Today I came here just checking on everyone, all of a sudden I was succumbed with tears.. It hit me that I don't feel that I have what I use to have to offer here. I know that I can share my mom's experience but it's not the same as it use to be. Now Im the daughter whose mother passed from this awful disease! I feel that sometimes if I post some people may not want to hear from me, because my mom is not here.. Is this crazy, because it's just how I feel!
I miss my mom like crazy. It's been 2 weeks and 2 days! I feel that I'm doing well, but lately I just don't feel like talking to anyone..
The one thing that is helping me is music. I am addicted to playing songs on youtube and finding ones that remind me of my mom. I've also wrote several poems this week and that seems to be working for me.
I think of the months to come.. the holidays, my birthday, and like normal I'm dreading them. It will never be the same without mom.
I hear people tell me that it will get better, I hear them tell me to know she is in a better place and free of pain, but I truly Don't care.. sounds rude, but I just didn't want to lose her!
I HATE Fing CANCER especially leukemia, and I hate that the stem cell transplant only caused my mom hell! hugs, nicole
A lady who came across my mom's CB, along with her sister who is a Leuk. survivor honored my mom in their light the night walk yesterday, along with another complete stanger, and our sweet JUDY and John did also.. Things such as this definitly help during these hard times! This is the plaque the lady and her sister put together and displayed. THANK you!!
yea poetry helps. i have a journal, it's been a great deal of help for me. i write songs, poems and letter's to her. if you want i can share, i'm not a great singer, but i can share my music with you guys.
Oh nicole, i hate to say it, sometimes it gets worse before it gets better. I think of you often and remember the many tears. Nothing helps, but time. I hope your dad is doing.
Othniel, Please do share if you get to it!
Thanks Mamawarrior! You are right one day I feel great and the next is horrible! I think I had my first panic attack yesterday. My coworkers asked me to go get subway for lunch. As usual my routine on my lunch break was to call and check in on mom.. As I was driving I was thinking of this on a hot and sunny day, and in a matter of minutes I began shaking and feeling like I was going to throw up! I must have shook for atleast 20 min. I have never felt that way before, and it was very strange.. I called my coworker and she talked with me til I was able to calm down. I even tried saying the serenity prayer but it didn't work. Tonight I was just outside looking at the stars and asking mom where she was, which direction.. show me a sign please! I miss her so much it is unbearable sometimes. I am so amazed that I have taught about grieving and loss, but now I know how it feels!
Hope you are doing well too! hugs, nicole
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Message was edited by: CarolynM
Hi Nicole,
It's me. I just want you to know we're all here for you. You have so much to offer us. You were such a loving daughter. I too find a lot of comfort in music. After my stepdad died (December 1998) I was in my car heading to work and I heard this particular song. I knew it was him. I was having such a hard time dealing with him being gone and then I heard that song. It gave me so much comfort the rest of the day. I only hear it now and again but when I do, I know it's him telling me he's with me and everything is okay. Since September 2nd when my mom almost died I have heard it a lot more and I think it's his way of letting me know he's waiting for my mom and not to worry. I know people will think I'm crazy and maybe I am, but I really believe he is with me and loves me still. Now and forever.
Polly
Nicole,
It's been almost 4 months since I lost Matthew. I still have flash backs of the day he died. I still have panic attacks. But not as often. It does get better. Grief is a process and it can take a long time. Every thing you are feeling is normal. And unfortunately, as MW said, it may get worse before it gets better. The same feelings and emotions seem to just cycle around and around, over and over. It's part of the process. But you will come out on the other side. A stronger, better person. A young lady your mom would be very proud of.
At the risk of sounding crazy too... I do believe that Matthew has sent us all signs that he is okay. Talk to your mom, and pay attention, be open to it. She'll let you know. And seeing those signs will help you.
After I lost Matthew I found it very hard to be positive or hopeful, especially with others fighting leukemia. But that too gets better with time. You have a wealth of knowledge to share as a result of your experience. That is not diminished by the loss of your mother. It gives you a perspective that others don't have.
We are all here for you Nicole! Hang in there, Sweetie!
(hugs)
Renee
Hi Everyone!! It is so strange.. I came here days ago reading your post and it is just so unlike me not to respond... it's just hard as you all know, but had a better week.
