Kelly,
To answer your specific question, over a period of 10 months, I had about 6 or so bone marrow aspirations-some with local and some with sedation at the Mayo Clinic in Rochester, MN. After each test, I was just slightly sore. These test were never an issue for me. Only waiting for the results.
I had read all of the posts and you are getting some very useful information. I have learned a lot about blood disorders over the past year. One thing that I do know is that neutropenia is a serious issue as your immune system cannot fight common infections. When I was in this state, I was on a daily antibiotic for general coverage and if I hit a fever, it was to the hospital for 5 to 7 days of different IV antibiotics with blood cultures.
I live 5 hours from the Mayo. I did all of my treatments and Evals there. I did only blood checks and transfusions at home. I had some average and good Doctors at home but I had some great Doctors at the Mayo. You have to be on top of the care. I could only let my gaurd down when at the Mayo. It was the best move I have ever made. I am 42 and a father of three great girls. I hope to be around for awhile.
Please get your child to a place where they will run test and give you answers. After going to the Mayo, I do not think I could doctor any where else if we had a serious issue. My local clinic pushed me off for 3 weeks before I went to the ER not feeling well. I knew something was wrong with me.
Praying for you,
Jerry
Thanks, everyone! You can always count on Iowa people! I'm taking Mya to the doctor this morning. The she was uplast night complaining about her leg hurting, and she complained yesterday, too. She says her throat isn't hurting or scratchy, but she's still congested. She's cool this morning...so that's a blessing. But, then again, that's how it keeps happening...She seems to get better, and then just when you think things are getting back to normal, she gets sick again. She has also had GI problems....she's had what we thought was the stomach flu, (and maybe it was) 3 times in the last 2 mos., and she seems to complain about stomach aches and being full, even when she hasn't eaten much. She sleeps a lot...way more than normal, and sometimes it solid andother times she's restless and wakes up crying, but not really awake. She shakes and is sweaty, and I really just thought it was nightmares, and again, maybe it is. I'm trying not to fall into the trap of making everything a symptom. So......I'm gonna keep praying, and if it's not good news....We'll get thru it.....You guys have all been wonderful! I will let you know what the dr says. Thank you, all!
Well, Mya was admitted again on Friday. Her WBC did go up a little, her absolute neutrophils had gone to 800, but it was still to low according to the doctor. She actually wasn't sure why she was discharged in the first place. Anyway, she did have a temp when she was admitted and the doctor ordered more bloodwork and a Hem/Onc consult. Here's the very strange thing.....another CBC was orderedin the hosp., and in 36 hours, her WBC tripled! Now I'm thrilled! ....... But, confused . So, here's the long and short of it.....She's home. The hem/onc dr. said he didn't really know what was going on. He had a list of possibilities and leukemia WAS on the top, but since her white count came back up, he's thinking it's probably something else. He said he can't completely rule it out,but he wants to watch her counts and do some more bloodtests for immunology and see what happens. He does not want to do a bone marrow test unless he has to.
Please, don't get me wrong...I'm very happy. But I'm very confused. Over a five day period, her count rose slightly, and then tripled, in such a short time. That seems strange to me. I'm not happy with the fact that so many doctors are involved. Minus the Hem/Onc doctor, who I have no problem with, she's been seen and treated by at least 9 other doctors..... All of which are just pediatricians on rotation. So, I can't help but think there may a lack of communication. The pediatrician who saw her on Saturday morning, told me there was nothing wrong with her. Her counts were up...."She's perfectly fine, send her back to school".....oh, and the low grade fevers, aren't low grade fevers....according to her...there's no such thing. Another weird thing to me is, she was supposedly dehydrated again. How that happens, I don't know. She drinks more than enough, and I have been pushing fluids even more lately. Also Her Hemoglobin was normal, but her MCV was low, and her ALT was high. I'm sad for her, and I don't know what to think anymore.
P.S. Thank you, Jerry! I appreciate the info and encouragement!
Thanks for the update, Kelly. Glad to hear her counts are improving.
Actually, WBC counts can go up and down quite dramatically when the body is responding to/recovering from an illness. If I were you, I would just keep an eye on what her hemoglobin and platelets are doing (especially look at those platelets) as her WBC count recovers. As long as they stay okay, I wouldn't worry too much about leukemia. But if two or more blood lines are out of whack, then I would immediate ask for another hem/onc consult. That's what I would do.
But I'm praying that your daughter will just continue to improve, and that whatever has knocked her for a loop is going along its merry way!
Ann
Thanks, Ann! I am glad her counts seemed to improve, too! And, honestly, the hem/onc doctor seems very good, and very thorough. He wants to follow up with her in a month, and in the meantime, she is supposed to see a respiratory specialist. If the fevers would just go away, I would feel much better. But, I know we'll get through this, and I will keep everyone updated. All of you have been very supportive, and I'm very grateful!
One more question....that probably sounds really dumb...What do you mean by blood lines?
Just meant the different types of blood cells, Kelly: WBC, RBC and platelets. As long as they are all on the upswing, I personally wouldn't be overly stressed. But I'm glad you're having a follow-up with the hem/onc dr, just to make sure.
As for the prior post that some dr said there was no such thing as low-grade fevers -- I've always called anything from 100 F to 101 F a low-grade fever, although our onc has since educated me that they don't consider anything under 101 F to be a fever. But I still call 100 - 101 F a low-grade fever. I just don't call the onc!
Good luck, and hang in there!
Ann
Thanks for explaining that! I feel kind of dumb sometimes, just not familiar with many of the terms...I guess that's a good thing.
As far as the fevers, I think it's an opinion thing. I agree with you. If it was really a rule, I don't think she would have been the first to say it to me, and the ER wouldn't have given her Motrin for 99.8. I was put off by her dismissive attitude. There is a reason a child developes 3 bacterial infections at the same time, and she acted like it didn't happen. We were told in the hosp., with the infections Mya had, they would have expected to see a WBC of over 20,000. We'll keep hangin in there, and I'll keep you and your daughter in my prayers! Thank you for the input!