Today is the one-year anniversary of my mom's passing. She passed away of AML. She was 77 years old. I really miss her. Sunday, November 8, her 21-year-old granddaughter Raquel will be getting married. I wish my mom could be here to see her get married. But I have to say, if it wasn't for my mom's AML, her granddaughter might not be getting married. It was during my mom's illness that Raquel and her fiance began dating and he became her rock.
My mom was so full of life. She was a walker. In 2008, she started to slow down and would get tired very easily. The doctors thought it was her heart because she was a heart patient. She had a heart attack in her early 40's because she was losing too much blood. She was otherwise healthy and feeling great since then. In September she lost a lot of weight. In October she was diagnosed with AML. Because of her age, her doctor said she wouldn't recommend chemo because she may not make it out of the hospital. So we took her home, and she was given chemo pills. She was doing so well for a week or two. Then one day she woke up with mouth sores and a fever. She went back in the hospital. They started her on morphine, and she passed a few days later.
I posted her passing on the old board. That was my last posting. Since then I've just been reading everyone else's posts. I have learned a lot about AML and other cancers since my mom's passing. My sister says I need to stay off this website. I feel this website has helped me so much with understanding my mom's cancer and her passing. I even called and spoke to a member of this board whose mom passed away a few months before mine. I live in Southern California and so does she. I learned her mom was being treated at the City of Hope. That's where I wanted to take my mom. Her doctor called and spoke to a doctor at City of Hope and he said he would give my mom the same treatment if she were to come to City of Hope. So I never took her there.
It was very tough for the first few months after my mom's passing. I moved into her house a few months later. Then in January, my cousin who was so supportive with my mom, found out he had pancreatic cancer. So then my focus shifted to him. He passed away May 14th at the age of 64. So I've had on tough year. I just hope I don't get too teary-eyed at my daughters wedding on Sunday. The woman doing the ceremony asked me if I wanted to say something about my mom. I said, "no" at first. Then I told her I just can't talk about my mom but she can mention her. I hope I can be strong at the wedding.
Angie
It is horribly heartbreaking to watch your family pass away, and equally heartbreaking to hear doctors say they can no longer help.
My dad passed away this year from AML at 60. I find that people who are dying are usually braver than the people around them.
I only hope that time can ease your sorrow as I hope it can mine.
You may find that you are braver than you think, and you will be able to make it through your daughter's wedding.
take care.
P.S.... I too find that this discussion board helps me understand the illness.
Angie,
Beautiful picture! So sorry you lost your mom! I lost my mom Sept. 18 this year. She was 54. She had AML and then a SCT one year before passing. I was very fortunate to have my mother at my wedding 2 months before she passed. I actually had cancelled our first wedding because mom needed a SCT. I can relate to how difficult the wedding will be and the emotions! I cried for a year wondering if my mom would make it, and she did, but still since her death it was not good enough because I wanted so many more days and years with her!
Please keep in touch.. Like you have been told, I have been told to stay away from the boards, but I never listened and I truly feel it has helped me tremondously, even though at times I took breaks.
hugs, nicole
Hope you don't mind me sharing a picture of me and my mom! It took everything she had to be there that day, and sometimes I wonder if I should have made her stay home.. I know it sounds silly and I wouldn't change it, but I wondered if it had anything to do with her getting sicker.. I doubt it, but it was a thought!
Nicole,
I started reading all of your postings from the time my mom was diagnosed. I even played your mom's funeral video. I could so relate to everything you were saying. I really learned a lot about the possible side effects of a BMT. Your postings really helped me without a lot of questions I had. I really was disappointed when the oncologist said that they don't do BMTs for patients my mom's age, 77.
Here is something I thought would help you. I got it off the internet soon after my mom passed away. A hospice worker wrote it. I hope you can get through the holidays without so much sadness. I know you really miss your mom. I do too.
BEREAVEMENT
Please don't ask me if I'm over it yet.
I'll never get over it.
Please don't tell me she's in a better place.
She's not here with me.
Please don't say she isn't suffering any more.
