Pegatha, Hi, this is Kay again from the CML forum.  My blue hands and fingers according to the doc are from Raynaud's syndrome. We'll see. It's still pretty freaky to see it happen.  Let me know how yours are.  I get an email when ya'll post here, so I'll know what's happening with you guys and gals. For the new people, I started here with what the doc thought at first was PV. So I like to keep up with how you are doing.

MomMom, Kay

My dearest Linda, I am so sorry for the loss of your mother. I will hold you close in my heart. We are all here for you.  With much heart-felt love, Mimi

Linda, so sorry to hear about your Mom.  That is a hard thing to deal with.  You are in my pryers and know that we are all here for you to shout, or cry or just talk.  Hang on, we're holding you up from where we are!!

Hope your CBC is a good one this time Sara!  It is something how a few numbers make such a difference in our lives, isn't it!!  But we all are in the same boat and know just how important they are. 

Emily, sorry you are struggling so much with the fatigue, too!  I just don't know how you accomplish all that you do!  You are an amazing girl!  Hope your day turned out good after starting out sleeping in.  That can really be an upset for me, if I do that!!

Everyone else! Have a wonderful weekend!

Pauli

Mimi thats cool the t shirt is on its maiden voyage ....cool cool lol...gosh you certainly have all the good weather at the moment it is raining here at the moment 

we;; everynone i think it'sfull steam ahead on the house moved, going to be a busy week ahead

Hey Pegetha, Just checking in with you and seeing how things are going with you.....I just tried the States game--that was fun. Hope you're faring well and will chat with you again soon. Enjoy your weekend ...much love, mimi

Hi Everyone!  I want to Thank Everyone of you for all of your beautiful support to me!! It means alot.... It makes me not feel all alone and lost. I do know that something will come about.

Today i went and got my flu shot (couldn't before because i wasn't over the bronchitis) and my Onc. was really great and gave me a 'Letter' which explains my diagnoses and required treatment, so prayerfully that will have some pull somewhere to help get some needed insurance! She also gave me 'paper written' prescriptions for my hydrea & blood pressure meds (everything has gone computer there now) but i did get that. And i was able to get a Phleb. today to hold my #'s down for awhile.

I do have some leads, so try, try, try i will.... : )     Patti, thank you for your generous offer to help me find something. I know you mean that, you are quite the trooper who has battled this already!  I still have the notes from when we spoke, and i do plan on checking them out. So let me not burden you just quite yet, ok.  I will try all my resources first. thing was... i couldn't do anything before, they said i was still insured and had to wait till i wasn't!   yeah.... they want you flat on the floor first!  let's kick you a lil'.... and then get up and fight!  lol..... (something like that i guess! lol...)

I'm too tired right now to write anymore.... I did catch up on the posts, and i will be praying for all of you!     Sarah

p.s.

I think Each and Everyone of you is just Absolutely Fantabulous!!!!  What a Beautiful-Team we have here! I'm Proud of all of you!!   and i wish you all Blessings! upon Blessings!!! 

I just got an email from LLS that Old Navy and the Gap are having a sale.  They have printable coupons to use to save 30% and 5% of sales go for Blood Cancer research....I can't seem to add a link, but I bet you could search and find it.  Nice to hear of others helping the cause.

I also wanted to update everyone on me.  I have put off posting because so many here are feeling bad and it almost makes me feel guilty for feeling so wonderful.  But I do.  I have gotten my strength and energy back.  Nausea is all gone and I feel like getting out and doing things again.  I went to the onc on Thursday and unless something comes up, i get a 2 month furlow .... I don't have to go back till 1/6.  My counts were up to 468k but still under the 500k mark that we never thought I would get below.  The places on my upper arms seem to be clearing up slowly, and doc says if I want to go to a dermatologist he will send me to one.  I'm waiting awhile longer to see if they continue to clear.  Only one new item...my left ear now seems to be turning purple...just at the tip.  Took my by surprise as I haven't had my foot do that in over a month...doc said lets just watch it as it just started 2 days ago.

I hope and pray that all of you get to feeling as good as I do.  I have been following everything through the emails and please know that I think and pray for each of you and the troubles you are experiencing.

Linda

Hi, everybody,

I'm doing great.  Fingers are all cleared up and back to normal.  I received my test results from my stress test.  The cardio doc says everything looks good.  I still stay tired all the time, but guess that just goes along with the pv.

I've decided to go back to my 1000/mg per day dosage of Hydrea.  The doc was trying to take me off of it because of the complications I was having.  But, when my hct and platelets  started going back up, he warned me I would probably have to go back to frequent phlebs.  That's not an acceptable alternative, since I only have one useable vein, and it's getting extremely scarred.  (My phleb vein in my left arm bit the dust several years ago, after I had a large clot in the left subclavian vein.)  So, back to the 1000/mg, and I'll deal with whatever happens.

Linda B., I'm sorry to read about the loss of your mother.  My mother died a number of years ago from cancer, and so I can empathize with you.  I still miss her all these many years later.  She was my best friend.

Take care all, and hope everyone has a great weekend.

Pegetha