The Leukemia & Lymphoma Society - Fighting Blood Cancers
2,097 Replies Last post: Dec 13, 2009 4:51 PM by buddyrider   Go to original post 1 ... 108 109 110 111 112 ... 140 Previous Next
buddyrider   448 posts since
Oct 4, 2009
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1,635. Nov 5, 2009 8:49 PM in response to: sario
Re: Living with PV AND ET..our new home

hi Sara, i hope all goes well tomorrow for you, with CBC. please let us know how you get on.

Dee, Mimi and Patti you all must be so proud of Sarah for sharing her problems with us all. we are all lucky to have you all here, as i have benefited from the support of mimi and Patti, and i thank them both for just being there.  it is strange as i am so so far away from you all but i think about you all every day, as if you were just along the street from me.

Well i am on my last night shift, then off for the weekend.  got an engagement party to go to on saturday.

hope all is well with everyone.

Pauline

pegetha   294 posts since
Apr 3, 2009
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1,636. Nov 5, 2009 9:32 PM in response to: flower79
Re: Living with PV AND ET..our new home

Hi, everybody.  Sorry I've been so scarce lately.  However, between work and the overwhelming fatigue most of us have to one degree or another, it's hard to get the energy to turn the computer on in the evenings.

 

Sarah, I'm sorry about your problems, and I understand your concern about the lack of insurance.  However, as Mimi explained, there are some other alternatives.  I didn't have insurance at first, and I got a "prescription" to go to the blood center to have a cbc and phlebotomy if necessary.  And it didn't cost much at all, about $30 or $35, if I recall.  Also, my doctor knew I didn't have insurance, and he always gave me a "discount"!!  I know it's hard to ask, when you're used to having good coverage, but most doctors will work with you.

 

Denise, I hate that you're having problems.  I wish there were something I could do to help.  Geeze, I just have to remember to buy that lottery ticket!!!!  Perhaps it's meant that you should take it easy through the holidays.  Like Dee, I sure hope you're not getting the problems she's having with all the pain.  That's not a good way to have to live.

 

Pauline, I hope all works out with your house sale and move.  Between your job, your "disorder," and now your impending move, you really have your hands full.

 

Pauli, hope you're enjoying the sunshine and warmth.  Sounds good about now.

 

Colleen, I'm sorry your son has the H1N1 virus.  I saw an article in the paper today that there is now a confirmed case of the "swine" flu in a cat!  Seems that two of the people in the family had the flu, and the cat apparently caught it from them.  According to the paper, it was the first case of feline swine flu.

 

Sally, welcome to our group.  I can really relate to the attacks of vertigo you were describing.  I had numerous vertigo attacks before I was diagnosed with pv and started the phlebotomies.  Once my hematocrit got down to a semi-reasonable number, the vertigo stopped.  I sure was glad.

 

Linda, I keep thinking that one of these days I will get back to Dallas to visit my friend who lives there.  When I do, I'll contact you ahead of time to see if we can get together for a cup of coffee or something.  That would be great.

 

OK, I know I haven't greeted everyone, but I'm falling asleep at the wheel, er, computer.  So, I'm going to shut 'er down, and go catch some zzzz's.

 

Night, everyone.

 

Pegetha

lkbanks   47 posts since
Sep 17, 2009
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1,637. Nov 5, 2009 11:20 PM in response to: DEE11
Re: Living with PV AND ET..our new home

hello everyone.sorry to be gone so long.just wanted you to know that my mother died on hollween nite.do you remember that she had the lung cancer?they gave her 6 months but she only lived about 6 weeks after her dx.i've been in a fog every sence.just don't seem real to me yet.we barried her on the 4th,that also was my birthday(62).i sat up last nite reading all the post i was really behind.i feel like a new commer.i don't think i have post sence before pauline from scottland came on board.will try to post again soon.good nite to all my friends here and keep me in your prayers for me and my brothers.

buddyrider   448 posts since
Oct 4, 2009
Currently Being Moderated
1,638. Nov 5, 2009 11:22 PM in response to: Ylas
Re: Living with PV AND ET..our new home

hi there sally how are you coping with the forum?  it is somwtimes hard to keep up, but you will get there in the end.  i too have everyone saved to a word document that i minimise on my tool bar and if i forget who they are i just pop it up lol...how are your sons headaches?  did they know what was causing him to have migranes so frequently?

Pauline

buddyrider   448 posts since
Oct 4, 2009
Currently Being Moderated
1,639. Nov 5, 2009 11:39 PM in response to: pegetha
Re: Living with PV AND ET..our new home

hi Pegatha, how are you?  i hope you are not over doing it and resting as you need too.  I am on night shift at my work, it is currently 04.20 at time of writting this post lol...its been a long night...but i enjoy it....  as you have noticed i am in the middle of purchasing a house and selling my flat, my husdvand and i are so stressed with it all..but it will be worth it in the end...i am surviving on stress and adrenaline lol...not sure where i am getting all the energy from, but i guess it will all catch up with me soon eh...

are you sleeping yet? lol

pauline

Ylas   13 posts since
Nov 3, 2009
Currently Being Moderated
1,640. Nov 5, 2009 11:41 PM in response to: buddyrider
Thanks for the tip!

Thank you, Pauline, I will try that as I am totally confused as to who's who and what's what! As to your question, my son has a rare complication of migraine (only about 27 documented before him) where his vision is affected pretty seriously.  He does much better now, but the neurologists still don't have a solution or any idea what causes him to be so light-sensitive (both as trigger [flashing lights] and as consequence). He has seen constant flashing lights since the bad siege in ninth grade (I am not sure what the British equivalent is), so he has to rest his eyes when he has a lot of reading to do. MRI and MRA both clear, thankfully.  I just don't want him or his sister to show up with "bad blood"! By the way, he did a junior year term at his university's program at Oxford last year and just loved it.  He read English lit at Magdalen. We haven't gotten to Scotland yet but some day hope to as some of my ancestors were Scots. I have two friends here whose daughters went to St. Andrews, and one whose daughter did a study abroad term at Edinburgh! All of them loved Scotland.

