The journey continues: The Leukemia & Lymphoma Society Community

Up to Discussions in Non-Hodgkin Lymphoma

267 Replies Last post: Jan 2, 2010 3:34 PM by bjm Go to original post 1 ... 14 15 16 17 18 Previous Next

Cookie Monster

517 posts since
Apr 9, 2008

Currently Being Moderated

255. Nov 18, 2009 11:05 PM

in response to: sha_shelt

Re: The journey continues

Sharon,

It seems my computer itsn't playing nice with this forum either. I'm just now seeing that your thread was updated back on the 10th and of course I'm seeing today's update. What's with that . . .??? Very strange.

Anyway, lol that you're the healthest sick person according to your oncologist. Glad too that you can wait until late January and wow you have a great boss, they seem to be few and far between. Although, Marc's bosses were really, really kind to him when I was going through treatment. In fact, his company does Light the Night and there are several teams. Pretty cool, huh? One of the VPs had family with non-hodgkin's lymphoma.

See you over in the garden and thanks for joining me for the jammie party, even though I thought I was alone. Maybe I need my eyes and hears checked. LOL

Hugs,

Jane

Report Abuse

peanut59

176 posts since
Apr 18, 2009

Currently Being Moderated

256. Nov 18, 2009 11:51 PM

in response to: sha_shelt

Re: The journey continues

Hi Sharon,

Glad the timetable lets you enjoy your holidays without being in treatmnet. One suggestion to you and that is to think hard about using Rituxan with the Benda. THe doctors that I have consulted with are all feeling that the results are showing that Benda with Ritux is a more powerful punch than just Benda, even in people who think they are Rituxan resistant. I think Greg posted some research from ASH too that you might want to check out. Even though I feel like Rituxan on it's own is like sugar water for me, the oncologists that I've spoken to insist that the Benda works differently than the CHOP and that in combo with the Rituxan there's a potential big benefit. Just my 2 cents. Fnished cycle 2 yesterday and had my neulasta shot today. Been pretty on edge but I know I'll calm back down soon. xxxlaurie

Report Abuse

NetNewt

87 posts since
Apr 3, 2009

Currently Being Moderated

257. Nov 19, 2009 6:08 AM

in response to: sha_shelt

Re: The journey continues

Hi Sharon

Have a lovely holiday season - enjoy Thanksgiving and ignore all those little beasties and pretend they don't exist!

DOn't you just love the oncologists when they look at you and say - well no one would ever know there was anything wrong with you. Great news - you feel good and then they check the scan results which show it actin up again - crazy - I always feel it is so surreal but have to trust their judgement.

Take care and enjoy - think your idea of going out for buffet lunch is good - someone else to do the cooking and cleaning up for a change.

All good here - rituxan no 4 for me tomorrow - worse part is getting the needle in = always takes a few goes - hopefully just 1 tomorrow - the weather is stinking hot here - areas in our state are having record number of days over the 100 degrees and we look like copping one tomorrow - not a summer girl - always hard to get cool and much easier to get warm in winter.

Will be interested to find out how you go on the Benda - who knows what is ahead of me if the rotten beast doesn't capitulate to the Rituxan this time.

Hugs

Lyn

Report Abuse

Jeri

511 posts since
Apr 5, 2009

Currently Being Moderated

258. Nov 19, 2009 4:08 PM

in response to: sha_shelt

Re: The journey continues

Good for you on the Thanksgiving plans. My Mom stopped "doing" Thanksgiving 4 years ago. It's not felt the same since (not to make you feel guilty) - we'd have all us kids plus grandkids - there were 25 to 30 of us. I can't imagine why she'd want to stop - lol!

Hugs, Jeri

Report Abuse

sha_shelt

637 posts since
Apr 3, 2009

Currently Being Moderated

259. Nov 19, 2009 4:23 PM

in response to: NetNewt

Re: The journey continues

LOL I understand about the heat, Lyn! One can always put on more clothes but there are only so many that can be taken off before people begin to point and laugh (at least in my case! LOL).

Good luck with R-4 tomorrow. Let's just call it "liquid love' and it's going to it's designated targets and blasting them to pieces!

