The Leukemia & Lymphoma Society - Fighting Blood Cancers
200 Replies Last post: Jan 29, 2010 5:25 PM by Phys_Agg   Go to original post 1 ... 5 6 7 8 9 ... 14 Previous Next
marta   98 posts since
Aug 12, 2009
Currently Being Moderated
90. Oct 30, 2009 3:29 PM in response to: Tex
Re: Help to get through it

Lovey, I so glad that Burt is doing well!  Plese, remember to Burt  about rising  his mouth constantly.  is really very important! Adam  had avoided the mouth sores at all, but I think that he rather was very lucky one.

Adam is doing very well. My only worry now is that, acording to me, he  works  to much. He writtes one article per week, writtes on his blog each other day  , and does many reasarches at internet.But he is a workoholic he eats really well and we are walking daily.

Take care, I am constatly  thinking about both  you. No, I am  not going  to take you to McDonalds  for  a diner. I promise!  In Krakow we have plenty of reastaurants, some of them very good, a few  of them - tiptop!   We adore eating out, and now i a bit mising this plasures!

mamawarrior   941 posts since
Apr 3, 2009
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91. Oct 31, 2009 7:24 AM in response to: marta
Re: Help to get through it

Nice to hear things are going well.

willowbayfarm   398 posts since
Apr 12, 2009
Currently Being Moderated
92. Oct 31, 2009 11:51 AM in response to: Lovey
Re: Help to get through it

Go Burt!!!  That's great to hear he's doing well, hope things keep going as smoothly as possible for you two.

- WBF

KyGuy   1,255 posts since
Apr 3, 2009
Currently Being Moderated
93. Oct 31, 2009 1:34 PM in response to: Lovey
Re: Help to get through it

I'm glad to hear that he's getting through it.  The exercise is great.  As Marta said, encourage him to rinse often.  It was tough for me because water didn't taste right but it will help the mouth sores.

 

Take care,

Kelly

Phys_Agg   167 posts since
Jun 9, 2009
Currently Being Moderated
94. Nov 1, 2009 10:57 PM in response to: Lovey
Re: Help to get through it

Glad to hear that things seem to be going good. Hope they continue to go well, and that the mouth sores don't get any worse than mild. Your both continually in my prayers.

God Bless,

Levica

stagsgirl   109 posts since
Oct 13, 2009
Currently Being Moderated
96. Nov 3, 2009 10:21 AM in response to: Lovey
Re: Help to get through it

I remember my dad insisted that the water in the hospital tasted foul - then I tasted it, and it seemed fine to me. My mom found some flavored waters that he liked better. One was white tea flavored, and others were peach and raspberry. Maybe you could try some of those for Burt.

 

I hope things continue to improve.

Tex   3,858 posts since
Apr 3, 2009
Currently Being Moderated
97. Nov 3, 2009 12:07 PM in response to: Lovey
Re: Help to get through it

It takes awhile to engraft.  Be patient, it will come.

 

He does need calories, especially if he's exercising.  It's not either/or.  We need food and exercise.  Maybe something like a shake or malt?  Seems a lot of folks can enjoy those when they can't get anything else down.

 

I know the waiting sucks.  Just hang in the best you can.

 

Blessings

marta   98 posts since
Aug 12, 2009
Currently Being Moderated
98. Nov 3, 2009 1:35 PM in response to: Tex
Re: Help to get through it

  Lovey , I know that is hard to be patient. But is very early, Adam  "officially"engrafted at day +19.  Remember that it happens between more or less  day+12  and- day +26.But this "waiting business" is very hard. I am with both of you!

 

I agree with Tex. eating is very important, Few spoons of soup, maybe a jello. I dont know, but please, try to encourage Burt  for eating, a bit, but eating.

Take care.Hugs. Marta

Tex   3,858 posts since
Apr 3, 2009
Currently Being Moderated
100. Nov 4, 2009 1:57 PM in response to: Lovey
Re: Help to get through it

Good quote.  I may steal it.

 

I wasn't trying to deflate anyone.  Actually, I was trying to avoid any crushing sense of defeat.  From what I've understood in talking to the few folks I've known that had their discharge delayed, that is sucking to the the suckiest degree.

 

That said, most folks get discharged when they are supposed to.  But I really liked it the way they handled mine both times (induction and SCT).  The doc walked in in the morning and told me I was being sent home today.  Didn't have time to get my hopes up, let alone dashed.  I just started packing.

 

Burt's counts are good.  I hope he does, indeed, make it home.

 

Blessings

pamd   1,346 posts since
Apr 3, 2009
Currently Being Moderated
101. Nov 4, 2009 4:24 PM in response to: Lovey
Re: Help to get through it

Hang in there, you guys! He'll be out before you know it. I begged my doctor to release me at day 12 or something. Luckily for me, her cooler head prevailed, and I didn't get out until day 17. Of course that was in my best interest, but...waiting sure does suck, I agree! It'll be soon, though....

 

Pam

secondtimeround   350 posts since
Apr 17, 2009
Currently Being Moderated
103. Nov 4, 2009 6:29 PM in response to: Lovey
Re: Help to get through it

Lovey,

What a great quote!  If I could do needlepoint I'd embroider that on a pillow. 

Keeping my fingers crossed for Friday.

Cathy

marta   98 posts since
Aug 12, 2009
Currently Being Moderated
104. Nov 5, 2009 1:09 AM in response to: secondtimeround
Re: Help to get through it

Lovey, I love your quote!

Finger cross for friday!

I am writting in a hurry, is 7 am o, the sun is rising, our luggages are packed, we are leaving in one hour to Krakow.

Take care, and  take  the spirit both of you up! Hugs Marta

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