Lovey, I so glad that Burt is doing well! Plese, remember to Burt about rising his mouth constantly. is really very important! Adam had avoided the mouth sores at all, but I think that he rather was very lucky one.
Adam is doing very well. My only worry now is that, acording to me, he works to much. He writtes one article per week, writtes on his blog each other day , and does many reasarches at internet.But he is a workoholic
he eats really well and we are walking daily.
Take care, I am constatly thinking about both you. No, I am not going to take you to McDonalds for a diner. I promise! In Krakow we have plenty of reastaurants, some of them very good, a few of them - tiptop! We adore eating out, and now i a bit mising this plasures!
Go Burt!!! That's great to hear he's doing well, hope things keep going as smoothly as possible for you two.
- WBF
Day +10. The mouth sores are getting better and Burt keeps rinsing even though they told him he could stop. Glad you said that about the water, he said it tastes terrible. He's eating but doesn't want to. Frankly if I have to choose I'd rather he exercise so I don't push too much on food. He still has no ANC or TP. WBC is 0.1 which is as low as it got. He got platelets again today. We're trying not to be impatient but wishing and praying the little cells do their thing. Take care.
I remember my dad insisted that the water in the hospital tasted foul - then I tasted it, and it seemed fine to me. My mom found some flavored waters that he liked better. One was white tea flavored, and others were peach and raspberry. Maybe you could try some of those for Burt.
I hope things continue to improve.
It takes awhile to engraft. Be patient, it will come.
He does need calories, especially if he's exercising. It's not either/or. We need food and exercise. Maybe something like a shake or malt? Seems a lot of folks can enjoy those when they can't get anything else down.
I know the waiting sucks. Just hang in the best you can.
Blessings
Lovey , I know that is hard to be patient. But is very early, Adam "officially"engrafted at day +19. Remember that it happens between more or less day+12 and- day +26.But this "waiting business" is very hard. I am with both of you!
I agree with Tex. eating is very important, Few spoons of soup, maybe a jello. I dont know, but please, try to encourage Burt for eating, a bit, but eating.
Take care.Hugs. Marta
My exuberant mood was only slightly deflated by Tex saying on Marta's post that people on the way out the door get hauled back in (however he said it more gracefully). Anyway, the doctor put in a "DC" order for Friday. It took Burt and I a while to understand the code for discharge. And yes, we're too excited. Well, I am, Burt still feels like crap. His counts however are great. He only got some yesterday. Today ANC is 1008 compared to 60 yesterday. WBC is 1.6, even his HCT is pretty good. So we are cautiously optimistic and enjoying this day with the understanding that it's still the beginning of the journey but hey, one day at a time right? I also thought some of you might appreciate the quote of the day we used yesterday (part of our own grounding process, we do daily quotes on the board). "Every day is a gift -- even if it sucks." ---Sherry Hochman
Take care.
Good quote. I may steal it.
I wasn't trying to deflate anyone. Actually, I was trying to avoid any crushing sense of defeat. From what I've understood in talking to the few folks I've known that had their discharge delayed, that is sucking to the the suckiest degree.
That said, most folks get discharged when they are supposed to. But I really liked it the way they handled mine both times (induction and SCT). The doc walked in in the morning and told me I was being sent home today. Didn't have time to get my hopes up, let alone dashed. I just started packing. ![]()
Burt's counts are good. I hope he does, indeed, make it home.
Blessings
Hang in there, you guys! He'll be out before you know it. I begged my doctor to release me at day 12 or something. Luckily for me, her cooler head prevailed, and I didn't get out until day 17. Of course that was in my best interest, but...waiting sure does suck, I agree! It'll be soon, though....
Pam
Tex, no worries, I know you weren't trying to deflate. One of the things I love about this place (and you) is that there is realistic compassion. One day at a time, right? It is a good day and we need to be positive but keep our emotions in check. We've only told our immediate family about the potential discharge because we don't want the public disappointment if it doesn't happen. We'll boast from home, whenever that day is and enjoy it only for what it is, that day. Take care.
Lovey, I love your quote!
Finger cross for friday!
I am writting in a hurry, is 7 am o, the sun is rising, our luggages are packed, we are leaving in one hour to Krakow.
Take care, and take the spirit both of you up! Hugs Marta