Hi all,
I thought I would update you on my dad's situation.
He has spent the last few weeks at home feeling tired but pushing himself to play golf on a buggy with his friends.
Last week he developed a cough which turned out to be Pneumonia, he was admitted to hospital last night and has had IV antibiotics, potassium etc etc.
He has been receiving regular blood and platelets over the last few weeks but his counts are all dangerously low. PLT are 4, and neuts are less than 0.01. I am so worried that he may not fight this off with no white cells. I know Pneum is quite common in Leuk patients but as his blood is so low does anyone know how long it may take for him to make a recovery?
Thanks
MH x
Hello MH,
My mum has fought pneumonia twice. Both times she had no neutraphils and she got over it.
The first time she had to go in critical care and had to wear an oxygen mask for about 10 days, but she pulled through.
The second time was after she relapsed in June and had absolutely no immune system, but with the right drugs, she pulled through again.
Hope everything goes ok for your dad.
Binnie x
Thanks for that Binnie.
How is your mum doing?
MH
x
Hi,
Well not good I'm afraid. Mums blasts came up to 75% over a week ago and she has got weaker and weaker. They have upped her chemo to 8 tablets a day as they want to try and keep her going to the end of this month as a new drug trial should be available to her.
But she has slowly lost her appetite and hasn't eaten a thing today and only 2 teaspoons of custard yesterday.
She has hardly eaten a thing for 10 days now, it's getting less and less.
But when she did eat, she was sick, then she gets stomach ache now and is in pain with it. One day she has diarrhea, the next constipation.
She hasn't been to the toilet today, so a nurse has given her an injection to keep her calm as she was getting very aggitated.
Mum is going into a hospice tomorrow for some respite care and hopefully the docs and nurses can help with mums problems.
She can't wait to go as all she is doing now is sleeping all day and can ahrdly walk.
Dad fears the worst as he is with all day and night and hates seeing her like this.
I'm praying like mad, that something can be done to help mum.
Binnie xx
Hi,
Keep strong...it is all we can do.
Your mum and my dad are in my prayers.
MH
x
Hi all
I feel like I must to post to conclude by dad's battle against AML.
Unfortunately after 2 years 3 months of fighting, battling and remaining positive my dad lost his battle with AML on Monday 9th Nov. He fought to the very end still cracking jokes hours before he was taken from us. It was a blessing in the end, he suffered horribly for the four days prior to his death and unfortunately those memories will haunt me forever.
Thankfully he is now at peace and his memory, love, generosity and sense of humour will live on for all his family and friends.
Good luck to everyone....
MH
x
Hello MH,
I am really sorry to hear about your dads passing. I haven't been on here for ages since mum passed away Sept 11th. I'm not sure if you read my post or not.
I'm still struggling to come to terms with it and everyday without fail,, my memory takes me back to the time mum was in the hospice. She really sufftered and it was an awful way to go.
I was there when she passed away and I will never, ever forget it. It was the most awful thing I've ever had to deal with. Reading your post made my heart sink, I feel so sad for you.
Mums birthday was Sept 9th and it was as though she hung on for that day cos her brothers, sisters and me and my brothers, and dad saw her. She was quite chatty but worn out.
That day my brother and sister in law were reading their cards out to her, and they had named a star after her. She was even struggling to cry, just little sobs came out. Thats something I can't forget too. It was awful that my mum knew she was going to go soon. She was very brave. But she had., had enough of this disease. She would have wanted to live if she could have managed with it, but after relapsing, she felt worse than ever, and all she felt was depressed, tearful, and very down.
The sweats were terrible for her, the shingles, the prolapse etc etc. Too many problems on top of the AML.
My dad is coping, but somedays, not too well. I seem him as often as I can. He keeps giving me mums Jewellery and bits and bats. I am going to a psychic evening tonight at someones house, so I am hoping mum will send me some messages.
Please email me privately anytime my love. I know exactly how you feel and somedays, can't quite believe mum has gone.
Love Belinda xx
MH, I'm so sorry about the loss of your dad. It sounds like you have some very special memories, even including the hours just before his passing. I hope they comfort you, I know this has to be a terrible time for your family. You are all in my thoughts and prayers.
Pam
I'm sorry to learn of your dad's death. He sounds like he was a heck of a guy. I wish your family peace and comfort in the days ahead.
Blessings