The Leukemia & Lymphoma Society - Fighting Blood Cancers
16 Replies Last post: Nov 24, 2009 1:19 PM by Tex   1 2 Previous Next
Tex   3,881 posts since
Apr 3, 2009
Currently Being Moderated

Nov 18, 2009 3:49 PM

Grieving -- Your Thoughts

I just had a thought while replying to Gal Pal's thread.  I didn't want to hijack her thread so I thought I'd start a new one.  I'd some opinions from anyone reading...

 

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I wonder if some people are afraid the pain will go away for good if they move beyond it?  In other words, if I don't remember my loved one every day and hurt over it, will my memory of him/her reduce to the point I don't feel any pain for her ever again?  Will that mean I don't grieve anymore?

 

I constantly try to understand why some folks seem to feel grief for short periods of time while others seem to grieve for months or years.  I know that those who go the shorter time don't love the departed less and they don't stop grieving.

 

I don't want to put thoughts about why or how we grieve in anyone's head.  But what do you think about my idea?  What other thoughts do you have?

 

Blessings

Jeri   510 posts since
Apr 5, 2009
Currently Being Moderated
1. Nov 18, 2009 6:03 PM in response to: Tex
Re: Grieving -- Your Thoughts

Tex,

I do not understand grieving really at all.  I've grieved very differently over different people whom I've lost.


When I was 21 I had a really good friend die from a heart attack (he was only 20).  I still have dreams about him.  I dream he's not really dead, and I'm always so sad when I wake up from such a dream.  I am 48, it's been a long time.  A month and a 1/2 after he died, my grandmother passed away (it was actually on what would have been my friend's 21st birthday and also Thanksgiving that year).  She had lived with us for 10 years, so I was pretty close to her, but at 81 she was ready to go, and I was not sad, though I still think of her often.


I had a stillborn son 13 years ago.  When I lost him I thought I would die.  It was so very painful and was that way for a long, long time.  I physically ached, I mean my arms had actual pain in them from not holding him, it was hard to breathe, move, do anything.  It was kind of an out of body experience.  As time went on, it got better, but there are moments when I still feel that pain very intensely.  Most people can't understand this because he was not born alive.  To me though, he was as much alive and as hard losing as if I'd lost one of my living children.


I lost my other 2 grandparents 4 days apart.  They'd been married almost 66 years.  While I miss them, it was a blessing they more or less went together.  They had a very full life together and it would have been more painful to see them apart.  I actually think my grandfather died from a broken heart and my grandmother waited to die for him to be able to do so with her.  We were told she had 2 weeks to live and she lived for 5 months, in which time he deteriorated to the point he died right after her.  He hadn't been ill.  She was 86 and he was 87.  They were so cute together - after all those years they still held hands.  I came home from my Grandfather's funeral and separated from my 1st husband.  I wanted to be with someone and feel that way.  I am lucky I found John and now I do .


I think grief comes in a lot of forms.  I know I have felt grief over my lymphoma and all of John's things he went through.  It has changed our lives and even changed me in how I feel about people.  We have lost part of who we were.  It makes me feel almost aloof sometimes.


What you wrote, reminded me the first time I went a day without really thinking about my son I lost.  I felt really bad, kind of guilty, that I could move on.  I missed that intense pain when it lessened.  I think it's because it keeps the person close to you in an odd way.  Perhaps that's why some people don't or can't move on.


Thanks for letting me share.  I think of this often and have a lot since Bev passed away.  I ache for Nicole.  I dread the day I lose one of my parents, and I pray I'm not around to lose my husband or one of my other children.

 

Boy I've rambled on. . .


Hugs, Jeri

Prayers for my Mom, by Nicole   1,164 posts since
Apr 3, 2009
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2. Nov 18, 2009 8:25 PM in response to: Jeri
Re: Grieving -- Your Thoughts

Thanks Jeri for thinking of me, though I wish it were for a better reason:)  Sorry to hear of all your losses.  When you spoke of your dreams about your friend, I have been doing the same about mom, and when I awake it feels unreal that she is gone, because in my dreams she is so alive and healthy.


