Travis,

It's great that you're making all those new cells.  Sorry to hear about the mouth sores lasting so long.  I agree, better to have the PCA while you need it instead of being at home in pain.  But I hope you won't need it much longer.

Cathy

Hi, Travis.  That is very, very exciting that your counts are going up on their own.  One day, Dr. Slack told me I could go home because I was feeling good and I was so very homesick. I told him I would wait until I could absolutely not take it anymore.  Two days later, I told Dr. Leis it was time for me to go home, and he said it was still awfully early, he would rather I stay.  That night I had a fever.  Not a bad one, but I would have been totally stressed out if I would have been home and had a fever, especially since a fever triggers all those tests which to me are just reassuring when you are in the hospital.  The moral:  I know you are ready to go home, but it's good to be there for other reasons.

I was going to come by last week but my appt got moved to Mayo on Shea, where Dr. Reeder actually is.  I'll email you if I can get up there this week -- you may be gone!

Thinking of you and glad the "big" things are going well,

Kathy

Yeah!!!!!!!!!!!!  Nothing is better than home.  You had a long stay at the clinic -- here's hoping for a quick recovery and great results!!!  Cheers!

That all sounds good.  A little GVH is a good thing.  I remember being so happy when I didn't need to go in over the weekend.  It's amazing what that little reprieve will do for you - more time to watch Lost episodes.

Take care,

Kelly

They put me on B&B for my gut GVH at the Hutch.  That's beclomethasone and something like betanuside.  That's not the right name.  Sometimes I can remember it, other times I can't...thanks chemo brain.  I'm pretty sure someone will happen by the remembers te correct name.

Skin GVH apparently manifests in a number of ways.  Mine was just splotchy with things thgat kind of looked like hives.  There wasn't any redness but it just looked bad.

Have they done a skin biopdy?  There really isn't much pain or danger in one.

But the docs know what they're doing.  I'm just not sure they all know about B&B as the second med is a little off label, if I remember correctly.  Still, ny insurance paid for it.

You know, if I was as creative as you, I'd have a remote helicopter myself.  A coordination re-learning device.  Yeah, I think my wife woulda bought that.

Blessings

Glad to see you're doing well. How nice to have the weekends off. My husband is looking forward to having weekends off. He just got out Wednesday. Hope you continue to feel better each day as you have so far and that your gvhd stays a manageable level.

Levica