Well, you have three people here telling you not to worry about the PLT. As much as I like to go against the crowd, I just can't on this one. Platelets bounce around like rubber balls. It could be a virus. It could just be his immune system is very young and they haven't leveled out, yet. I'm almost five and a half years out and my PLT still aren't stable.
Hope this helps.
Blessings
Hello!
Thanks so much for yours support!! Its much better ( and much healthier )then XANAX !!
Adam is doing very well, ours oldest daughter has come this weekend to visit us in Krakow, she lives and works in Warsaw ( Poland's capital). So we have nice time together.
I was thinking about drugs, which Adam takes. Three weeks ago he has started new anty fungal drug Noxafil ( posaconazolas). I has fund in the internet the information that one of (rare) side effects is bleeding and brusing.Adam is not bleeding and brusing at all, but maybe this drug can to decrease PTL. aAyway ( mainly thanks to you) I fell much better.
Take care Marta
Sounds logical to me. I mean the only thing that would cause bleeding and brusing, short of injury would be lowered PLT. They would have to be much lower than Adam's presently are before that would occur. Still, if he's got that medication thing going on along with the general insanity of PLT, yeah, that could well be an explanation. I'd certainly ask the docs about it.
Have a great weekend with your daughter. That sounds really great.
Blessings
Hello!
Day +70.
We are back to Poznan. Adam had the appointment yesterday and he has get good report. WBC 5,7, HG around 11,5, PTL 75. Adam's doc in Poznan absolutly doesn't concern about PTL numbers.So I decieded neither! The last MCV test was negative, we are wainting for the result from yesterday's test. The liver and kidney tests are OK. The doc cut down the steroid from 60mg to 50mg.
Adam is feeling very good. He is still busy writing and reading a lot.But fortunately he is be able to found some spare time for to play a scrrable with me!
Take care Marta.
Marta,
I just read your whole thread and wanted to tell you that our husbands had their tranplants the same day. Now today, they are both at day+70 and doing well.
We do have one worry (you can read about it, strange chimerism), but I am hoping it is of no concern.
I enjoyed reading about how well your husband is doing. He sounds a lot like my husband, Ben, because both of them work a lot. Ben is an actuary and is always busy with the work from his office, which I bring home and he receives via email.
Lots of luck,
Sue
Hello,
Day +79
We are still in Poznan. Adam had an appointment yesterday. Wbc 6,7 , HGm around 13, RBC above 4 milions, PTL 68 ( more less stable compare to last week) We didn't get very much informations, because Adam's main doc is sick herself. The doc who we've spoken was, wasnt very talkative. Anyway, things are going- so far -in right direction! Next hospital's visit will be on next Friday.
Adam is feeling very well, I try my best not to worry too much about future, but as you know is not always so easy.
Take care
marta
Marta, it definitely seems like Adam's on his way! Things have certainly gone well for him, I think he's a champ, too! What's the worst part now (besides the understandable worries for the future)? I think at this point, I was still batting a little bit of nausea now and again, and food still tasted awful to me, so getting enough to eat was a challenge, but otherwise things were good. I hope he keeps up the good work (I'm sure he will) and you've been a huge part of getting him this far. Keep us posted.
Hugs,
Pam
Tex, Pam
Thanks for yours suportive words! Is so important to me. We are almost three years in this "leukemia business" with so many ups and downs, and perhaps for this reason is dificult for me to be optimistic.Is rather opposite to my nature, I used to be always optymistc, but in this case is not easy. Anyway with yours help I carry on!
Adam is doing very well, his appetite is pretty normal, he always likes good food, and I try my best cooking every day.
We had nice weekend with our elder daughter, dispite the weather, is realy awful outside, raining, windy,no snow at all.
Take care! Marta