Lovey,

Adam had (has?) some GVH, but only in form skin's rash. It has started about day +24,+25. Now the rash has disapered,but he still takes prednisonum ( stereoid) 60mg per day.Adam doesn't take  a  magnesium  at  all. I don't know nothing about a  gut GVH from our experience, but from what I have read here, I think , that it could be GVH. I hope that the doc will give you the answer toomorow. I also hope that Burt will be fell better toomorow. I am with both of you!  Take care and keep   posted. hugs Marta.

Sounds exactly like I was at the start of muy gut GVH.  I'll bet that's just what it is.

Whatever it is, they'll get him fixed up in no time.  Let us know what ya'll find out.

Blessings

In our experience, my son was having about 12 episodes of diarrhea a day, in small amounts. When i told them how many times he was going, and i actually measured it one time so i had an idea of volume, they took a specimen and did cultures to make sure it was not c-dif or a virus of some sort. My sons was due to the magnesium pills and they changed it IV daily and after about 5 days, it got better.

With that being said, my son also had gvh of the GI system  at various times.. That came on suddenly with explosive diarrhea, cramping etc. and was treated.

My sons GI tract seemed to change in the course of transplant and treatment. Even two years out he was still having more frequent bowel movements than normal and looser than normal.

I would think the docs would check cultures, make sure he is staying hydrated, make adjustments and if the concern is gvh, possibly scope him. 

I don't know anything about GVH, so I can't comment on that issue...

But, I have taken magnesium before, and it definitely seems to depend on what type you take.  So if magnesium is maybe the issue, maybe try having a look at what type it is? (magnesium oxide, chloride, gluconate, lactate, orotate, etc.)  I think if I remember correctly the oxide and chloride aren't so good for diarrhea, but the "-ate" ones are better absorbed by the body and cause less diarrhea?  Don't quote me on that - can't remember which ones are best exactly, but you can check online.  Generally, the "better" (gentler) ones are not found at your local drugstore - you have to get them at a good health food store, etc.  This is just coming from someone who's used it to try to prevent migraines, though... I probably have some links I could try to dig up one what's different about the different types...

Lovey,

I've heard that itchy skin and liver GVH can go hand and hand.  I've never heard it proven medically but when I had itching problems, I saw some articles that indication a relationship.  I was treated for liver GVH and at the same time was given atarax for my itching so between the 2, my itching problems cleared up at the same time my liver numbers got better.  Just thought I'd mention that since he's got the itchy rash on his ankles.

Take care,

Kelly

Hi Lovey,

Hope the docs are getting a handle on things by now and Burt is feeling better soon!

- WBF

That's a good point - hot showers lower our blood pressure and that could have been the cause.