I will have to ask, I think he had it back in Jan 09, not sure. I know he had ARA-C.

HI WBF,

Sorry for the delay in my reply. We are well. We have another BMB this week, with results next week. My husband received a second round of decitibine ( 5 days, 1 hour) and his marrow was clean, although his spinal fluid was not. He then received a few lumbar punctures with chemo and that cleared up the leukemic cells in his spinal fluid. He has had 3 clean spinal fluid biopsies since. After all this they held off on the Mylotarg, they felt it was not necessary.

He had an odd rash for two weeks that finally cleared up....they could not identify the source of it and it didn't itch. He also had radiation on his two leukemia cutis sites and those bumps are almost gone.The more I think about leukemia , the more I think it is a severe virus. I remember when my kids were younger and were fighting off viruses, sometimes they would break out in a rash. I interpret that to be the virus is working itself out. Well, that is our preferred method of thinking  anyway !

My husband is making basic progress....his digestive track is starting to balance out and be normal again. He looks more like his old self ,and  he is maintaining and slowly gaining weight. The oncologist askes lots of questions about how he feels, sleeps, energy levels, eating, a typical day etc... and can't seem to find anything that is an issue. So we are very optimistic.

I hope all is well with you and all those on this discussion board !

Sunny