OMG! This is totally unrelated to health-- my nephew, Eason, who is a chef in a 5 star restaurant in the French Quarter in New Orleans,he just texted me that my favorite band REM is there in his restaurant enjoying a meal !!!! Last week YoYo Ma also was dining. Eason spoke to Yo Yo when he came back in the kitchen to speak to Susan, owner, Eason had attended a music and arts camp --real good place and highly respected--and Yo Yo Ma came there for a performance at the music camp. Oh, if I were younger! I would go to Eason's restaurant a lot! He works at Bayona in the French Quarter and Susan Spicer is owner. Susan and I grew up together and anytime Chris and I go there to dine she always comes out of the kitchen to speak to us. She has a very unique menu with a Mediterranean flare. She is highly respected in her field and Chris has filmed in her kitchen with Susan for a tourism spot for New Orleans.She has another restaurant in the quarter that is also 5 star. She has done well for herself and I have seen her on the Emeril Lagasse show many times. Ciao
hey Dee i hope you are resting on what sounded like a very tiresom day for you, and i hope that you are one step closer to a diagnosis. it must be very frustrating for you ![]()
Mimi, gosh i am in with the paint work now in this forum, and theres me thinking i was still a newby...lol ![]()
i guess i am in the gang now and i am loving every minute of it. And yes i still on night shift, it's 04.30am at time of typing posting and i am knackered. i was up most of yesterday making and recieving phone calls regarding house, nothing has been finalised with sale of our flat and the purchase of our new house, but i hope by the end of the week i will have a definate answer, i hope so anyway...i am bag of nerves and extremely in need of a sleep.....i am too scared to say yes we got it at the moment..so i shant say it lol......well must dash just now, catch up with you all soon
love pauline
Ok Mimi so I don't love REM but I do like their music. Your nephew is really lucky!
Sally welcome again. With 4 kids that was one of the first questions I asked my hem doc. He told me that it was a gene mutation and not passed on genetically to our kids. But as a mother you still have to worry. We at least we know the unusual symptoms of it so we can be on the watch too.
Dee sorry you had to go through that long of a scan but lets hope that they got the pictures that they wanted and you won't have to go back later. That stinks:(
To everyone else Pauline, Pauli, Emily, Sarah, and so on and on and on!) I hope that you have a good night and a better brighter tomorrow!)
Colleen
What a beautiful evening here--all windows open and a nice fresh air flow throughout the house. A great nice for cleaning which is what I'm doing! I have rested for 2 days straight and have some energy to devote to house cleaning! I do keep odd hours as there is no agenda for me any day! So I shall do my house cleaning all through the night as I am well rested and don't need any sleep !! Though I won't be doing any laundry due to the mega-rat that attacked our washing machine and has eaten through a water hose in the guts of the machine--but at least I had the chance to clean all the funk from behind the washer! That is the first RAT we've ever had--every now and again the cats will sneak in with a tiny little field mouse and they don't bother me as they are easy to catch and release--but that big healthy rat was nasty . We already trapped him. All within 20 mins!............. Colleen and all others with children, I certainly would have been concerned with the propensity of them having the disease passed on to them--but from what I've understood, it doesn't work that way, Amen. Colleen, it was you who said your son may have H1N1 strain of the flu?? I hope he is doing well with it and you need to protect yourself as much as possible without alarming him, as you certainly don't need to catch it. I have had reg flu shot but am waffling on whether to get the H1N1 injection--there is so much controversy surrounding it. So, please take the necessary precautions though it is hard as it is your son and you can't isolate him from you. So, I hope the both of you fare well as the rest of your family. Take care dear and we'll be in touch--I must get back to my night time cleaning!....Here's hoping all enjoy a good Thursday...........Ciao Bellas and Sydney
Good Mornig Friends
Hope everyone has a great day.. Dee i am starting to experience that rib hug like pain you discribed.. I feels like someone has squeezed me very tightly and bruised me all up my rib cage. i also experience a lot of joint pain.. the job hunt continues however i have sorta resolved to just enjoy this time and look forward to the holidays and enjoy not working for a while.. My cognition is really a concern so maybe i need to just chill for a spell.
