The Leukemia & Lymphoma Society - Fighting Blood Cancers
10 Replies Last post: Dec 16, 2009 11:30 AM by browneyes  
browneyes   17 posts since
Oct 4, 2009
Currently Being Moderated

Oct 12, 2009 9:00 PM

Petechiae with normal bloodwork

Hi.  I was wondering if anyone has any experience with petechiae.  If you read my other post, I've been dealing with 3 slightly swollen lymph nodes for 4 months.  All of them at last check-up were less than 1.5 cm with two of them being very slightly less than .9 cm, although when originally found they were all between 1.3 cm and 2.1 cm.  My primary care doctor, 2 ENTs, an endocrinologist that I was sent to due to a mislabeled FNA specimen, and a hemotologist all say that these lymph nodes "seem" benign.  I'm hoping they are right.

 

I've noticed that since August I've been developing petechiae on my upper arms, side trunk, and back.  When I originally started noticing them (I was looking out for them as they are a symptom of lymphoma) they were very few in number.  They would fade within 8-24 hours but would come back in a different location within 2-3 days.  While on vacation in late August I ended up with a long line of them extending from the front part of my trunk to 1/4 of the way on my back.  All the dots were in a straight line.  They too went away although I started getting reoccurances of them quicker...within 1-2 days.  Now I am getting new ones everyday.  They are larger in number most times although not as widespread as the pictures that I see online.  Last night I freaked out because I developed them on my shoulder which is a new spot.  I also had them earlier in the morning on my trunk.  Those were almost faded by the time the ones on my shoulder appeared.  I'm 100% sure they are petechiae, although they were not present when I went to see my primary care doctor who referred me to a hemotologist.  They weren't present for that appointment either.  However, based on the description of petechiae, tiny round blood spots that do not blanche and fade, I'm positive that these are petechiae.  I have cherry angiomas and I know the difference.  Plus you have those forever.  I called my hemotologist's office and I have an appointment for Friday afternoon.

 

3 weeks ago the hemotologist tested my CBC w/differential and platelettes again (it's been tested numerous times this year) along with LDH, clotting time, and von Willebrands.  Everything came back fine.  I have copies of most of my bloodwork from this year and everything seems within range and fairly normal.  Platelettes are always within the mid 200 - mid 300 range which is well within range.  The only thing that was ever very slightly high was my MCHC which I was told sometimes happens but is ok since all of the other red blood cell counts are within range.   My WBC was near the high limit of in range amount once at 10.4 with slightly high poly (I think that was the one) and slightly low Lymphs which would indicate an infection.  I was never told of this so these numbers must be ok in the big picture and those numbers never reappeared.  The only other striking thing I saw was that the last time my primary care doctor tested my CBC, he also checked my B12 level which was within range, however on the very low side at 274.  There was a notation on the report that said 200-400 can cause neurological and hematological problems.  I asked the hematologist about this thinking that since my platelettes are normal that the petechiae could be caused by a B12 deficiency.  He didn't think so.  He said that the B12 was ok but I read that only when it's above 400 is it considered really ok.  My liver bloodwork also looks normal (bilirubin, alkaline, AST, ALT, creatine, etc.).  My ESR was a 1 (very well within range) back in early March.  LDH I was told was normal although I don't know the number.  My lyme test was negative as was my ANA test (for Lupus I believe).  It doesn't look like I have an autoimmune disease.  I think that all of these doctors have covered all bases.

 

Does anyone have any clue what could be causing the petechiae?  The only medication that I take is Zyrtec-D (allergy plus psuedephedrine).  I wasn't taking this type of antihistimine when I started noticing the spots so I don't think that it's causing them.  I haven't changed detergents or soaps and do not wear perfume.  My deoderant is hypoallergenic and the spots aren't on my arm pits.  The hematologist said that if I had lymphoma, which is my main concern because of the lymph nodes, the petechiae would be caused by low platelettes.  Is this correct?  I assume it is because this doctor is a hematologist oncologist so he treats this everyday.  Should I request a bone marrow aspiration?  Are there other blood tests that look for the cause of petechiae?  I know it's ok to get a couple once in a while.  I was told that that is normal.  However, I'm getting them everyday and I'm happy that they fade quickly, but something just doesn't seem right.

