Well I started this phase II trial on Oct 29 and it seems to be a lot harder than anticipated. This past week, on my "off" week, I've developed some side effects including neuropathy, bone pain and a sinus headache. I am also very dizzy. Last night I just about passed out after getting up from a chair and going to the kitchen. Luckily my son was there to help me. The rest of the side effects I can tolerate, but the dizzyness is too much. Has anyone had neuropathy bad enough to cause dizzyness and what did you do to counter act that? The phys asst said she would check to see if they could postpone starting phase 2 (of 3 phases) a few days to get me feeling better. Yesterday when I was in the clinic, my blood pressure when I stood up was 83/68 so then they gave me fluids which helped but last night I still felt faint. Also, I have no energy.

So if anyone has gone through this, I would appreciate your input. I'm thinking the main cause is the neuropathy. I am taking a decongestant for the sinus headache which sometimes works!

Thanks for your help.

Well, I found out what was causing the dizzyness. I'm in the hospital again and they did an MRI of my head and it shows some leukeimia on the outside membrane of my brain. They started me on sterioids to reduce the swelling and on Mon I will have a spinal tap for insertion of some chemo. (Not good!!! ugh). Then my team of doctors will get together and plan out some options and present to me with pros and cons. Good thing I'm at a large teaching and research hospital (U of MN).