The Leukemia & Lymphoma Society - Fighting Blood Cancers
14 Replies Last post: Dec 29, 2009 11:36 AM by stagsgirl  
Prayers for my Mom, by Nicole   1,168 posts since
Apr 3, 2009
Currently Being Moderated

Oct 4, 2009 3:46 PM

me from mom's now an ^^angel^^

Today I came here just checking on everyone, all of a sudden I was succumbed with tears.. It hit me that I don't feel that I have what I use to have to offer here.  I know that I can share my mom's experience but it's not the same as it use to be.  Now Im the daughter whose mother passed from this awful disease!  I feel that sometimes if I post some people may not want to hear from me, because my mom is not here.. Is this crazy, because it's just how I feel!

I miss my mom like crazy.  It's been 2 weeks and 2 days!  I feel that I'm doing well, but lately I just don't feel like talking to anyone..

The one thing that is helping me is music.  I am addicted to playing songs on youtube and finding ones that remind me of my mom.  I've also wrote several poems this week and that seems to be working for me.

I think of the months to come.. the holidays, my birthday, and like normal I'm dreading them.  It will never be the same without mom.

I hear people tell me that it will get better, I hear them tell me to know she is in a better place and free of pain, but I truly Don't care.. sounds rude, but I just didn't want to lose her!

I HATE Fing CANCER especially leukemia, and I hate that the stem cell transplant only caused my mom hell!  hugs, nicole

 

A lady who came across my mom's CB, along with her sister who is a Leuk. survivor honored my mom in their light the night walk yesterday, along with another complete stanger, and our sweet JUDY and John did also.. Things such as this definitly help during these hard times!  This is the plaque the lady and her sister put together and displayed.  THANK you!!

 

Bev's Plaque.JPG

othniel   32 posts since
Sep 15, 2009
Currently Being Moderated
1. Oct 7, 2009 8:57 PM in response to: Prayers for my Mom, by Nicole
Re: me from mom's now an ^^angel^^

yea poetry helps. i have a journal, it's been a great deal of help for me. i write songs, poems and letter's to her. if you want i can share, i'm not a great singer, but i can share my music with you guys.

mamawarrior   946 posts since
Apr 3, 2009
Currently Being Moderated
2. Oct 7, 2009 9:26 PM in response to: othniel
Re: me from mom's now an ^^angel^^

Oh nicole, i hate to say it, sometimes it gets worse before it gets better.  I think of you often and remember the many tears. Nothing helps, but time. I hope your dad is doing.

CarolynM   6 posts since
Apr 6, 2009
Currently Being Moderated
4. Oct 15, 2009 6:48 PM in response to: Prayers for my Mom, by Nicole
Re: me from mom's now an ^^angel^^

deleted

 

Message was edited by: CarolynM

PBS99   221 posts since
Jun 10, 2009
Currently Being Moderated
5. Oct 15, 2009 10:52 PM in response to: Prayers for my Mom, by Nicole
Re: me from mom's now an ^^angel^^

Hi Nicole,

 

It's me.  I just want you to know we're all here for you.  You have so much to offer us.  You were such a loving daughter.  I too find a lot of comfort in music.  After my stepdad died (December 1998) I was in my car heading to work and I heard this particular song. I knew it was him.  I was having such a hard time dealing with him being gone and then I heard that song.  It gave me so much comfort the rest of the day.  I only hear it now and again but when I do, I know it's him telling me he's with me and everything is okay.  Since September 2nd when my mom almost died I have heard it a lot more and I think it's his way of letting me know he's waiting for my mom and not to worry.  I know people will think I'm crazy and maybe I am, but I really believe he is with me and loves me still. Now and forever.

 

Polly

MatthewsMom   389 posts since
Apr 3, 2009
Currently Being Moderated
6. Oct 16, 2009 10:31 PM in response to: PBS99
Re: me from mom's now an ^^angel^^

Nicole,

It's been almost 4 months since I lost Matthew.  I still have flash backs of the day he died.  I still have panic attacks.  But not as often.  It does get better.  Grief is a process and it can take a long time.  Every thing you are feeling is normal.  And unfortunately, as MW said, it may get worse before it gets better.  The same feelings and emotions seem to just cycle around and around, over and over.  It's part of the process.  But you will come out on the other side.  A stronger, better person.  A young lady your mom would be very proud of.

At the risk of sounding crazy too... I do believe that Matthew has sent us all signs that he is okay.  Talk to your mom, and pay attention, be open to it.  She'll let you know.  And seeing those signs will help you. 