I of course miss mom like HELL each day!! I think of her and am trying to focus on the good days, the good times, and when she looked like Her! It is so hard picturing her face those last days last month. I hate it, and it is like a nightmare. Me in that room with her, whispering my last words I thought each day, and saying all those sweet words in her ear. I see her looking at me, turning her head, with each movement we had more hope. Her eyes glistened as she saw us.. she saw us, Oh the days we had to fight that she had saw us! My I just can't believe she is gone, here but gone. I never have shared this with anyone so I will now! The day mom died at 5:30 when we ran to her room, we just stared at her for an hour. I kept waiting for her to move, Open her eyes and say Hello Im still here, because she was always here and still fighting. She never gave up, and I know with her last heart beat, she was still fighting. As we waited for hours, actually we were with her for 4 hours before they came to get her, my sister and I touched her skin, held her hand, we cried our tears over her, and even practically laid on her! I wasn't scared, and I was not fearful of her being gone, but I found so much comfort being with her those hours. We took our last picture with sweet mama that night! I am forever grateful for having a wonderful mother!
Today I found some comfort when I called the unit my mom was on before going to ICU that Sunday night. I needed a name so I spoke with the nursing manager. She asked me if I had a problem when mom was there, so I gladly shared with her that weekend. She only got a few details and not even the horror situations, and she asked me to call the patient advocacy (which we already have). She was very apologetic and very sincere. It felt good to finally vent to someone at the hospital who knew mom. I felt heard, and I felt understood!
This week we will be contacting the President of the Hospital, as well as our senator and congressman. I still have some things to add to my document before it will be complete!
MY sweet momma, We are still fighting for YOU!
Do not walk away unheard, do not hide your tears and anger, but make your voice heard, and stand UP for what you believe in! This is what I believe in! hugs, nicole
Hi Nicole. I was just thinking about you and wondering how you are doing? I know you are missing your mom so very much.
Yesterday I found where I had saved all my old threads about my dad from the old LLS board. It's so funny when you look back on what you wrote and remember all those feelings. It was such a rollercoaster ride for both of us, wasn't it? You said some really interesting things in response to my posts and I wanted to share this one with you. This was in March when my dad was really struggling, and he was very depondent and thinking about stopping treatment. I was trying to figure out how I felt about it and whether I should force him to go on, or respect his wishes. You wrote this:
ncook
Member posted 03-18-2009 10:06 PM
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Leslie,
The sad reality is that this sucks,, the good reality is that it can get better, the in between is we don't know if and when. Ive been having similiar feelings. The way you talked about your dad in your post reminds me of my mom. Yeah, its only been this way for about a month for her, but she pretty much can't do anything and now its worse. After seeing her break down on Sat. I wonder if she too will get sick of fighting.. in a way I think that is what she was trying to tell me but I blocked it out.. Tomorrows news may bring another surgery for her, I hope not, but if so, this is depressing.. how much can a person take?? Im sorry Im focusing on my mom, but that is how I am relating to your dads situation.. Im not in shoes but Im afraid that what if we do get those shoes. I don't know exactly what I would do, but I would tell you to go with your heart and gut. I don't see a reason why you shouldn't encourage him to continue to fight, and afterall, maybe no one else will, but at the same time respecting his wishes. Im so sorry that your going thru this. It is so rough. sending you love and lots of hugs, nicole
I just wanted you to see this because I know how much you miss your mom, and that you just want her back, not matter what the cost. You are grieving so terribly for her. The loss can be so unbearable. I wanted to remind you that there were moments when you did see how difficut the struggle was for your mom, and that maybe a part of her was running out of "fight". I don't know, maybe this isn't what you want to focus on right now. But both your mom and my dad were complex people, as we all are. A part of us might want to hang on to life, while another part might be ready to let go. Maybe in the midst of your pain you can focus a little bit on the fact that your mom was at peace with how she died, and she accepted this. She is no longer in pain, she is no longer fighting. That is something to be glad about in a small way. There is no easy answer. We must try to accept the imperfect nature of the situation - the treatments were imperfect and unpredictable, and the patients' reactions to them were also imperfect and unpredictable. We have to accept that we could not control the outcome. We have to try to focus on when our loved ones were healthy and strong. Don't let your memories of your mom consist only of her last weeks and days. Would she want that for you? As a mom, I think she probably would want you to remember the good times.
