Greetings.
One of my favorite color link that really help me understand more
about some of the treatment drugs and make them seem not so scary
click link below.. Good Luck .
http://www.healthvalue.net/actionantiCD20engl.html
Keep sharing and posting your experience and updates. It really does help
so many.
Greetings..
Sharing some more information . Over the years I used 'CLLTopics' website for information.
It has been a good option for help as well as L&L discussion. click on below
http://clltopics.org/index.php
Also the Free Materials and Booklets offer on Home page of Leukemia & Lymphoma Society
click on this link below and look on the left side of home page.
To find Free Materials. search there.. You can order free information that will come right to your door.. wow.. good stuff. I feel the more I learn, my path lights up more. click below
http://www.leukemia.org/hm_lls
Good luck ..
Greeting..
One thing I have learned over the years dealing with the DX of CLL and SLL .. it still is tricky.
Now after 7 years of a slow increase in WBC and nodes swelling. and having to have maintenance Treatments
of Rituxan time to time, to get things back in normal range again. I thought I was on that same slippery slope we all read about
on many of these posting and Forums. Now, Into my 8th year. My Dx seems to have slow it advance enough that I postponed
my 3 month and now my 6 month blood tests visits / doctor viist. Because my nodes feel pretty close to normal and I am feeling
better than normal. I am puzzled about this change. My doctor told me these DX s can be tricky at times, and that my own body maybe
fighting back more at this time. I feel I am not cured by any means. It is like I am in a holding place for now. I am going to enjoy it.
I am so happy having a break from doctors , needles, clinics , etc, etc.. Sept. I am planning a vist to get blood work done and see doctor.
Sept. will be 9 months between doctor vists . Wow.. I can not believe it. 8 years ago when I got the DX .
I never thought I would even be here today. From this, post today I going to recall the word Tricky.. Tricky Dx's
good luck to all and my favorite color picture Link.. as well.
Thanks for reading and sharing your experience
It is almost the middle of July now. I am still holding my own. Even with CLL. my nodes have been the issus more. From feeling my neck nodes
for years now. I know the nodes swell and shrink with different things that happen with my body. Rest is one key good thing. Sinus issue can
cause nodes to swell. Keep moving by working or active.. seem to help keep the blood flowing and I feel help my nodes stay more normal.
The herbs and finding that balance or vitamins herbs, eating food. Also drinking water.. Balance seem to be the key for me.
If you google Rosy Periwinkle Flower. you maybe like me and find this plant very interesting. They use it for cancer drugs, and it has a lot of
other anti-cancer elements as well. I fund this by doing some gardening at home. What a interesting plant.. and I having a blood cancer.
Some things are just fate. I still hanging in there. I think I will make for 9 months with out seeing or visiting a clinic or hospital.. this will be a record.
good luck
Ascen
Oh yes.. I lurk here and there... Over 8 years now.. heading for 9...years...wow.. I would have never thought it..
You had a transplant.. interesting.. can you share something about the experience.. do you take any extra drugs now.. ?? are you back pretty good?
a friend of mine is going thru one now.. about 3 weeks post blood test look pretty good , had to start taking some extra pills to smooth out
rejection issues... over all it was out patient so far.. the mask and being careful and resting.. diet changes...etc..
any tips.. for us , the in and outs to a smooth transplant.. thanks for posting a note..
I like the old board but change is what seem to happen, I sure have no control... take care