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19 Replies Last post: Nov 13, 2009 9:35 PM by Farmer   Go to original post 1 2 Previous Next
LisaP   6 posts since
Apr 3, 2009
Currently Being Moderated
17. Nov 11, 2009 11:58 AM in response to: TamiT
Re: Is there anyone out there that has APL(M3) that has relapsed?

Hi Tami,

 

It was just the bruise (about the size of a nickel, very dark and didn't hurt) that prompted me to go for bloodwork.  I had a standing order at the local lab so I could go at any time.  It had been 3 weeks since my previous cbc (my dr wanted me to go at least once per month).  I think I went more to make myself feel better and get rid of the anxiety of the bruise.  After going to the lab I went to work, took off my jacket and found blood had saturated the gauze and was running down my arm.  After seeing that, I knew something was terribly wrong.  My INR came back at 2, my wbc at 1.8 but absolutely everything else was normal.  It was just a week before my very last 15 days of ATRA was to start and I felt great.  This came as a total surprise for me.  I wasn't tired, no aches or pains and I generally felt really well with more energy than I'd had in a long, long time.  Initially my doctors thought it wasn't a relapse but the bmb a week later proved it was.

 

I completely understand your anxiety.  But remember that there are many things that can cause your symptoms and just because I relapsed, it doesn't mean that you will relapse.  Anxiety alone can cause symptoms.

 

Take care, Lisa P  

Ayame   39 posts since
Aug 11, 2009
Currently Being Moderated
18. Nov 12, 2009 10:03 PM in response to: LisaP
Re: Is there anyone out there that has APL(M3) that has relapsed?

Hiya Tammi, I have not relapsed but I understand the anxiety with APL and every little bump, bruise, and bleeding episode. I did get bone marrow biopsies pretty regularly but now I have been released to just get a CBC plus PCR analysis (like someone else already said, it checks for the genetic translocation that signifies APL). I had a normal WBC count at diagnosis, and then it subsequently dropped sharply. I never had a high WBC count. So everyone has a different experience with that. I think I read somewhere that a high WBC count on diagnosis is indicative of a slightly poorer prognosis but i'm not sure if that counts for APL.

 

Although I know, and all APL'ers know, that even upon relapse we have an excellent chance of getting through it again I really wouldn't look forward to another interruption in my life... I don't have time for it!

 

 

Dawn

Farmer   2 posts since
Apr 3, 2009
Currently Being Moderated
19. Nov 13, 2009 9:35 PM in response to: Ayame
Re: Is there anyone out there that has APL(M3) that has relapsed?

Hi there; I don't go on these boards too often, and usually only respond about the APL'ers.  Joan; I am so very sorry to hear about Susan.  What a difficult thing for you and your family. 

Tami; I hope you have continued good health.  And Lisa, MomJ & Ayame; good to "see" you again and hope you are all doing very well.

Best Regards, Leah

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