Thinking of you,
Hugs,
Leslie
HI Leslie,
I just saw this post from you. I totally forgot I had started this other thread. How are you doing these days? Thank you for grabbing that old post of mine, wow, seems like forever ago, but it wasn't! I feel that I am doing better. Getting along okay and work has be busy, a good thing! I think of mom still all the time, don't think that will ever stop. I've been thinking of ideas for getting my family for christmas.. something meaningful and something they will treasure about mom. I am thinking of doing my CB into a book, the company does it for you, and giving them a copy. I also was thinking of ornaments too.
I think the hardest thing now is just not talking to her, but I do talk a lot to the sky:)
The otherday someone stole my mom's cell phone out of my dad's truck. We all were devastated because we were going to keep it! Ive called it and called it, and the records show random phone calls, but we have no IDEA who it would be! Its so hateful!
We have almost finished my mom's document for the hospital. My father wrote 11 pages on just the first night. It is amazing how he uses his words and put his feelings into it. I can't wait to share it one day, in a weird way!
hugs, nicole
Im hanging in there.. I know there are more happy moment than sad moments, though the sad moments seem to be more overwhelming. Its hard to believe Christmas is approaching so quickly. I really can't wait till it is over and I think the anxiety building up to it will be more than the anxiety I will feel on that day~ I hope so!
I feel like I know she is gone.. I saw her die.. I was there, but still it is unreal.. I still expect her to be there to be home when I walk into my parents house. I expect the Tree to be lit, the stove to be covered with our favorite foods, I see her face as I open the door, the warm embrace we always have shared.. The Im so glad you are home and we are so happy to be together. I picture us with our bowl of popcorn watching a movie.. Mom is laying on the couch in her pjs. She has dad rubbing her feet and me scratching her head (she loved being touched). I see her smiling so excited to open our gifts.. she was worse than us and could never wait until dark on Christmas Eve. She would hand us our first gifts and giggle.. Her face was glowing with happiness of what she had chosen for us. There were many gifts. They were the things we needed and wanted. Then Always she would travel upstairs and have 1 last SPECIAL gift for each of us. It was the Surprise. It was a huge deal because she had already spent over her limit:) of course she didn't tell dad, and it was always exciting for her. Over the years the special gifts included comforters one year, money some years to help with expenses, another time she had us special jewelry hiding in the tree. Last year our special gift was the whole collection of all the state quarters. For the last 10 years she had collected every quarter for me and my siblings and with her mini hammer she hammered each one in the special book. I can remember how excited she was several years ago when she bought my brother a world globe. It was not a little blue one, but a huge one in a wooden stand. She was so proud of her special gifts. Then of course she would make us try everything on. We would all run in the bathroom and run out half dressed for her to see what she had got us. Then of course she got our dad a special gift too:) Last year she bought my dad a chain saw he needed. Mom and I were together days before Christmas. She was telling me that she wanted to get him the chainsaw, but she really didn't have the money. Sure enough there we were in dads big truck heading to the chainsaw shop. I remember sitting in the truck thinking how much longer before she comes out, and there she came proudly displaying dads gift.
Mom was so special. She loved to give. She loved to help others. It didn't matter who you were she would give to you. I am going to miss seeing my mom this Christmas so much! There are no words to display how much I love this woman.. Sometimes I feel Im going crazy. Am I really living this? I am so torn.. I am so happy and so proud yet I am so sad and cheated. In time I will find peace.
hugs, nicole
A poem I wrote last night.
THIS CHRISTMAS
There is no Christmas tree standing alone
Only you fill this room
There are no presents wrapped
because you are far from home
The jingles and jolly's that we hear
remind of us the good times that you were near
the people at the mall who are shopping without care
only bring back thoughts of how much you shared
The lights and sparkles glistening in the yards
are the twinkle that we saw lit up in your heart
For the STAR that shines so bright
is the endless light in your eyes
I smell the cookies, the Chilli, and oh the puppy Chow
I see you cooking and cleaning to make it somehow
the most special day of family and friends
while we gathered together to talk about how good the year had been
For this Christmas will not be the same
For you Momma are with Jesus this year
We will try to move on the way you would have it
But I know there will be times we just want to cry
For the most important person here on the earth
was carried away to a far away home
She sits on our hearts we breathe her breaths
We only Wish we could have had one last kiss
She was strong she was faithful
unlike so many among
She was worn and she was tired
But she kept moving along
She didn't want sympathy
no sorry or it's time
she wanted to say goodbye
when she was done with her fight
If you forget the meaning of Christmas
remember this year
There is an ^^Angel^^ named Beverly
and with faith she got there!
www.caringbridge.org/visit/welovebev
Beautiful Nicole. I love how you describe your mom's giving nature, and her tradition of "special" gifts. That is so lovely! You have a treasury of special memories to hold onto forever. I hope you can find some joy this Christmas despite the sadness. Your mom would want you to find the good in all this, I think. Try to start creating some new traditions. You don't have to do everything the same as before. Just doing one special thing with your dad, hubby and siblings might be nice. It will take time - years - to be able to fully enjoy the season, I know. But remember your mom is watching you and would love to see the glimmer of a smile.