I haven't come to terms of why she had to suffer at all.
Please don't tell me how you feel
Unless you've lost someone in the same way.
Please don't ask me if I feel better.
Bereavement isn't a condition that clears up.
Please don't tell me at least you had her for so many years.
What year would you like your loved one to die?
Please don't tell me God never gives us more than we can bear.
Please just say you're sorry.
Please just say you remember my loved one if you do.
Please mention my loved one's name.
Please be patient with me when I am sad.
Please just let me cry.
I hope reading this helps you. I just gave it to a co-worker who just lost her mom at age 65 to lung cancer. She really liked it and said she is going to give it to her dad, aunt, and siblings.
Have a Merry Christmas and a Happy New Year!!!
Angie
Angie,
Hi! When I read your message I cannot tell you how much it meant to me! To know that you have followed my mothers story and found some help in it means a lot and my tears represent how much I appreciate your message and the poem! Thank you!
I am sorry for the loss of your mother too! This is the song I have been listening to a lot lately. It really makes me feel better! Hope you have a Happy Holiday! hugs, nicole
Hi, I'm brand new to this site. I wish I'd known about it sooner. My mom passed away from Lymphoma April 28, 2007 at the age of 60. I was 24 and pregnant with my first son when she died. It's comforting to know that there are others out there that understand what I have gone through. It's been almost 3 years and I still find myself crying at night missing her. We were very, very close and I lost her quite suddenly. It's hard for others to understand that I still ache so much now, even 3 years later. Anyhow, thank you so much for your post. I wish I'd known about this site when everything was going on. I have so many regrets and feel like if we'd just done something different we could have saved her.
Momomommy,
I hear you! It will be 4 months on the 18th, and I can't imagine 3 years.. It is so hard, much harder than I could ever imagine. I am heading to bed, but I would love to chat another day.. Feel free to post back here or email me. hugs, nicole
Thank you so much! I will email you. My heart aches for you as I remember clearly how I felt 4 months after my mom's passing. While the pain never goes away, it does begin to dull. In my case we didn't really have any warning she was going to pass until the week before. It was a horrible, horrible experience and my mother was terrified of dying. She wasn't ready and we'd never been given a straight answer on her stage of cancer or prognosis or anything until the day before she was transfered to critical care and then the ICU. I regret so much about the whole ordeal. And I regret not having a picture like you have of just my mom and me at my wedding. I got married July of 2006, when she had the cancer, but before she was diagnosed. She just kept getting sick and was assuming it was the flu or something. She was sick my whole wedding...Anyhow, the pain comes and goes now that it's been 3 years. Sometimes I just sit and pretend she's here hugging me and I feel her smooth soft skin and body. I feel how it used to feel to hug her. Just one of the many, many things I miss. She was cremated and on Mother's Day, 2007 we spread her ashes in the ocean in Malibu, CA. I had been planning on getting her a DVD of my ultrasound for Mother's Day...instead I spread her ashes. We also poured a bloody mary from her favorite restaurant (also on the beach) into the ocean and tossed rose petals in the waves. It was beautiful, but I wish I had some place to go where I could talk to her and could at least pretend she could hear me.
Anyway, I guess I'm kind of hijacking this thread...sorry!
HI again! Oh your comment about my wedding picture made me sad for you. I know I have so much to be thankful for having my mom with me on that day. I had planned to go home in Aug. and show mom my wedding pics, it as you know did not happen. She never got to see this picture. I did show her a few, but this was a week or so before she died so I really don't know if she saw them because she could talk! It stinks for the both of us! At the wedding she was very ill, but she pushed herself through the whole day and refused to leave early. Her feet were so swollen that they stand out in every picture. That night she said Goodbye and she drove away back to the rehab where she had been living for 3 months. I can't believe it was our LAST goodbye, like real goodbye. I had cancelled my wedding a month before our date, June 21st in 2008. Mom was scheduled to have her transplant that week, and with all the pressure to go forward without her I refused too. It was hard on my relationship but I had to do it for her and I. Its so strange that a month later she was told she would die. I still can't believe how it all happened and why.. I know I will never know why but I keep wanting to believe that God gave me that wedding day because He knew my moms life was about to end...hmm interesting huh!
