The Leukemia & Lymphoma Society - Fighting Blood Cancers

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5 Replies Last post: Nov 2, 2009 10:03 AM by lisaleigh  
hodg930   3 posts since
Oct 26, 2009
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Oct 26, 2009 2:08 AM

Communicating with unsupportive family ...

I'm a 33 yo female who just found out that I have relapsed from Hodgkin's Lymphoma meaning I need a bone marrow transplant. I'd really like advice on how to manage the barrage of questions from family members. My family has always been inappropriate and hurtful, and cancer has only magnified this fact. So, I sent out an email to my family informing them of my relapse and that I'm not in a good mental state to talk on the phone with them about this right now nor answer their questions. Instead, I gave them the details of what's happening to me in my email, pointed them to an online resource that details out the procedure and told them that I'll talk to them next week when I'm in a better mental state. Regardless, I just got off the phone with one of my sisters who put me through a flurry of inquisition and insensitive commentary. She obviously didn't even read the resource I pointed her to and didn't pay any attention to my request that I didn't want to answer a bunch of questions. How have people managed this in the past? I can't handle answering the same questions over and over again but I also don't want to come across as the bitter cancer person. What's a nice way to tell people to back off? I feel so drained explaining myself over and over.

sha_shelt   630 posts since
Apr 3, 2009
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1. Oct 26, 2009 8:09 AM in response to: hodg930
Re: Communicating with unsupportive family ...

Hi Hodg,

Sorry to hear about your relapse - I understand about the dark place you can go to in your head....  I've NHL and am in my 7th round in the ring with the beast.

As for your question.....  your family has always been inappropriate and hurtful and the cancer has magnified this and your worried about being nice to these jackasses?  Why???  They obviously don't care for your feelings, why do you accommodate their BS?  Screen your calls.  Answering machine or caller ID works nicely. Call back at YOUR leisure - or if perchance you do pick up not knowing it's someone you don't want to talk with right then - tell them so.  "Thanks for calling but I really don't feel up to telling the story again - check the email - all the info is there.  Buh-bye for now."  .   If they show up at your door,  "thank you for dropping by but now isn't a good time, please call ahead and we'll arrange a time convenient for both of us"...   In other words you can be civil but keep it short.  It helps preserve your need to be "nice" but tells them "go away".    Practice these over and over and don't let them drag you in!  Buh-bye/hang up the phone   Buh-bye and close the door.....

There is no need to explain yourself of entertain any nonsense thats hurtful from them.  Now's the time to focus on YOU!  If your family can't understand this then they really ARE jackasses and not deserving of your valuable time.  Find friends, co-workers, others.....who can be with you, revive your energy instead of draining it, give as much or more back to you as you give to them.  In other words, cast off the negative energy.

Sorry that your family can't be there for you the way you need them at this time but this didn't happen overnight and you won't change the family dynamics - you just have to learn to avoid the landmines.

Good luck to you dear......

Sharon

pinkydo123   364 posts since
Oct 7, 2009
Currently Being Moderated
2. Oct 26, 2009 9:25 PM in response to: sha_shelt
Re: Communicating with unsupportive family ...

I am a caregiver for my 47 year-old bf who has cancer.Boundaries......and more boundaries.......and more.With some people you just have to draw a line in the sand.You're first responsibility is to YOU.Period.You put you're self first.Cancer is an uphill battle and I'm sure you need all you're strength to fight you're disease.If it is something you do not want to hear it is you're right not to be belittled abused questioned etc.Hanging up the phone and turning off the ringer has always did wonder's for me.There are other's that will show you the love and support you need right now you just have to reach out to them.If the conversation does not start with "I love you" I am here for you" We are together in this" or "WE are going to be o.k" you do not have to listen.Give you're self permission too.

Reese   169 posts since
Apr 9, 2009
Currently Being Moderated
3. Oct 26, 2009 10:49 PM in response to: hodg930
Re: Communicating with unsupportive family ...

People can be so insensitive, and it must be particularly frustrating that it's your family with whom you obviously want to continue a relationship.  When people ask me too many questions or questions I don't want to answer, I just tell them I don't know and I don't want to know.  You were thoughtful enough to point them to a good resource, so you should continue to refer them to that instead of trying to answer the questions yourself.  I agree with Shashelt and Rebecca that you have to put yourself first and draw firm boundaries.

lisaleigh   34 posts since
Jun 16, 2009
Currently Being Moderated
5. Nov 2, 2009 10:03 AM in response to: hodg930
Re: Communicating with unsupportive family ...

I am sorry about your family.  I find much comfort in my church family.  They have the encouragment I need.  Not the doom and gloom of what I don't.  I will tell you what my husband tells me,  It's all about you. You have to put yourslef first and so what if you hurt someones feelings. If you are the one who is fighting this battle and someone is whinning because they got their feeling hurt, something is wrong.  You just take one day at a time.  Everybody has to deal with things in the way that is best for them. Its amazing how time changes things.  I will keep you in my prayers.

 

Lisa

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