Thank you Leslie! I will be thinking of you this Christmas! Hope you have a wonderful holiday!
Well tomorrow is the big day we all go home to gather for Christmas! Yesterday was 3 months since mom earned her wings! Lord, how we miss her soo much! I never thought of what forever meant until losing mom. It seems like such a long time to go on with out her and so many things to do without her doing them with us..However, I'm reminded that eternity is forever and I so happy that one day we will all be together again. Life is different living without mom and I couldn't imagine people who go there whole lives without their mother or father. Each day brings something new.. Yesterday I was in Walgreen's looking for a card when I saw Christmas cards for mothers.. It is sad knowing that I will never buy another card for her or a gift. So I wrap my self in the things we once bought her, a scarf and jacket. She would be so pleased to know that sis and I are keeping warm in her coats.. She always demanded that we wore a coat even as an adult. She was pretty demanding sometimes:) but for our own good. This week we are taking dad to the movies something him and mom loved to do before she was sick. Also we will have my 2 nieces there. On the 23rd we are taking our shopping trip to Florence with my cousin Mike and his family. We have did this for over 10 years.. Mom loved to go on this day. We always went to dinner and a movie on the way home. Then mom and dad would say, Well one more stop at walmart kids, and it was always near midnight. We all knew what they were doing...buying our stuffing stuffers. Once someone told mom we were too old for stocking stuffer and mom said yeah right, my kids will never be to old..Oh how much we loved our momma! She was so wonderful. How I wish to have one more kiss or hug, but it would never be enough! I asked Jason yesterday,"I wonder what mom is doing for Christmas?"and he said,"worshipping Jesus", yes I said but I bet she is also telling all these stories to all her friends and new friends about how much she loved Christmas with her family! We LOVE you Mom! Each day, each hour this week I know we will think of you, and thank you for all that you have given us! A home to go home too, a family to love, pictures and momentos of memories, but most of all your love!
PS. guess what just came on tv.. a movie about a families Christmas without their mother, Wow, they read my mind!
My First Christmas in Heaven
Missing our ^^angel^^ Bevy
Aug. 23, 1955 - Sept. 18, 2009
RIP, Sammie, Dustin, Michelle, Donnie, Barry, Shane, Jenn, Jessica, Kay, and so many more!
I see the countless
Christmas trees
around the world below
With tiny lights, like Heaven's stars,
reflecting on the snow
The sight is so spectacular,
please wipe away the tear
For I am spending Christmas with
Jesus Christ this year.
I hear the many Christmas songs
that people hold so dear
But the sounds of music can't compare
with the Christmas choir up here.
I have no words to tell you,
the joy their voices bring,
For it is beyond description,
to hear the angels sing.
I know how much you miss me,
I see the pain inside your heart.
But I am not so far away,
We really aren't apart.
So be happy for me, dear ones,
You know I hold you dear.
And be glad I'm spending Christmas
with Jesus Christ this year.
I sent you each a special gift,
from my heavenly home above.
I sent you each a memory
of my undying love.
After all, love is a gift more precious
than pure gold.
was always most important
the stories Jesus told.
Please love and keep each other,
my Father said to do.
I can't count the blessing or love
has for each of you.
So have a Merry Christmas and
Wipe away that tear
Remember, I am spending Christmas with
Jesus Christ this year
HAPPY HOLIDAY'S FROM THE COOK FAMILY!!