Sally

buddyrider   448 posts since
Oct 4, 2009
Currently Being Moderated
1,641. Nov 5, 2009 11:58 PM in response to: lkbanks
Re: Living with PV AND ET..our new home

hello there i am so so sorry to hear of your mothers passing..i do remember your post of her being ill. i hope you are taking care of your self and remember we are all here for you, anytime, you are not alone   time is a good healer you take care now, catch up with you soon.

all my love Pauline

buddyrider   448 posts since
Oct 4, 2009
Currently Being Moderated
1,642. Nov 6, 2009 12:03 AM in response to: Ylas
Re: Thanks for the tip!

gosh only 27 documented  before him, jeez thats rare eh...you must try and come to scotland, we could meet for coffee lol..i just live 10 miles away from st andrews. you could hunt your ancestors down..

Pauline

Ylas   13 posts since
Nov 3, 2009
Currently Being Moderated
1,643. Nov 6, 2009 12:20 AM in response to: buddyrider
Re: Thanks for the tip!

Oh, I am sure my ancestors were serfs, maybe progressing upward over the centuries to vagabonds hoping to escape the reach of the law in the colonies. The clan was Macfee, that I do know. I imagine your night shift ends soon. Hope you get some rest and all continues to progress well with your move.

Sally

Pauli   171 posts since
May 7, 2009
Currently Being Moderated
1,644. Nov 6, 2009 12:21 AM in response to: flower79
Re: Living with PV AND ET..our new home

Sarah, I am so sorry that you have to go through that kind of stress on top of everything else!  I pray that you will be able to get things cleared up so that you don't have to worry about that too! 

Pauline, I sure hope your house deal goes through pretty soon, the level of stress that you have had to deal with is not good at all.  Hope you have a restful weekend after your night shifts and all your house stress.  Hang in there!

Hoping for a great weekend for all.  I find it difficult to keep up with all the posts and what is happening with everyone!  I certainly understand the concerns about cognitive clarity.  I have to keep going back over who is who and what your struggles all are.  It is really frustrating some times, trying to keep things straight!  you are all and encouragement to me even if I don't keep it all straight.

You are all in my prayers!   Pauli

cms9978   89 posts since
Aug 3, 2009
Currently Being Moderated
1,645. Nov 6, 2009 2:17 AM in response to: lkbanks
Re: Living with PV AND ET..our new home

I am sorry to hear about your mom.  I will keep you all in my prayers.  Sarah I am sorry about the insurance thing.  Like we don't need anything else on our plates.  I understand that you would rather be the one to support everyone else.  I am like that too.  I hate putting my problems on other people.  I dislike how I keep starting my sentences with "I"!)  But that is the way we were made! 

Pauline I hope that you can catch up on your sleep this weekend.  Have fun at your party on Saturday.  And if it is any help I don't think most of us know anything about how the insurance is run in this country.  It kind of sound like the UK as it right. 

Well it is Friday for me so I will of the next two nights.  Will catch up with the rest of you later.  Have a good night and a bright and sunny weekend!)Colleen

buddyrider   448 posts since
Oct 4, 2009
Currently Being Moderated
1,647. Nov 6, 2009 6:05 AM in response to: cms9978
Re: Living with PV AND ET..our new home

hey there Pauli i think all is going ok with the sale of flat and the purchase of our new home, we are just waiting on the mortgage company to confirm loan, then its full steam ahead.  well thats my nights finished thank goodness, they were ok and went in quick but it sure knocks your body clock off...Colleen i sure hope i catch up with my sleep lol and think i will be knackered for party tomorrow night, but will go for a few drinks...

Patti have you managed to catch up woth all the action you have missed since you were away traveling and visiting family?..glad you are back.

well i off for a wee nap and try to get my self converted back into proper days and nights

hope you are all well..

Pauline  

p.s. Mimi has the t shirt left on its world voyage yet?

Patti   376 posts since
Apr 5, 2009
Currently Being Moderated
1,648. Nov 6, 2009 6:08 AM in response to: DEE11
Re: Living with PV AND ET..our new home

Welcome Sally! I'm Patti from Oregon,and we're glad you found us.

IKbanks: I'm so sorry to hear of your mothers passing.Please know I'm thinking of you,and do understand,no matter our age it's still a very difficult time.

Sarah: I've been away so haven't had time to catch up on everyone yet.I know alot of things you can do to get the help you need.Please contact me,and lets see what we can do together.As you know I've been there for the last 2 1/2yrs,and as difficult as it can be,it's possible.Please let me help,as you have to take care of yourself!

To everyone else: I'm glad to be back with all of you!!!! You are all my extra strength,and I've missed you.    Patti

paytonsnana   87 posts since
Apr 3, 2009
Currently Being Moderated
1,649. Nov 6, 2009 9:43 AM in response to: lkbanks
Re: Living with PV AND ET..our new home

Linda I am sorry about the passing of your mother please know you will be in my thoughts and prayers.

Sarah there will be help available for you without insurance check with your PCP and he can give uou instructions for drug companies that will assist you with meds and  My PCP will now offer me reduced labs that i am unemployed as well I will be prayiing about this as well.  Everyone please do not withhold when you are hurting that is what we are all about to up hold each other in thoughts and prayers and deeds.. Where is Kelly ???

Love Denise

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