The Leukemia & Lymphoma Society - Fighting Blood Cancers
11 Replies Last post: Nov 8, 2009 8:09 PM by misskitkat  
FlowerLover   5 posts since
Nov 1, 2009
Currently Being Moderated

Nov 2, 2009 12:12 AM

Insomnia

Hello, I have been suffering from insomnia for about a year. Anybody have any suggestions? Thank you.

Tex   3,888 posts since
Apr 3, 2009
Currently Being Moderated
1. Nov 2, 2009 3:13 PM in response to: FlowerLover
Re: Insomnia

It might help if we knew a little more about your disease and your treatment.

 

Blessings

Tex   3,888 posts since
Apr 3, 2009
Currently Being Moderated
3. Nov 3, 2009 12:45 PM in response to: FlowerLover
Re: Insomnia

I don't have a clue.  Prednisone can cause an inability to sleep.  I don't think anyone would confuse that with insomnia, though, as it's an obvious chemical rush.  Then again, if one's inexperienced with certain chemicals, who knows?

 

Are you staying up worrying or are you just unable to sleep?  Either way, this is something you should address with your doctor and seek his/her guidance.  If you have and there wasn't anyone, maybe you could consult a sleep center?  I don't know if they do anything but test for sleep apnea but it would seem you would want to do something to track this thing down and beat it.

 

We need our energy to fight the disease.

 

Blessings

Tex   3,888 posts since
Apr 3, 2009
Currently Being Moderated
5. Nov 4, 2009 3:29 PM in response to: FlowerLover
Re: Insomnia

You know there's a CML forum under "Living with..."  Maybe this is a condition that is shared by CML patients?  Might be worth looking there and asking about it.

 

Blessings

Pmb   15 posts since
May 14, 2009
Currently Being Moderated
6. Nov 8, 2009 10:04 AM in response to: FlowerLover
Re: Insomnia

My insomnia started when I was diagnosed with AML back in June 2000. I've had very serious problems with insomnia ever since then. It comes and goes depending circumstances and the whims of my subconscious. E.g. Last month I had to have cataract surgery. There were complications to that which required 4 more surgeries/”procedures”. When that was all over I got the flu. When that was over I had to have a tooth pulled. Oy! I’m one of those people in this forum who, merely by the “luck” of the draw, have the worst luck in the forum (it had to be someone, right? Lol!!)  In the past I was treated with klonapin at first. That didn’t work very well. They started me on Ambien. Now this was a while back when they thought that Ambien wasn’t addictive. So I was taking it every night, and it was working great! Problem was that I tried to stop and two days later I went through terrible withdrawals. I then tried off the shelf sleeping pills. The active ingredient in most of those is Diphenhydramine, which as you might know is merely the active ingredient in Benadryl. Same thing is in Tylenol PM. So if you’re going to try it get the generic pills and make sure it’s Diphenhydramine, 50mg should do it. It can have the bad side effect of causing a slight headache. My psychiatrist gave me Trazodone. It’s a sedative which works wonderful. Ask your doctor about it. Best wishes Pete

misskitkat   30 posts since
Apr 5, 2009
Currently Being Moderated
7. Nov 8, 2009 12:33 PM in response to: FlowerLover
Re: Insomnia

My husband has multiple myeloma, and I do take Ambien every night, or there is no way I could sleep. I don't know that it is addictive, but definately I'm dependent on it. I feel that I can be a lot more useful to him if I wake up well-rested.

 

When my husband has sleep issues himself, he uses Ativan or Temazepam (Ambien didn't help him much).  I know that some people don't like the idea of taking prescription drugs, but to me it is worth it to have a "guaranteed" good night's sleep. I would check with your doctor on what it is safe for you to take -- I think that insomnia is a very common problem that you don't have to live with.

Pmb   15 posts since
May 14, 2009
Currently Being Moderated
8. Nov 8, 2009 3:31 PM in response to: misskitkat
Re: Insomnia

As far as Ambien being addictive please see

http://www.ambiencr.com/using-ambien/ambien-cr-side-effects.aspx

which reads

------------

Dependence
Sleep medicines can cause dependence, especially when used regularly for longer than a few weeks or at high doses. Some people develop a need to continue taking their sleep medication. This is known as dependence or "addiction."

When people develop dependence, they may have difficulty stopping the sleep medicine. If the medicine is suddenly stopped, the body is not able to function normally and unpleasant symptoms may occur (see withdrawalsection). They may find that they have to keep taking the medicines either at the prescribed dose or at increasing doses just to avoid withdrawal symptoms.

All people taking sleep medicines face some risk of becoming dependent on the medicine. However, people who have been dependent on alcohol or other drugs in the past may have a greater chance of becoming addicted to sleep medicines.

This possibility must be considered before using any kind of sleep medicine. If you have been addicted to alcohol or drugs in the past, it is important to tell your healthcare professional before starting AMBIEN CR or any sleep medicine.

------------

misskitkat   30 posts since
Apr 5, 2009
Currently Being Moderated
9. Nov 8, 2009 6:56 PM in response to: Pmb
Re: Insomnia

I'd rather be dependent on sleep medicines than praying for sleep to come -- I think that it is difficult to understand if you don't have this problem. Kind of like migraine headaches -- I feel like anyone who has had severe ones wouldn't recommend a couple of Tylenols and a nap.

Pmb   15 posts since
May 14, 2009
Currently Being Moderated
10. Nov 8, 2009 7:21 PM in response to: misskitkat
Re: Insomnia

I apologize if what I said led you to believe that I was saying that it was a bad thing to be addicted to sleeping meds. I was only talking about the physical addiction and only then to warn the reader that if they are choose to stop taking the medication that they do so incrementally and not stop cold turkey since the later can make you extremely ill. Sorry if I was unclear on that point.

misskitkat   30 posts since
Apr 5, 2009
Currently Being Moderated
11. Nov 8, 2009 8:09 PM in response to: Pmb
Re: Insomnia

I'm sorry, I didn't mean to sound so defensive.  I have had sleeping problems all my life, and the stress of my husband's illness just made things intolerable until I took medication. You are right that the potential for addiction/dependence should be considered before taking prescription drugs for pain, sleep, etc.

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