I have had enlarged mesenteric lymph nodes and splenomegaly for nearly two years knowing, and the last ct scan shows that for the last 6 months they have remained stable. I also had nodules in my lungs that the last ct did not pick up due to the fact that it was only an abdomen and and pelvic ct scan...still wondering about that?, but any road I still have enlarged mesenteric lymph nodes and enlarged spleen but stable from 6 months ago. What does this mean?
I was just researching exactly what your title is last night.
I have a question for you. Are you gluten intolerant or have you ever been diagnosed for celiac disease? My daughter has swollen mesenteric lymph nodes and she believes she has celiac disease, she has many of the symptoms. She will see an internist this coming Friday.
There is information on the internet on "cavitating mesenteric lymph nodes." Here is one web site to start with:
http://radiology.rsna.org/content/228/1/180.full
M - I just found the other thread you and some others were writing on. This looks quite complicated! I hope my daughter has celiac disease! But she has many of the symptoms that those were describing. I just finished my treatments for my MCL a year ago - I do not want my daughter to go through all that I had go through -
I hope you are doing well . . .
Message was edited by: rellaann
Message was edited by: rellaann
I was just going through my email and realized you had responded to my post so sorry it has taken a while to respond it has been months since I have looked at this site. But in response to your question I do not have celiac that was one of my first questions to my doctor as my sister does have celiac. The reason I asked the question mainly is the last time I saw my doctor he stated that since I was not having any B symptoms he would not push for a biopsy of any of the lymph nodes given the location the risks outweigh the benefits. He says that catching lymphoma early or late has no benefit as far as treatment and of course if I ever do experience B symptoms to of course come in. So my question was trying to seek if anyone else has had anything similar but everyone is different I suppose and I go on without an answer so for the past few months I have learned to move on and realize that I am a person that has an enlarged spleen and enlarged lymph nodes in my abdomen and lungs, but am living life as well as I was before the knowledge of that almost two years now. I am just now more aware which always leaves the lingering thought...
But I do hope you and your daughter find the answers you are looking for because an answer, in my opinion, is always better than the lingering thought without. I hope for your's and your daughters best health. I apologize for not being of too much help.
-Matthew
Matthew,
It sounds like you may have splenic marginal zone lymphoma (SMZL). It is characterized by an enlarged spleen and nearby lymph nodes. It is one of the indolent lymphomas which means that it progresses very slowly which might explain why your spleen and lymph nodes are stable. Since you really don't have symptoms, you would likely be placed on "watch and wait" in any case.
Mark