My grieving for mom began long ago.  I would have to say the day she was diagnosed.  I was now faced with the fact that my mother may not live the long life I had planned, we had planned.  Then as time passed I ached for what she could not do and grieved for the things we had lost.  She could no longer travel to New Orleans to visit my sister and I, she could no longer work, and so on.  Then with her relapse I grieved more, now I was even more scared for her life, and knew what to expect from the transplant thanks to you all.  I grieved for my mother's pain, her emotional stress, the physical changes she went through.. I grieved for the little things she go no longer do that she loved, like bake pies and cookies, enjoy time with my dad, travel, and just sleep in her own bed.  I grieved the whole time she was away from home and each time we were told bad news, and for all the time she lost with her first grandbaby.  Then on Aug. 3 I grieved in a new way, I grieved that it was here, the day I had never hoped for the dreaded day she would die... I saw our lives flash before my eyes, and saw myself as a little girl riding on the handle bars of her bike as she took me to the baby sitters.  I saw my mom young, vibrant and running around the house screaming at me to clean my room, make my bed and so on..  So there we were for over a month grieving, longing for what we may lose and giving our all to try to stop it.  It was out of our control.  So I laid there beside her bed at night, knowing that my mother, my flesh and blood would take her last breath one day too soon.  That I would live so many long years with out her.. and that all of my joy in the future and dreams would not include her.. She would never see my children, my birthday's, take vacations with me, spend holidays with me, nor would she ever bake those No Bake Cookies that we loved to bake since I was child together.  She would leave not only me, but all of us.

So I grieved and as I grieved I found joy in all that I could do.. which was too massage her feet, wipe her face, make sure the nurses turned her and cleaned her mouth, watched carefully that no one would hurt her as they moved her side to side.  I was in a position where I was like the mother and she was the child, but still I couldn't be and didn't want this to be, but it was.

So it came to be that Sept. 18 when moms heart beat its last beat and her body laid still.  It was no different because she couldn't move really prior, but she could no longer Smile!  I waited as I prayed she would awake, she would miraculously by the grace of God open her eyes and say anything to me!  I wanted another word because I had missed her last breath.  She never did smile again, and so I came to grieve in a different way.

I became angry.  So angry for the first month that just the thought of her in that bed would send raging emotions from my mind to my heart.  I would have to run and get away.  I couldn't work and I couldn't focus during this phase of grief.  There was no way out but to just be angry and hate everything and anything.  Then I found myself more so the last 2 weeks turning to sadness and denial.  The disbelief that she was not home in IN, and that I will never see her again.

I turned to God, and even though it has helped some it has not helped a lot.  I never really was angry at him until the other night, when I couldn't sleep and got out of bed and screamed in my house, WHY, Why God did my Mom have to die?  Why not someone else?  Why did she have to do this?  Why do I have to spend the rest of my life with out her?  And so I realize these questions are not very rational but they are what I thought.

I am trying to accept that I will Never Ever Know or Understand why this happened to my mom.. I will Never and could never know why and no one will ever be able to tell me?  This bothers me because I would love to just hear God or anyone give me a good reason why one of the best mothers and woman in the world would die this way.  I can see being in a car wreck and dying, but why the suffering and why did she have to be the way she was physically, mentally, and emotionally.  She deserved so much better to not have to die that way.  But then I realize that did it really matter?  She never saw herself but I did, and I just have a hard time accepting it.