I went to sewing group at church and I have brought a quilt home to tack and so i have somethings to keep me occupied that is new and I am thinking of trying to make Payton a quilt for Christmas...I took tim to the ER lyesterday for his stomach and they did a CT scan and did not find any abnormalities.. They gave hime some new meds so please pray that this gives him his needed relief..
love to all
denise
Denise i pray your not getting "this".. it first started out almost euphoric like(sp?)Light sensation around the ribs and a spot to the left and mid back .Then over the past year it turned into the present pain which has really changed my life style.The leaves are all over the yard and normally i would be out there with the tractor and blower cleaning up.Letting go is,nt easy but id rather look at it as putting it on hold for this year.Next year i will be back to the perpetual gardener that i was.Keep me posted on your new pain i hope it does,nt get bad.If i find anything out i will post it for sure.
Sario..i,m waiting to see the ONC doc at Dana Fabar next weds.If there are no leads re: scan then i will call pcp to book a referral to the MS specialist.Just hate to keep going places and restart the "new patient" thing.Its a drag but thank god its available,The baclofen seems to work better the longer i take it,Even though i have breaking pain its better than it was.The fatigue is the worse part.I never took this many pills in my life.I know you must have to take alot.Did you have a hard time with the fatigue issue?
Denise dont feel bad about the drain of the brain..the game section of my p/c is,nt working and "HP" has been sending me trouble shooting help via email.I cant even cut through it.I will wait till i can get someone or hire the HP tech via screen share to fix everything.I,m really dense and cannot cut through nor comprehend simple instructions.Its frustarating !!!.I pray Tim will feel better and the quilt sounds great.Take care all tata..=D
Hi Everyone! I'm sorry, but i'm way behind on all the posts again... will have to try and catch up tomorrow if possible.
Ok, where to start..... I'm sorry, but i find it hard to share sometimes. It's like i don't like dumping my problems on others (which is stupid i know, because as we all say... we are here to support one another) I like supporting others... but for me to share it's hard.
Anyways, thing is... I'm going through some very rough times here. I am about to lose my medical insurance in a few days. I've had med. ins. all my life, and have been with this ins. for the last 30 yrs! and now....... i will be without anything at all. Needless to say,... I'm going through some very emotional hard times here. I'm so scared that at the time in my life when i need it most, i will be without.
Don't take me wrong.... i'm not just sitting here crying and doing nothing about it, i'm actually on overload in my mind with all these different things to try. So much as to where i just can't take anymore. So some days i need to just Stop and Not even think anymore.
I want to thank you Dee, Mimi and Patti for the lead you all have given me so far. And to everyone else.... I'm sorry i hadn't shared before (like i said, it's hard for me)
In the meantime, i will be getting a phleb. tomorrow (even though i don't really need one yet) just want to bring my #'s down more, who know's when i'll be able to get another. And have a lot of calls to make and much research to see if i can qualify to get something, somewhere!
Thanks for listening............... Sarah
And i'm still keeping you all in my prayers! ![]()
p.s.