TomsMom   60 posts since
Apr 4, 2009
Currently Being Moderated
1. Nov 3, 2009 10:39 PM in response to: browneyes
Re: Petechiae with normal bloodwork

Hi BrownEyes.  It sure seems like the doctors have covered all the bases.  You mentioned at one time the Petechiae was in a long line from the front part of your trunk to 1/4 the way on your back.  To me that sounds more like an allergy.  If you are female, I would suggest maybe your bra.  My mom had this happen and it was the bra causing it.  She had bought a new bra and wore it without washing it first.  I found out that clothing should be washed before wearing because alot of time garments are shipped with Formaldahide (not sure of the spelling, but it's embalming fluid).  It's used to keep insects from getting in and eating the clothes.  When my son had Petechiae it started on his feet and worked it way up his body.  I hope you figure out what's going on.  I know it's frustrating looking for answers.  Take care...Connie

TomsMom   60 posts since
Apr 4, 2009
Currently Being Moderated
4. Nov 15, 2009 8:22 PM in response to: browneyes
Re: Petechiae with normal bloodwork - UPDATE of biopsy results

Hi Browneyes,  My son Tom had T-cell ALL (Acute Lymphoblastic Leukemia).  He finished chemo Oct 2008.  He's doing well except for the side effects of the chemo.  I wish you the best of luck.  I hope all this turns out to be nothing.  I know you're scared.  I will be praying for you.  My son's caringbridge web sit is www.caringbridge.org/visit/thomasfrasier .  Leave a note in the guest book section and let me know how you're doing.  Connie

Susan61   245 posts since
Apr 4, 2009
Currently Being Moderated
6. Nov 19, 2009 8:29 PM in response to: browneyes
Re: Petechiae with normal bloodwork

Hi:  I do not get onto a lot of these other boards.  I am on the Living With CML for quite awhile now.  What your going through is worse than knowing what your problem is.  I can still remember the anxiety of waiting for my diagnosis.  Lets pray that your problem is something simple and treatable.

     Personally, I would keep getting the blood tests done to watch the WBC, being it in the higher than normal range.  They kept telling me I probably had a sinus infection.  I worked for the Medical Group that ended up treating me, therefore, I had them checking my blood every 2 weeks.  My WBC went from 11 to 15 to 19, and then they said it was tiime for a bone marrow biopsy.  Turned out I had Leukemia, and it was caught early.  I am doing treatment now since 1998 with no bone marrow transplant.

    I will try to get back on here every few days to see how your results are coming back.  Your symptoms and blood tests are not your everyday results, and thats why it could be something besides Leukemia, Lymphoma, or one of those.  Just keep on top of the situation.

   Take Care

Susan 61

Djlawman   158 posts since
Apr 3, 2009
Currently Being Moderated
7. Nov 29, 2009 1:04 AM in response to: browneyes
Re: Petechiae with normal bloodwork

If your platelets are 200-300 (which is a pretty normal level), those are not petechiae.

 

Petechiae are formed by bleeding out of small capillaries in the body, and are caused because the platelets are so low that the blood simply cannot clot off.  When my son, who had leukemia, was diagnosed, he had petechiae all over his trunk and legs , which we hadn't seen because it was the middle of winter, he was a teenager,  and we never saw him without long pants and a shirt on.  (I'm talking thousands and thousands of small red dots, not just a few,  and not just in a line on his body somewhere.)  By way of example, his platelets were 20 at diagnosis, compared to your 200 to 300.

 

So, with a platelet level of 200 to 300, I am quite confident that you are not experiencing the petechiae that are associated with leukemia.

 

What you have, I don't know.  But it sure sounds like your doctor knows what he is talking about when he tells you that you do not have petechiae.

sach   79 posts since
Nov 6, 2009
Currently Being Moderated
8. Dec 6, 2009 1:35 AM in response to: browneyes
Re: Petechiae with normal bloodwork

I had petechiae once about 7 years ago, spread all over my abdomen.  Had no idea what they were, doctor really had no idea either and tried to give me some kind of steroid cream, but I realized they absolutely weren't a rash - no itching, etc, so the cream did nothing.  I looked it up and figured out what they were, and verified it based on my description with another doc later, who also couldn't guess why I'd gotten them, except maybe some random virus.  They eventually went away a week or two later, and haven't seen them since.  Blood counts weren't done at the time I had them, but were normal before and have always been normal since.  Maybe some random virus or something did cause them or cause my platelets to drop a bit for a week or two or something, but I figure I'll never know.. and it really doesn't matter since nothing ever came of it, either...

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