Hi there. I have posted on the boards before in relation to fertility and was grateful to receive responses that were very helpful. Some things have changed since I posted long ago. I had NS HL bulky stage IA. I did 3 cy ABVD and I believe it was 30 gray radiation to my chest. I completed all treatment Jan. 2007 and to date am still in remission. I am now 35 and recently experienced a miscarriage at about 5 weeks. At this stage I do not have difficulty conceiving. I realize my age is a factor in chromosomal abnormalities, but in the back of my head I wonder if the chemo has nuked all my eggs. I saw a high risk OB and she does not think so. My regular OB says that OBs worry in the back of their minds that chemo affects the eggs (more than just the eggs that were getting ready for ovulation during and in the 6 months after chemo). So I have a big ? in my mind now about the next pg. I have a healthy daughter born before my dx and treatment so I have been able to carry to term. I know there are other HL survivors who have had healthy babies after treatment.
Does anyone have info from their drs about chromosomal damage to eggs? I am aware of a study that showed hl survivors' babies have about the same incidence of abnormalities as the general public. Thank you for any thoughts you may be able to share. ![]()
I didn't have the same type of cancer you had but I was 19 when I was dianosed with my cancer which is ALL and my OB was concerned about me being able to conceive. But in the end with the heavy chemotherapy for 1 year and 1 1/2 of maintenance and two weeks of radiation. I am happy to say I got pregnant and am about 16 weeks now. My doctors are very happy on how I am doing. I hope this helps some what
Jessica
Thank you so much for responding. Congratulations on your healthy pregnancy. That is wonderful, and encouraging! I am in a waiting period now to let my body heal, and I had a warm spot on my PET so I had a core biopsy on an axillary node and await results.
Hope you have an uneventful pregnancy, and a happy long life!
I was fist diagnosed with Hodgkin's at 22 in 2004. After 6 cycles of ABVD and 16 rads I was in remission. In October 2006 I had a healthy baby boy. In October 2008 I found out that I relapsed. My biggest concern was fertility. I opted not to harvest eggs and went on Lupron injections to put myself into menopause in the hopes of reducing the amount of chemo my ovaries would receive. I went through 2 cycles of ICE and then an auto stem cell transplant. I have been told that if I am still fertile I would have to wait at least 2 years to get pregnant. They say that if eggs were damaged they can heal themselves hence the 2 year waiting period.
My doctors are hopfull my fertility will return but still no sign of it. I'm only 28 and hate to think my son will be an only child. Before the relapse I wanted to be pregnant by the time my son turned 3. I am lucky and blessed to have him and am just taking everything one month at a time.
Good luck with the biopsy results. I just had a clean PET on Friday after having two warm spots show up 3 months ago. Not all warm spots are cancer!!
I will tell you what my high risk OB/GYN and my onc said. They both have stated that it at least takes 6 months after the Lupron. I had NS HL Stage IIA. My OB was less faithful that it would happen than my Onc. I finished my 9 treatments of ABVD and 15 rads in Nov of 2007. I am not 5 months pregnant. I had my FSH levels and that checked once we hit the 6 month mark and then we were doing it every 3 months. They told me that it did improve a couple times, but that they still didn't like the levels and that they were concerned for the quality of my eggs. I stopped going because I got so disheartened. Then in July, we figured out we were pregnant. My OB said that he believes it just took my body a while to recouperate. He didn't have any specific studies that he could base this on. The only one he had was the quality being low in the first 6 months. As of my level II ultrasound, we have a healthy baby that is perfectly normal. They don't even have me listed as high risk at the OB's office anymore. I hope this helps. I know how frustrating it has been for me. If you need someone to talk to, please don't hesitate...
Cinncy
Thank you SO much for your story. I really appreciate that. I finished treatment in Jan 2007 and it took forever for us to decide it was time to try. I thought I would have a hard time getting pg. Instead I had a prob. staying pg. I was down for a while, feeling like I am too old. Now that some of the fog has lifted I feel optimistic. Congratulations on your healthy baby, that is wonderful! I think it is so true that Dr's can't predict everything for good or bad, and sometimes it feels so good to be healthier than we expected. Thank you again for writing.
Best wishes,
Sope
Date: Sat, 14 Nov 2009 19:08:38 -0500
From: communityreply@lls.org
To: bsoper@live.com
Subject: Survivorship: Life After Cancer New message: "Fertility" 1Oztwg-25e-8Ub
sope,
A new message was posted in the thread "Fertility":
http://community.lls.org/message/34235#34235
Author : cinncy
Email : cinncy@netzero.net
Profile : http://community.lls.org/people/cinncy
Message:
Hi Ladies! I hope you are all still checking this thread. I am currently 30, was 26 when I went through my treatment for stage 4 non hodgkin's. My husband and I were married shortly after I finished chemo and never knew if I would be able to get pregnant or not. Finally, after the 3 year point, we got pregnant right away, but I miscarried around 6 or 7 weeks, back in April 2009. I'm currently 14 wks pregnant and everything appears to be going OK this time (fingers crossed). It has been a nerve wracking 12 wks, I'm really excited to go back to the Dr to hear the HB again just to make sure everything is still ok. But Sope I just wanted you to know this, because I was also concerned about this and thinking I would miscarry every time. Hopefully in July I'll be having a very healthy baby and that I will still be healthy as well...that will be around 4 years remission for me! Good luck to you Sope and to the other ladies who are currently pregnant. How is everything going for you?
Tiffany
Hi Tiffany,
Thank you so much for writing and congrats on a healthy 14 week pg. That is great! There are so many uncertainties, and I guess all we can do is think positive. I am well, and into month 2 of ttc again. I waited 2 mos so that my body could heal. I am charting to help pinpoint my most fertile time and to check for any issues. I believe that I will have a healthy pg, just have to be patient.
Enjoy your pregnancy, and thanks again for sharing! ![]()
Sope