Welcome Sally!! looking forward to getting to know you..... glad you found your way here. Everyone here is awesome and so supportive ![]()
Sarah so good to hear you vent,,,i,m proud of you.No matter what the issue is chronic physical pain ,emotional financial or all the above.Your not the kind of person who will sit and wait for the storm to end, your learning how to dance in the rain!!!and for that i,m proud to know you and you also know i,m here for you anytime.Hugs and a big tata ![]()
Sarah,dear I know that was hard for you, but i am so proud for letting us in on something that is hurting you. and I am very proud of you ans I know exactly where you are coming from. I remember the day my ins opted not to renew mt med ins pol and I thought it was the end of the world for me. But, it wasn't. I used to have to pay for my phlebs--$500 to $700 per phleb. After doc found out I had been rendered without ins, he simply wrote the orders up differently and sent me to the blood bank --I had been getting them in a hopt. In the long run, it has been a good thing for me and I have finally quit worrying abt it. There is a charity Hopt in NO and Baton Rouge that is also a teaching hopt and they both afford you excellent care. They charge you by the amt of your income. as Chris and I are below poverty, we would qualify for free care. i can't say i don't worry abt it, because it dies play on my mind at times. I do want to caution you from an ins man who will try to sell you a policy thet isn't ins but a 20%deduction--if you talk to your health care provider will allow you a 20% uninsured discount. Love ya,mimi
Hello Everyone!!!!! I've missed talking to you all alot!!! We are now back home, and really enjoyed the time away and being with our grandchildren!!! I think they all had grown about 2ft in height,lol.They are all looking at us eye to eye,except our 10yr old granddaughter.I didn't have PC access much,so havent kept up on all of the goings on.If someone could help me catch up,I'd really apprieciate it alot.Leaving the kid's was difficult, and I think I cried more than I had in a while when we had to leave them.If I have to hitchhike, I'm never going 2yrs without seeing them again!!! We left 85 degrees to come home to gale force winds of 60+mph and rain,UGH!!!! I did like the sunshine better.Oh well, that's the Oregon Coast.Well, that's about all for now.I'm glad to be home again,safe & sound.And also to talk to you all again too!!!!! Patti
hey there sarah, we are all here for you and you need not feel that you cant share...what i have learnt in my life is that it's good to talk and share with others, we may not be there in person but we are here for you so dont forget that...i find it hard to share but when you get over that wee hurdle, it then becomes easier the more you do it...dont feel like you are dumping because you are not xx
i am sorry to that you are going through a rough time at the moment all i can say is dont give in but do do take care of your self...i hope you get medical ins sorted, there has to be one out there... it makes me angry and upset to hear all the stories and worries about medical insurance, i feel so blessed that i dont have to worry about medical insurance, we have pay national insurance here in UK, which pays for a variety of things... inc health care...especially when you all need proper followups and care. i know that each country runs different but!!!!!!!........i am not too familiar with the health care in america, (so i will appologies if i have picked up the wrong idea). as if you guys dont have enough to worry about!!! i hope all goes well for you sarah and that you find med insurance, my thoughts are with you..xx
Pauline
hey there Patti glad you are back missed ya my dear x you sound like you have had a fab time...and to come home to rain well its like that here too the past couple of days in sunny scotland lol....i am on night shift at work and tonight is my last night out of 4 night shifts and then i am off till monday...
there is newby on the forum Sally from South West america, you will get her intro a few pages previous.. i am one step closer to selling my flat and buying my house, just waiting on mortage to clear now, we had finacial advisor out last night, so fingers crossed that it all goes ok and we shall be moving on 16th nov as planned...but will keep you all informed..
good your back Patti. i have been ok i guess, still a few issues with my huddy but moving is taking presidence to all that at the moment..... i am living on nerves and adrenaline at the moment....thanks to everyone elso on sending your prayers and positive vibes regarding the house, i think its working
well must dash ans get ready for work catch up later with you all later tonight..
Pauline x
Good Afternoon Dee....OMG, my fatigue is beyond words!! I have/and had immense fatigue! Trying to work full-time and seeing my 4 grandchildren ,i am really exhaused!!! Thats why alot of the days I just dont have the energy to turn the computer on! LOL!! I take a med (pill) called Provigil , for my fatigue. It is a amazing pill...I take it in the AM, and i am good till late afternoon. i sure hope you start to feel better soon!Keep me posted, on everything,praying for you.
Patti--glad you had a good time visiting your grandchildren...and Sarah.....I am so sorry to hear of all your stress. I am sure there is some insurance out there for you! I know its very hard..but, please try not stress alot!! It WILL work out somehow!
Hugs to everyone----Sara
PS-----OH....going for CBC TOMORROW!!
I am so sorry to hear about Sarah's loss of insurance--!!!---and hope the blood bank idea will work for you for the phlebotomies. I am grateful for all the reassurances that my kids are not being likely to show up with PV. Son who will be 22 this month has had killer migraines since age nine (much worse and more frequent than mine, but doing much better in past few years except for a a bad spell early spring of freshman year--I had to fly out to California to make him go to the hospital for IV treatment!), and I just don't want him to have anything else in common with me healthwise. I am going to have to make myself an Excel spreadsheet to get everyone straight; I am bad with names and can't remember anything in the real world, much less the online one. God bless you all.
Sally
ps----provigil is considered a "stimulant" .