I have my yearly that day so I won't be there.

Good luck on your next scans-it is truly a never ending story isn't it. Referrng to my pap smear and all that junk:(

Hi Lori

I'm so sorry to hear about your scans-ouch-have they told you what they are going to do next-my thoughts and prayers are with you. Karl has had a rough time since his colonoscopy and not sure why-is it treatment, age, or?  He sees the doctor on Wednesday. They are setting up another appointment for him at Loma LInda as they want to put a camera down him to see why he lit up-so far everything else they have done has come up negative for anything-so far he is still in the trial but we don't know for how long.  Take care and keep me informed.

Hi Lori,

He is still having issues with diarrhea and it is not good. They are running even more tests to determine if it is the SAHA causing this or something else. They have postponed his treatment for another week due to this.  He feels the tunors or shrinking but you never know-the last CAT scan showed stable. He still is going to Loma Linda in September so we will know more after that.  What treatment are you going to have?  I know you said you were taking a break but I'm wondering if anything else has come up.

HI

Thank you for asking. He had the dosage reduced one more time due to the constant battle with horrible diarrhea.  It has seemed to help. He also had a test done at Loma Linda to determine what the colonoscopy and other test didn't see as he is still showing a hot spot in that area. He is suppose to get the results of that on Wednesday. I believe this determines if he is still in the trial or not.  I'm saying my prayers. I'm off to read your other post-keeping you in our prayers.

What is going on with you?  Did you get the results of your biopsy?  What are you going to do for your next treatment.  Karl does see the doctor this week. He had a PET and a CAT scan this week so we are anxious to see how he is doing. Other than a cold he seemed to do better with the lowered dosage and had less intestional "issues".