So to answer your question I really do not know where I will be 6 months, 1 year and so on from here in my grief.  I do know that it makes me sad to think of not grieving.  I just don't want to stop aching and lose the sadness, because in a sense I am afraid that I will lose her.  I have thought a lot about wanting to feel this pain, not to this extent of course, but I don't want to forget her.  And I know that its okay for me to be okay and to not feel pain about her death, and that it would probably be healthier, but right now I can't.  I guess I am saying that I don't want to move on.   I do realize that it is only 2 months today, therefore it is still too soon to really expect anything different from myself, and with the holidays approaching I can't see it getting better!

hugs, nicole

pegetha   294 posts since
Apr 3, 2009
Currently Being Moderated
3. Nov 19, 2009 7:46 PM in response to: Tex
Re: Grieving -- Your Thoughts

Tex, perhaps that is true for some people, that they are afraid that letting the pain go would mean that they are letting the loved one go.  I don't know.  The grieving process is different for each person.

sherry   8 posts since
Apr 5, 2009
Currently Being Moderated
4. Nov 19, 2009 11:02 AM in response to: Tex
Re: Grieving -- Your Thoughts

Hi Tex,

It's been awhile for me too.  I don't come here often anymore because, well it's hard.  I think I might be able to offer you some perspective.  For those of you that don't remember me, I am Kenny's mom.  Kenny was my 18 year old son that passed away due to septic shock caused by bone marrow transplant caused by relapsed T-Cell ALL.  He passed away 3 years ago on July 24, 2006. 

 

Yes I still grieve.  I will always grieve for my son.  Three years later, it still hurts as badly as it did then.  I still miss him as much and not a day goes by that I don't think of him.  The days that I don't think of his death are good days.  Those days still rip me apart.  The days when I can remember him when he was alive and well are the good days. 

There are some days that I am able to present a "happy" face to the world, though those that really know me, understand that I am just having a good day at hiding my hurt.  Some days are definitely easier than others. 

 

There are moments, even hours, when I am able to go without thinking of Kenny at all.  Those are the times that hit me later with a truckload of guilt that I actually forgot my lost child for a little while.  Guilt.  Lots of guilt because my son is dead.  He wasn't supposed to die.  He wasn't supposed to get sick.  He was supposed to grow up and do amazing things with his life.  I feel guilty when I find myself going on with life when he no longer can.  I know that I shouldn't feel this way (I've read all the books and attended all the grief classes), but it is impossible for me not to.  I can't help it.  I don't know if I'll ever feel like I should actually enjoy my life again. 

 

Some days I wish that the pain would go away, but maybe you're right Tex.  Maybe I'm afraid that if the pain does go away, my memories and my love for him will fade...

Sherry

sherry   8 posts since
Apr 5, 2009
Currently Being Moderated
7. Nov 19, 2009 5:30 PM in response to: Tex
Re: Grieving -- Your Thoughts

Thanks Tex,

If I'm healing at all, it's because of Paige and my "new" husband George.  You're good - she's 15, on her high school drill team and doing great in school after a rough couple of years.  She keeps me busy and in the present.  George also has a way of keeping me in the here and now - he's facing a kidney transplant because of his diabetes, so that's in the near future for us.   If it wasn't for the obvious, I'd say my life is pretty good. All I can do is live each day, parent my daughter, care for my husband and hope that I don't lose him in the near future, and miss my kid.  There are times when I don't know how I'll do it, but somehow I get through the days.

 

I also think of you and your wife with love and affection and no matter where I am or choose to go, I will never forget the two of you for what you did for me.

 

By the way, if anyone cares to keep up with us, I have a carepage (carepages.com) for George under 'georgelacourse' that I attempt to keep updated and I'm on facebook under 'Sherry Day Walker Lacourse'.

 

My best to everyone,

Sherry

Jeri   510 posts since
Apr 5, 2009
Currently Being Moderated
8. Nov 19, 2009 7:43 PM in response to: Tex
Re: Grieving -- Your Thoughts

Tex wrote:

 

But it was and is truly freaky when it happens.

Tex, It really, really is.  I wake up from these dreams and they feel so real.  It's such a bizarre feeling.


I was so glad to see your post Sherry!  I hope all goes well with George.  If you have a chance, please come on here and let us know.


