The Leukemia & Lymphoma Society - Fighting Blood Cancers

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116 Replies Last post: Jan 11, 2010 10:01 PM by dawnsie123   Go to original post 1 ... 4 5 6 7 8 Previous Next
Cookie Monster   504 posts since
Apr 9, 2008
Currently Being Moderated
91. Nov 16, 2009 12:46 PM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

Hi Carol,

I had 6 rounds of R-CHOP rather than just he R because of the grade of the lymphoma.  However, after my first treatment the small node along my jaw disappeared for me too.  It was the only one I could feel when treatment began because the other one in the roof of my mouth (not a lymph node, but a tumor) was completely removed for biopsy.  All other nodes could not be felt by me or my onc. 

I'm so sorry that food has already begun to taste bad and that you have some nausea.  What was it you took for the nausea?  I use papaya enzymes for indegestion. 

I did find as you have that fruit didn't lose it flavor and I found I needed food with lots of spices/herbs to have any taste at all.  Can you eat smoothies with added protein powder since it sounds like you're not getting much protein right now in your diet?  This might be a good alternative to just eating fruit alone and it may help to stabilize your weight loss.   I've not heard of blueberry soup, but it sounds interesting.  I eat blueberries on my Kashi cereal almost every morning since it is such a fruit rich in wonderful nutrients.

Ah, forgiveness, now that is subject worth pursuing.  Would you please share with me what the title of the video was you watched.  I'm always up on watching things that will help me grow.  Some years ago my hubby and I realized that saying "I'm sorry" wasn't enough in certain situations and the phrase, "will you forgive for . .  ." was needed and then hopefully opened up a dialogue.  I also learned that forgiveness is for my health and healing not for the person or situation I'm forgiving.  Too, forgiving is not about forgetting or acceptance of unacceptable behavior and it is a process. 

You're healing I can sense it. 

kgirl   239 posts since
Aug 16, 2009
Currently Being Moderated
92. Nov 16, 2009 2:30 PM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

Blueberry soup???  Wow, sounds delicious!!!  So sorry to hear you have to give yourself a shot daily.  Good Lord, if I'd had to do that I'd still be chasing myself around the house!!  I'm with Jane, lots of spices helped my when my taster went south, and I ate popcorn by the bushel.  The salt I guess.  Please keep an eye on your weight loss darlin'.  You don't want to lose too much, your body needs reserves, yes??  Try and give yourself a respite from thinking about the 2nd & 3rd rounds, if you can.  That will come soon enough.  Let the things that bring you joy and soothe your soul take over for awhile.  Beauty and joy are well deserved.

Take good care of you, Carol. Wishing you serenity and peace for today, then tomorrow, then on and on and on.

Kgirl

sha_shelt   619 posts since
Apr 3, 2009
Currently Being Moderated
93. Nov 18, 2009 7:56 AM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

  Goooooooooodmorning, Carol and all!

 

Happy Wednesday! I'm choosing to make this a good day no matter what!  Thankful for all I do have and thumbing my nose at the challenges now and ahead.

 

Fruit was my 'best friend' during chemo.  Practically lived on that, ice cream, and frozen fruit pops.  Discovered meat of all kinds just felt weird in my mouth and the longer I chewed the "bigger" the bite became .  LOL  Veggies - especially beans - were another good food friend.  But we need protein to help with muscle loss so peanut butter became a choice.  I could tolerate soups pretty well too as long as there wasn't much meat in them.

 

I had to go through a round of daily shots in the first cycle of ESHAP unfortunately it was "office policy" that THEY had to give them to me even though I'm well versed in how to give myself injections (do 3 a day now for disbetes).  What a pain to have to go to the clinic daily!  Thankfully it's only 10 mins or so from home but it sure was an incovenience.  Did a little experiment on myself between cycle 1 and 2 and during cycle 2 and added cod liver oil capsules, b-complex+C, a multi-vtamin, and (something else - can't remeber) and while my sounts dropped they didn't go to the danger zone and no shots needed.

 

Assuming you're doing neupogen shots, Carol?  Has there been a suggestion of neulasta instead??  Does basically the same thing but it's oly 1 shot, no a series of dailies.  Bone pain afterwards is common but most can control it with OTC meds. It kicks your bone marrow into overdrive to produce wbc's and that's the cause of the pain.

 

Off to my local doc at 10 AM today to discuss my upcoming treatment plan.  Still working on the assumption of a January start.  Still have the nodes scattered here there and everywhere but nothing new since "the big grape" showed up between my port and left arm a few weeks ago and it's just kinda hanging out like all the rest.  I'll post over on my own thread this evening about 'the plan' after I see Doc today.

 

Hope y'all have a Wondermous Wednesday - hang in there no matter your worries and concerns.  Be determined, do something kind, and remember....this too shall pass.

