The Leukemia & Lymphoma Society - Fighting Blood Cancers
21 Replies Last post: Nov 14, 2009 10:56 AM by hannibellemo   Go to original post 1 2 Previous Next
PhilB   236 posts since
Apr 7, 2009
Currently Being Moderated
15. Nov 11, 2009 3:00 AM in response to: Trey
Re: Another reminder that CML doesn't care if you're rich and famous

You could argue that they are being a bit disingenuous with the 95% figure as they appear to be excluding some people who went for transplant and died from the transplant procedure rather than the CML itself.  Adding these back in again takes the 6 year survival back to 93% (still pretty amazing).  It's probably fair to assume that your odds now are even better as fewer will go to transplant than before now that we have more options.  Transplant survival rates also continue to improve.

 

The other really important fact is that most of the CML-related deaths occur early on - if you make it to 5 years then you have only a tiny chance of succumbing thereafter.  We only talk about 5 year survival rates because Glivec hasn't been about long enough to have 10 and 20 year rates.

 

We musn't forget though that we do still lose people to CML (at least 2 from this board in 2009) and the fight won't be over until we have treatments that work for everyone.

MomMom   192 posts since
Apr 3, 2009
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16. Nov 11, 2009 12:07 PM in response to: PhilB
Re: Another reminder that CML doesn't care if you're rich and famous

I agree, Phil.  Until there is a cure, the cancer meds available are a life line to us and the cause for a cure cannot be relaxed.  For years I have been the neighbor hood fund raiser for LLS, which I started participating in when my friend died with lymphoma.  Little did I suspect that I would ever be the recipient of their services.  Imagine how thankful I am that I was already aware of some of the services.  If Mr. Jabbar can raise money for research, he has my support.  Public figures generate private funds.

 

Now if he would just get his facts right and the journalists would do their research.

 

Kay

Tess Dement   12 posts since
Apr 15, 2009
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17. Nov 11, 2009 3:21 PM in response to: MomMom
Re: Another reminder that CML doesn't care if you're rich and famous

Cant wait to tell my dad about this - I remember watching ucla games with him when karreem played back in the days of the great coach Wooden.  Im glad he has come out about his cml and will hopefully bring more funding to the lls for research for those of us who dont respond as well and to a cure.

ROM1212   29 posts since
May 4, 2009
Currently Being Moderated
18. Nov 11, 2009 11:13 PM in response to: hannibellemo
Re: Another reminder that CML doesn't care if you're rich and famous

While I'm pleased to see Abdul-Jabbar share his message of hope, I can't help but wonder if Novartis had something to do with that - having him as a paid spokesperson.  Would he have said anything without Novartis on his side?

 

Just a thought.

rct   39 posts since
Apr 6, 2009
Currently Being Moderated
20. Nov 12, 2009 11:00 AM in response to: hannibellemo
Re: Another reminder that CML doesn't care if you're rich and famous

Wednesday evening I saw Keith Olbermann of MSNBC "interview" Kareem, not knowing that the former Lou had CML.  Was, at first, glad that such a name could be in front of CML.

 

Then, of course, Keith did his job and compared CML to "managing high blood pressure".  I can't really say how disappointing that was to see and hear.  That'll damage a lot of currently struggling CML'rs like mine and it is just not fair at all.

 

Kareem mentioned Novartis, but not Gleevec, which I found odd.

 

And then today I read that he is a paid spokesperson for Novartis?

 

Is this it?  Is this how hard they are willing to work and how far they are willing to go, paid spokespersons?  We'da done it for free, Novartis.  But oh yeah, we'd have to mention that it isn't, you know, like, not at all like managing high blood pressure, since we've known lots of people doing that and it isn't the same at all.  Not even close.

 

I'm pretty sure the CML'rs lost in the last year would pretty much still be here if it was just like managing high blood pressure I guess.

 

Good luck to all of you, I think of you all the time.  I am sorry for yet another dis-service to the effort it takes each of you each day.

 

rct

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