Hugs, Jeri

stagsgirl   109 posts since
Oct 13, 2009
Currently Being Moderated
9. Nov 20, 2009 10:08 AM in response to: Tex
Re: Grieving -- Your Thoughts

I am new to this grief thing, but I have a few thoughts. I think in the beginning stages of grief, you can't really control your emotions because the sadness and pain are too raw and close to the surface. It takes a long time for many people to get past this stage.  But I think there comes a later point, where some people make a choice to "move on" in a sense, and to allow themselves to close the door on that pain just a little, and give themselves permission to be happy again. For many people, this is extremely difficult and can cause deep feelings of guilt.  Of course it makes sense that you might feel guilty for not being sad anymore.  When the person we love is gone, the only thing you can do to show your love is to grieve, to be sad, to refuse to feel joy. So it can be very frightening to let go of the grief - you might feel as if you are losing that last, thin connection to your loved one.  Even if you know, logically, that your loved one wouldn't want you to spend your life grieving, and would want you to be happy, nonetheless it might be extremely hard to allow yourself to be happy.

 

I am definitely grieving not only for my father, but for the family I once had.  Less than two years ago, I had two parents and four grandparents. Now, I only have my mother and one grandmother left.  I lost my beloved maternal grandmother in early 2008, then this summer, I lost my maternal grandfather in June, my paternal grandfather in July, and my dad on August 13.  I haven't fully grieved for my mom's parents, who lived in London. I was extremely close to them but I couldn't go to either funeral. I wasn't able to be with my aunt, uncle, cousins and other family members and cry with them.  I attended the funeral for my father's dad, but two weeks later my dad passed away and the focus shifted, of course. I can't even imagine how my poor grandmother is coping - she lost her husband of 60+ years and her eldest child within a two week period.  I think it is very important to have some kind of funeral or event to mark the passage of a loved one, and to allow the world to stop for a few days, and to have a good cry, rant, scream, or whatever.  I feel bad that my grandparents haven't been mourned in the way they deserve.

 

Just a quick comment on Nicole's post.  What she described feeling during the time her mom was so sick is called anticipatory grief. My mom and I went through this over the past year before my dad died. I would get lost in daydreams about my dad's funeral, thinking about how I would eulogize him, imagining who would come to the funeral. I've always thought this is a way we prepare ourselves for death.

 

I feel like I am on some weird journey and I have no idea where the path will lead me.  A month ago, I was telling people I was at peace with how my dad died, and I had no regrets about anything. Now, I'm not so sure. I don't understand why he died.  Or to put it another way, what was the cause of death? Was it the leukemia? No, not really, because he was in remission. Was it the transplant? I don't know - he had 100% donor blood so the transplant was successful. Was it the GVHD?  Not really, because it was under control with medication.  He had so many lingering side effects but none of them, on their own, were life-threatening (I think).  I can't help but feel like he abandoned us a little, like he turned away from life. I feel guilty thinking this. I don't want to blame him.  It is hard to accept that my dad chose to die.  I know my mom doesn't want to believe this.  I don't know what to believe. I think I have a ways to go before I come to terms with this.

 

Hugs to you all.  Thanks for letting me get this out.

Leslie

sherry   8 posts since
Apr 5, 2009
Currently Being Moderated
12. Nov 20, 2009 1:46 PM in response to: Tex
Re: Grieving -- Your Thoughts

Of course Paige knows about you...there was a time when I couldn't stop saying "Tex said..."  I'll absolutely give her a hug - any reason to hug my girl.  I know that George is going to be fine - he is stable on dialysis (numbers are good) and we even have a preliminary match that has offered a kidney - guess who?  Nick's mom, Shelly Knowles aka SKYRAC.  But first, G has to lose 20 lbs and we have to get through next Tuesdays foot surgery (they are amputating more bone from his foot).  We'll get through this just like everything else. 

I'll try to stay in touch better - love ya guy...take care of you, okay? 

 

Hello Jeri - it's been awhile. I don't recongnize most of the people on here. 

 

Sherry

stagsgirl   109 posts since
Oct 13, 2009
Currently Being Moderated
13. Nov 20, 2009 1:58 PM in response to: Tex
Re: Grieving -- Your Thoughts

No, Tex. It is all of us who should be thanking you. I have a feeling you started this thread for our sake, as much as for your own. You tend to do such unselfish things.. and we are all the better for it.  Thanks.

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