I was just in Malibu for the first time in November for work. It is so beautiful there and we drove along the Ocean and stopped. I wonder if I was where you mothers ashes were thrown.. That is so pretty the way you described. We were suppose to have a closed casket for mom, because she didn't want anyone seeing her that way, and when she died she really looked bad. However, the day of her funeral we viewed her and she was so beautiful, like really and we were just saying it because it was mom. It was amazing and dad made the decision to allow everyone to view her. We were so proud of her and I am thankful everyone got to see that smile one more time.
I do feel that it is not better but less intense which is better I guess. I just dreamed about her last Sat. It had been a while. Do you ever dream about your mom?
You mentioned wanting to get your mom an ultrasound dvd and ironically my mom was expecting her 2nd grandbaby from my brother and his wife. 4 days before she died I had my SIL email me McKenna's ultransound picture and I held up my computer for mom to see it. She loved her so much before she was even born as Im sure your mother did the same. Well off to bed, hugs, nicole
Yeah, we basically had a week to prepare ourselves that there was a possibility that she could die. There were so many doctors that we were being rotated through that no one had ever given us a straight answer as to how bad it was. One day they were asking to discharge her (it was a Friday) and we told them they were on crack. She couldn't walk (she had a massive tumor pressing up against her spine that was inoperable. The pressure from it had actually fractured her spine in two different places). She was suffering congestive heart failure brought on by one of the drugs from her first dose of chemo and she'd just had stints put in her kidneys because neither of them were draining properly. She was in really bad shape and was in such bad health they wouldn't do anymore chemo on her (they reformulated it for her to not include the drug that had brought on the congestive heart failure). And they wanted to discharge her. We refused to take her
home and made them keep her. By Saturday we were suddenly being told that we needed to talk to her about her wishes in case her heart failed. We weren't prepared for this at all. No one had ever told us that it wasn't fixable. By Sunday she was in critical care. Monday she was in the ICU. A few days later she was brain dead and on life support. So really we had less than a week to prepare for what was going to happen. My mom had completely thought she was treatable and was super optimistic about it all, despite all of the issues and pain she was in. It wasn't until the doctor very roughly told her she HAD to give us an answer as to what we wanted to do if/when her heart stopped that she started freaking out. She was terrified of dying. It was really really awful. I hope I never have to set foot in the that hospital again. Ironically it happens to be where I was born by accident. I was supposed to be a homebirth but ended up
having complications and was rushed to this hospital. I had my own homebirth 5 months ago and again, this was the closest hospital should something go wrong. Thankfully nothing did and it went perfectly.
Anyhow...my mom's situation was quite an ordeal and was pretty traumatizing on me and all my siblings (there are 5 of us and we were all very very close to her).
Your mom sounds like an amazing woman and quite a trooper. I'm so glad she was able to be at your wedding. I absolutely love the picture you have of the two of you together.
I dream about my mom all the time. Sometimes they are so real and sometimes they are about the fact that she is gone, sometimes she's still sick in them and other times she's not. I love dreaming about her because it's like I get to be with her for a little while.
My mom was so excited about me being pregnant. I'm so glad I at least got to tell her that I was pregnant. It was a big surprise and she bawled her eyes out. She passed away literally a few days before my 20 week ultrasound when I was going to find out the sex. She was so sure it was going to be a girl (she only had one girl grandchild and all the rest were boys). It was a boy. :) I wish she could have been there for both my births. It was really hard for me to go through labor with my first son without her there. I wish she could meet my boys and see how amazing they are.
One of the hardest things for me for the first 6 months or year after my mom passed was not being able to call her. We saw each other pretty often before she got sick, but we talked several times a week at least. I constantly would find myself grabbing my phone to call my mom about some random thing, only to realize that I couldn't.
Arg, I feel like I've been blabbing about myself for forever and here you are having just gone through this all yourself. Loads of hugs. I wish no one ever had to experience what we did. It's awful.