Here We Go Won't Be Long: 5th/Jan/10...: The Leukemia & Lymphoma Society Community

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177 Replies Last post: Mar 9, 2010 11:47 AM by willowbayfarm 1 2 3 ... 12 Previous Next

mic

76 posts since
May 8, 2009

Currently Being Moderated

Dec 31, 2009 2:09 AM

Here We Go Won't Be Long: 5th/Jan/10 Cord Blood Transplant

Went to visit my transplant doctor today and he filled me in on my situation about my CML with the t315i mutation.

He can't find a donor but he has found double cords which he said where 5/6 typing but I don't know if that's is good?

he doesn't mind the cord because of my age 49, hight which is 1.36 meters and weight 71 kilo's.

He has told me that he has to get on top of this as soon as possible 5th January.

I will have a few follow up's before hand and hope this all goes in the right direction.

I was going to go to the Hutch but because of all of the factor's as in it is going into winter, the plane trip from Australia, the h1n1 flu, coming back with no immune system etc, I thought I better off staying put.

peejay

337 posts since
Apr 3, 2009

Currently Being Moderated

1. Nov 20, 2009 8:08 AM

in response to: mic

Re: Here We Go Won't Be Long

Welcome mic. I had a double cord transplant with 4/6 matched cords, so 5/6 is quite good. I wasn't aware they did many cord blood transplants in Australia, as we have had many members here from down under and what I recall is that it was a rare option. If you have the means to be treated at the Hutch, I would consider it regardless of the season and H1N1 concerns. Patients in the US travel thousands of miles to go there for a reason. They are top-notch and have lots of experience in cord blood. Good luck to you, and if you have more questions, fire away.

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Tex

3,881 posts since
Apr 3, 2009

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2. Nov 20, 2009 12:54 PM

in response to: mic

Re: Here We Go Won't Be Long

Glad you're getting on with things, Mic. You're going to do fine in Oz.

Keep us posted as things develop or if we can help support you in any way.

Blessings

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KyGuy

1,267 posts since
Apr 3, 2009

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3. Nov 20, 2009 1:20 PM

in response to: mic

Re: Here We Go Won't Be Long

Good luck Mic and keep us posted. Wherever you decide to have the transplant, just check their stats and make sure that they have had enough experience with cord blood tranplants. I had my SCT at the Hutch - it's an amazing place.

Take care,

Kelly

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mic

76 posts since
May 8, 2009

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4. Nov 20, 2009 4:17 PM

in response to: mic

Re: Here We Go Won't Be Long

Thanks guys

The only thing I know is that the transplant doctor here was trained at The Hutch 14 years ago hoping that is his experence.

It is hard to find stats as you all know we are not a big country and don't have many case of BMT are performed.

I have to take into consideration the after care which I think is important.

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mamawarrior

945 posts since
Apr 3, 2009

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5. Nov 21, 2009 8:51 AM

in response to: mic

Re: Here We Go Won't Be Long

Another double cord transplant with 4 of 6 matches, here. Just wanted to wish you the best.

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Tex

3,881 posts since
Apr 3, 2009

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6. Nov 21, 2009 1:47 PM

in response to: mic

Re: Here We Go Won't Be Long

Fourteen years of experience would make me rest easy. I doubt there's much this guy hasn't seen and won't know how to respond to. He'll also be able to get support from the Hutch if it ever becomes necessary.

I think you're gonna kick ass.

Blessings

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pamd

1,347 posts since
Apr 3, 2009

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7. Nov 21, 2009 2:05 PM

in response to: mic

Re: Here We Go Won't Be Long

Mic, sounds like you are in very good hands! The Hutch is well-respected, but it sounds like your doc will be kind of an extension of that facility. And you do have to take into consideration being close to home---we all would probably sacrifice "convenience" for getting the best quality care, but it's not mere convenience we're talking about here, it's having a familiar support system close by that you have to consider, too. That can be very important in getting well. Keep us posted, we'll help get you through this!

Pam

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mic

76 posts since
May 8, 2009

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8. Nov 21, 2009 4:07 PM

in response to: Tex

Re: Here We Go Won't Be Long

Hi tex

The doctor trained there 14 years ago but I dont know how much experience he has

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pinkydo123

365 posts since
Oct 7, 2009

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9. Nov 22, 2009 7:56 AM

in response to: mic

Re: Here We Go Won't Be Long

These Heme/Onc's are a very closed knit group.they exchange info and have consult's with each other all the Time.Good Luck!!

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mic

76 posts since
May 8, 2009

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10. Dec 15, 2009 1:17 AM

in response to: mic

Re: Here We Go Won't Be Long

Been to the hospital today and the date of my admission is 5th Jan.

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pinkydo123

365 posts since
Oct 7, 2009

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11. Nov 22, 2009 8:02 PM

in response to: mic

Re: Here We Go Won't Be Long

Are you being admitted to The Hutch or in Australia??Have you made you're decision??

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mic

76 posts since
May 8, 2009

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12. Nov 22, 2009 11:54 PM

in response to: pinkydo123

Re: Here We Go Won't Be Long

I was going to come to the US to have this done but I was told that the hospital in Sydney Australia is a credtied place.

I can only hope I have made the right decision.

I was told if all goes well I'll only be in hospital for 4/6 weeks but thats a bit of a worry.

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willowbayfarm

406 posts since
Apr 12, 2009

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13. Nov 23, 2009 12:01 AM

in response to: mic

Re: Here We Go Won't Be Long

Hey Mic,

Just wanted to wish you the best of luck with your upcoming transplant. It sounds like you have a good match and an experienced doctor with ties to great resources should he need to confer with other experts about your care. I hope you can use this next six weeks to really take great care of yourself so you'll be in the best possible shape to take this on. Keep us posted, okay?

- WBF

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mic

76 posts since
May 8, 2009

Currently Being Moderated

14. Nov 23, 2009 3:20 AM

in response to: mic

Re: Here We Go Won't Be Long

Would anyone know what precautions should I take before and after.

I need to find a place to stay at if and when I get out so would trees, parks,busy roads, saltwater, apartments and people lifts be a problem??

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Dec 31, 2009 2:09 AM

Here We Go Won't Be Long: 5th/Jan/10 Cord Blood Transplant

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