Hugs!

Sharon

Report Abuse

sha_shelt

637 posts since
Apr 3, 2009

Currently Being Moderated

260. Nov 19, 2009 4:27 PM

in response to: Jeri

Re: The journey continues

25 or 30 of you???? <eyes POP!> You surely do have a Supermom. I remember the times when we'd all get together, nieces/nephews, aunts, uncles, cousins (sometimes),.....OMG! It was noise and confusion but everyone brought the side dishes to the home that cooked the turkey so it wasn't too much on any one person. Just wish I could make my Mom's hot rolls. Sis, if you're reading this can you Fed-Ex me overnight a batch - you're much better than I am at the rolls! lol

Report Abuse

sha_shelt

637 posts since
Apr 3, 2009

Currently Being Moderated

261. Nov 19, 2009 4:32 PM

in response to: peanut59

Re: The journey continues

Hi Laurie,

I've thought long and hard about the Rituxan with the Benda and I asked my Tucson doc about it. He's the one who said it was pretty obvious that R does a whole lot of nothin' for me. That's why the Zevalin failed, it was piggybacked a ride to no-where cos the Rituxan wasn't/didn't/couldn't zero in on the lymphoma as it was supposed to. Guess my bad cells go into stealth mode with R - either that or they are wearing itty-bitty cammouflauge outfits. lol

I'll think on it/research some more though and when I see my local doc in mid-January, may bring it up again.

Report Abuse

sha_shelt

637 posts since
Apr 3, 2009

Currently Being Moderated

262. Dec 29, 2009 6:18 PM

in response to: sha_shelt

Re: The journey continues

Well it's been another boring 5-6 weeks on the medical front for me but it's almost time to see another year in. Hard to believe it's been over 8 years now since original dx. I remember the scared feeling in the pit of my stomach, having to learn a whole new language, feeling as if I was in a whirlwind and reading on an old, old website where I'd be lucky to see 2003 come in! <whew!>

So for all you who've been traveling with me for awhile - THANK YOU! For all of you who've allowed me to join you on your journey, I'm humbled. In memory of all those who's journey has ended, I am blessed that our paths were allowed to cross however briefly it was. And for those of you just starting the journey - there is hope! Stay focused, stay determined and get up off that mat one more time than you are knocked down!

HAPPY NEW YEAR to one and all!

2010 - the best is yet to be....

Report Abuse

Jeri

511 posts since
Apr 5, 2009

Currently Being Moderated

263. Dec 30, 2009 4:00 PM

in response to: sha_shelt

Re: The journey continues

It's been a journey for you, for sure Sharon! Happy New Year!

Hugs, Jeri

Report Abuse

Cookie Monster

517 posts since
Apr 9, 2008

Currently Being Moderated

264. Dec 30, 2009 5:35 PM

in response to: sha_shelt

Re: The journey continues

Happy New Year Sharon! I couldn't say it any better than you have. You have certainly been on a journey, and I for one, am grateful for your wisdom and friendship.

Hugs of love,

Jane

Report Abuse

kgirl

240 posts since
Aug 16, 2009

Currently Being Moderated

265. Dec 30, 2009 7:44 PM

in response to: sha_shelt

Re: The journey continues

Right back atcha Zen Gal....don't know that I would have made it to where I am today without you.

Prayers, Promises, Love, and all good things are by the firepit waiting for you.....ummmm, don't forget the Irish!!!!!

Kgirl

Report Abuse

dawnsie123

150 posts since
Apr 4, 2009

Currently Being Moderated

266. Jan 2, 2010 1:19 PM

in response to: kgirl

Re: The journey continues

Yes, thanks Sharon for all the kind words over time. Also may this year be the year where no news is good news. Dawn

Report Abuse

bjm

54 posts since
Apr 4, 2009

Currently Being Moderated

267. Jan 2, 2010 3:34 PM

in response to: sha_shelt

Re: The journey continues

YOU have been a blessing, Sharon, in so many ways, to so many. Thank you for the hands you have held along the way.

Love,

Bonnie

Report Abuse

Go to original post 1 ... 14 15 16 17 18 Previous Next

Go to original post

Actions

More Like This