The Leukemia & Lymphoma Society - Fighting Blood Cancers
21 Replies Last post: Nov 16, 2009 2:47 PM by KellyR   Go to original post 1 2 Previous Next
JSelf   2 posts since
Nov 12, 2009
Currently Being Moderated
15. Nov 13, 2009 8:29 AM in response to: KellyR
Re: 6 Yr Old Daughter Hospitalized and Severely Neutropenic

Kelly,

 

To answer your specific question, over a period of 10 months, I had about 6 or so bone marrow aspirations-some with local and some with sedation at the Mayo Clinic in Rochester, MN.  After each test, I was just slightly sore.  These test were never an issue for me.  Only waiting for the results.

 

I had read all of the posts and you are getting some very useful information.  I have learned a lot about blood disorders over the past year.  One thing that I do know is that neutropenia is a serious issue as your immune system cannot fight common infections.  When I was in this state, I was on a daily antibiotic for general coverage and if I hit a fever, it was to the hospital for 5 to 7 days of different IV antibiotics with blood cultures.

 

I live 5 hours from the Mayo.  I did all of my treatments and Evals there.  I did only blood checks and transfusions at home.  I had some average and good Doctors at home but I had some great Doctors at the Mayo.  You have to be on top of the care.  I could only let my gaurd down when at the Mayo.  It was the best move I have ever made.  I am 42 and a father of three great girls.  I hope to be around for awhile.

 

Please get your child to a place where they will run test and give you answers.  After going to the Mayo, I do not think I could doctor any where else if we had a serious issue.  My local clinic pushed me off for 3 weeks before I went to the ER not feeling well.  I knew something was wrong with me.

 

Praying for you,

 

Jerry

Elke'smom   208 posts since
Apr 4, 2009
Currently Being Moderated
18. Nov 16, 2009 1:10 PM in response to: KellyR
Re: 6 Yr Old Daughter Hospitalized and Severely Neutropenic

Thanks for the update, Kelly.  Glad to hear her counts are improving.

 

Actually, WBC counts can go up and down quite dramatically when the body is responding to/recovering from an illness.  If I were you, I would just keep an eye on what her hemoglobin and platelets are doing (especially look at those platelets) as her WBC count recovers.  As long as they stay okay, I wouldn't worry too much about leukemia.  But if two or more blood lines are out of whack, then I would immediate ask for another hem/onc consult.  That's what I would do.

 

But I'm praying that your daughter will just continue to improve, and that whatever has knocked her for a loop is going along its merry way!

 

Ann

Elke'smom   208 posts since
Apr 4, 2009
Currently Being Moderated
20. Nov 16, 2009 2:22 PM in response to: KellyR
Re: 6 Yr Old Daughter Hospitalized and Severely Neutropenic

Just meant the different types of blood cells, Kelly: WBC, RBC and platelets.  As long as they are all on the upswing, I personally wouldn't be overly stressed.  But I'm glad you're having a follow-up with the hem/onc dr, just to make sure.

 

As for the prior post that some dr said there was no such thing as low-grade fevers -- I've always called anything from 100 F to 101 F a low-grade fever, although our onc has since educated me that they don't consider anything under 101 F to be a fever.  But I still call 100 - 101 F a low-grade fever.  I just don't call the onc!

 

Good luck, and hang in there!

 

Ann

More Like This

  • Retrieving data ...