When my husband mentioned about this thread, at once I wanted to look at it. After I have read the comments posted, I went back two years in time. Two years ago, I was thinking exactly the same thing. It was right after we have lost our beloved daughter Melanie.
You can read my story in this link - http://www.montyscorner.org/content/our-history
That's also when CCE Research Alliance - www.cce-researchalliance.com - Childhood Cancer Prevention Research was born.
For me, having no answers to "why has this happened to my child" was not acceptable.
I have researched through many scientific publications since the sixties relating to childhood cancer epidemiology and aetiology and also researched SEERs reports relating to methods used in epidemiology.
My findings made on point very clear that, despite the advances we still know very little about the causes of childhood cancers therefore research has to continue but childhood cancer epidemiology was an significantly under funded area.
Another point which was also very clear that the epidemiological studies are very labour intensive and also inconsistent due to methodological differences used by different teams.
Since I needed to channel my anger to something I founded CCE RA to focus on the epidemiological studies into the causes of childhood cancers.
CCE RA (registered charity in England – 1130106) is now building relationships with universities and other institutes and also building the most comprehensive and universal database to help researchers in their studies. CCE RA has now subject matter experts working as volunteers and other volunteers helping in variety of areas.
We simply want to make expert’s life easier and consistent so that we will eventually know why this is happening to our children.
If you are interested in learning more about the scientific research results in childhood cancer aetiology visit this link - http://www.montyscorner.org/content/research-information
On this link, you will find a short book we have complied about ‘what we know’, ‘What research involves’ and ‘what it means to us’ on Monty’s Corner - our community support and fundraising website.
Meltem
