and no one told me. Ever since he was diagnosed they have said it was Stage 3b but when I was at clinic last I asked about his sub-type since no one had told me that and the Dr. said Nodular Sclerosis Stage 4b. I was shocked that they changed it and didn't let me know. They say it doesn't change his prognosis but it is the most advanced stage in HL. I think they should tell me these things and I shouldn't have to ask for certain things or not know when they change something. Matthew was with me so I didn't go into it to much but am going to talk to his main onc. next time I see her. Am I expecting too much?