 

Thanksgiving Leaves

 

Hugs!

kcpenne   52 posts since
Jul 13, 2009
Currently Being Moderated
94. Nov 18, 2009 9:49 AM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

Good morning Carol -

 

Yes, it is hard work, and it seems you will not be able to do the whole round, but you will, you will.  The Rituxan is a wonderful thing, I was given anti-gout medication to handle all the dissolving tumors.  I had several palpable nodes and most of them decreased significantly after the first treatment.   It seemed like a miracle!

 

Everything tasted metallic to me from the medication, I sucked on hard candies to try to reduce that or cover it up.  It would reduce over the 3 weeks until the next treatment.

 

I agree with others, you need to keep your strength up, so you might need to eat even when it is not appealing.  I took anti-nausea meds to keep it from getting out of control.

 

Take care

kcpenne   52 posts since
Jul 13, 2009
Currently Being Moderated
96. Nov 23, 2009 10:15 AM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

What a great song and video! Thanks for sharing!

sha_shelt   619 posts since
Apr 3, 2009
Currently Being Moderated
97. Nov 23, 2009 11:07 AM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

Good morning Carol and all!

Carol, just love, love, LOVE that youtube clip!!  LOL  That's what it's all about.  A-t-t-i-t-u-d-e!!  I'll have that song stuck in my head all day (thankyouverymuch!  lol) but at least it will be accompanied by a smile on my face.

Really got a hoot from the line "I didn't battle cancer, it was battling me." 

"...shake it, baby, shake it.  Shake it, baby, shake it......"

ROFL

kgirl   239 posts since
Aug 16, 2009
Currently Being Moderated
98. Nov 23, 2009 1:20 PM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

<http://www.smileycentral.com/?partner=ZSzeb001_ZNxdm824MSUS> Thanksgiving

Horn of Plenty

Dang, woman, I wish  I  would have had this video/song five months ago.....I

would have played it about every five minutes as I shook my behind around

the house!!!!  Thanks for the smile and early morning toe tapping!!!

 

Kgirl     <http://www.smileycentral.com/?partner=ZSzeb001_ZNxdm824MSUS>

Wakka Wakka

SusieQ123   32 posts since
Apr 18, 2009
Currently Being Moderated
99. Nov 27, 2009 12:37 PM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

Thanks so much for sharing that video.  I don't check in on this web site very much anyomore since i am in remission, but boy did I love that video...  I know what I am asking for Christmas now, some CD's by Saffire!!!!  Hugs to all of you!  SusieQ - DX 07/08 - Non Hodgkin - Lung Malt Lymphmoma - Stage IV/B- Treated 6 rounds RCHOP, currently in Remission!

dawnsie123   149 posts since
Apr 4, 2009
Currently Being Moderated
101. Dec 4, 2009 10:46 PM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

I am glad you are coping well.  I will keep routing for you.  Signed an oldie but goodie.  You might not know me yet - but I still pop in from time to time.  Quick stats- In remission for DLBCL since last August.  Dawnsie

sha_shelt   619 posts since
Apr 3, 2009
Currently Being Moderated
102. Dec 4, 2009 10:49 PM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

3D Magical Snowman Hi Carol and WOOHOO! on the lack of side effects this time around.  Yes! So much better.  Think the tastebuds going wonky is just something that can't be worked around easily but in the scheme of things, it's nothing but a thing, right? 

The drumming sounds interesting.  Connecting with the earth - very healing in itself.  So I, for one, would like to hear more but only as much as you feel comfortable with.  I'm having my first accupuncture next week.  Just for general realignment of the energy.  My back problems seem to be resolving themselves.  Have yet to make the time to check into local Reiki massage (I know....bad girl.....).  Getting myself as prepared and "good" as possible in advance of chemo the end of January. 

Been a long and crazy week for me.  I've barely had the time to peek in and much less to even respond to emails or post.  <sigh>

Sweet dreams, healing vibes, kind thoughts - all for you!   Hammock 1

kgirl   239 posts since
Aug 16, 2009
Currently Being Moderated
103. Dec 5, 2009 5:56 PM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

YIPPEE, alright and hot damn........no more froking out (left over from childhood).  Your experiences sound exciting, and I would love for you to share them with

me...maybe I can obsorb thrugh osmosis!  Isn't it wonderful when we are comfortable with our doctors and caregivers, especially when we have little choice.

I am truly happy for you, just wish we lived closer so I could rub you like a magic lamp!!  Keep on keeping on, and let us know how you're progressing.

Faith, love, trust, Reiki and let's throw drumming in there, cause I would so love that!!!!

Happy tomorrow....

Kgirl

Cookie Monster   504 posts since
Apr 9, 2008
Currently Being Moderated
104. Dec 6, 2009 2:34 PM in response to: CarolSings
Re: Diffuse Non-Hodgkins Lymphoma

Hi Carol,

I'm thrilled that your chemo went so much better this time.  Isn't it amazing as we take a proactive stance for our care how much better we do.  I'm cheering you on with prayers and good thoughts and am VERY interested in your drumming journey.  I've learned so much from you already and would love to learn more.  So, whenever you have time and energy, I'd love to hear about it.

Hugs and blessings,

Jane

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