We celebrated moms 1st Christmas in Heaven as best we could. There are really no words to explain the void we felt without having her at home doing all the things mom always done. There is a saying that it will get better..it will never get better, but I imagine as years go by it will get easier in a sense. There was nothing exciting about going home to a house that no longer had our mother standing there. As much as we are too celebrate that she is in heaven it is truly the most difficult thing to push aside our sadness our tears that she was no longer there. We began the week with decorating the Christmas tree. My cousin Danielle and her kids came to help. We managed to do one strand of lights and about 15 decorations:) I decided the next day I had to do more, because it was just the most pitiful tree. We ripped some things out of the closet, all mom's favorites and set them out. Next we took our annual Christmas shopping trip to Florence with my cousin Mike and family. We have did this trip for over 15 years. As we set at the dinner table that night at Cheddar's I looked back on the day, we had always ran with mom through the mall and got those last minute gifts. There was not much shopping needed without mother, but we managed to have some good laughs. Christmas Eve we opened our gifts as we always have done. My nieces Macy and McKenna truly made our Christmas better and more joyful. It was great seeing their giggles and excitement. Each night Macy, 2 1/2 years old, would go in the living room and kiss Grandma Bev goodnight. My sister had a large painting of mom done and it was beautiful, so beautiful that we took her Christmas day with us.
Opening gifts was the most difficult. My father surprised my sister and I with mom's wedding ring. He decided earlier in the week that he would have them split. Sis received the diamond and I received the band. It was bittersweet putting that ring on my finger. On my drive home yesterday I held it and thought of all the years my mom had held the same ring and thought of her love for our father. Ironically Jason and I were in the process of finding me a band, because we never had time in July and really I didn't care, because other things were important. We decided that I will use moms band as mine, so this week I will take it to see if it can be put with my diamond. ONCE again mom pulled through and I know their is a reason whatever it may be that I have moms band now. All us kids had a large picture of mom framed for dad. He had been wanting it done. When we handed him his picture there was so much love he showed for our mother. As we listened to his tears we cried with him for we knew that his life was only complete with mom.
On Christmas Day we went with our family on our mom's side to Kent Church. Once again we were in the Church that moms loved so much, the church she rededicated her life and the church she had laid in her casket. It was great being with her family and all the love that was there that day. Beverly Sue was in each person that day. She was in their smiles, in their tears, and in each of our hearts. My aunt Geraldine gave me the most beautiful necklace~ a heart locket with my moms picture in it. My aunt Evelyn gave me something very special~ a picture with a poem from mom's 1st benefit we had for her 3 years ago. I received so many beautiful gifts this week. Thank you everyone!
The most beautiful gift I had though was on Christmas Eve Jason and I went to mother's grave site. I took some red flowers and attached the poem, "My 1st Christmas in Heaven and the Serenity Prayer". There for the 1st time I knew this was for real and she really was not coming back... As much as I hate that she is not coming back to us, I accept that she loved JESUS more as she wrote in her final letter. That one day we will be together again forever and ever!
So this week we tried to keep things as normal as possible. My brother and his wife cooked a tremendous dinner including baked Hams. Mom was definitely proud. Sis filled all of our stockings so no one had an empty stocking this year and she also made our coffee every morning like mom always did. There were several times that we could hear mom. For example, every morning was a rush for everyone to get ready and we joked about hearing mom say,"COME ON, GET IT Together.. I am not being late again this year".. Well as always we were late mom:)
So in final ending.. On Christmas night dad was going through his old camera and I was showing him how to print the pictures. We found a beautiful picture of mom that no one had ever seen. It was taken the last Christmas before she was diagnosed with AML. And also yesterday on my drive home I was thinking of mother when I saw a falling star in Alabama... I was certain it was moms love falling down on me!
Thank you for praying for our family!
Happy Holiday's, Nicole
Me at mom's grave on Christmas Eve.
Only the 4 of us, but always the 5 of us.. Standing with a painting of mom.
Hi Nicole. Merry Christmas! I enjoyed reading your post and it sounds like you were able to find some little moments of joy, despite the sadness at missing your dear mom this Christmas. I agree that it will never be like it was, but it will get easier to cope with how things are now.
I was away with my family last week and my mom had given me a birthday card, which I saved to open during the trip. She wrote the same sort of things on the card that she usually did, but I realized it was the first time she signed it "love, Mummy", rather than, "love, Mummy and Daddy." (my mom is English, which explains the "Mummy"!). It hit me at that moment how SHE must have felt writing those words. To have to sign my birthday card on behalf of herself alone, without my dad, for the first time. I could feel the pain she must have felt at that moment, and it brought tears to my eyes. Little things like that are going to keep reminding us of our loss. We will get through those moments one by one.
I am so proud of you for how strong you have been, to continue so many of your mom's Christmas traditions. She would be so proud and pleased.
Hugs,
Leslie