After I lost Matthew I found it very hard to be positive or hopeful, especially with others fighting leukemia.  But that too gets better with time.  You have a wealth of knowledge to share as a result of your experience.  That is not diminished by the loss of your mother.  It gives you a perspective that others don't have. 

We are all here for you Nicole!  Hang in there, Sweetie!

(hugs)

Renee

stagsgirl   109 posts since
Oct 13, 2009
Currently Being Moderated
8. Oct 28, 2009 10:21 AM in response to: Prayers for my Mom, by Nicole
Re: me from mom's now an ^^angel^^

Hi Nicole. I was just thinking about you and wondering how you are doing?  I know you are missing your mom so very much.

 

Yesterday I found where I had saved all my old threads about my dad from the old LLS board.  It's so funny when you look back on what you wrote and remember all those feelings. It was such a rollercoaster ride for both of us, wasn't it?  You said some really interesting things in response to my posts and I wanted to share this one with you. This was in March when my dad was really struggling, and he was very depondent and thinking about stopping treatment.  I was trying to figure out how I felt about it and whether I should force him to go on, or respect his wishes. You wrote this:

 

ncook

Member   posted 03-18-2009 10:06 PM                

--------------------------------------------------------------------------------

Leslie,

The sad reality is that this sucks,, the good reality is that it can get better, the in between is we don't know if and when. Ive been having similiar feelings. The way you talked about your dad in your post reminds me of my mom. Yeah, its only been this way for about a month for her, but she pretty much can't do anything and now its worse. After seeing her break down on Sat. I wonder if she too will get sick of fighting.. in a way I think that is what she was trying to tell me but I blocked it out.. Tomorrows news may bring another surgery for her, I hope not, but if so, this is depressing.. how much can a person take?? Im sorry Im focusing on my mom, but that is how I am relating to your dads situation.. Im not in shoes but Im afraid that what if we do get those shoes. I don't know exactly what I would do, but I would tell you to go with your heart and gut. I don't see a reason why you shouldn't encourage him to continue to fight, and afterall, maybe no one else will, but at the same time respecting his wishes. Im so sorry that your going thru this. It is so rough. sending you love and lots of hugs, nicole

 

 

I just wanted you to see this because I know how much you miss your mom, and that you just want her back, not matter what the cost.  You are grieving so terribly for her. The loss can be so unbearable. I wanted to remind you that there were moments when you did see how difficut the struggle was for your mom, and that maybe a part of her was running out of "fight".  I don't know, maybe this isn't what you want to focus on right now.  But both your mom and my dad were complex people, as we all are. A part of us might want to hang on to life, while another part might be ready to let go.  Maybe in the midst of your pain you can focus a little bit on the fact that your mom was at peace with how she died, and she accepted this.  She is no longer in pain, she is no longer fighting.  That is something to be glad about in a small way.  There is no easy answer. We must try to accept the imperfect nature of the situation - the treatments were imperfect and unpredictable, and the patients' reactions to them were also imperfect and unpredictable. We have to accept that we could not control the outcome.  We have to try to focus on when our loved ones were healthy and strong.  Don't let your memories of your mom consist only of her last weeks and days.  Would she want that for you? As a mom, I think she probably would want you to remember the good times.

 

Thinking of you,

Hugs,

Leslie

stagsgirl   109 posts since
Oct 13, 2009
Currently Being Moderated
11. Dec 14, 2009 11:51 AM in response to: Prayers for my Mom, by Nicole
Re: me from mom's now an ^^angel^^

Beautiful Nicole. I love how you describe your mom's giving nature, and her tradition of "special" gifts. That is so lovely!  You have a treasury of special memories to hold onto forever. I hope you can find some joy this Christmas despite the sadness. Your mom would want you to find the good in all this, I think.  Try to start creating some new traditions. You don't have to do everything the same as before. Just doing one special thing with your dad, hubby and siblings might be nice.  It will take time - years - to be able to fully enjoy the season, I know. But remember your mom is watching you and would love to see the glimmer of a smile.

stagsgirl   109 posts since
Oct 13, 2009
Currently Being Moderated
14. Dec 29, 2009 11:36 AM in response to: Prayers for my Mom, by Nicole
Re: me from mom's now an ^^angel^^

Hi Nicole. Merry Christmas!  I enjoyed reading your post and it sounds like you were able to find some little moments of joy, despite the sadness at missing your dear mom this Christmas. I agree that it will never be like it was, but it will get easier to cope with how things are now.

 

I was away with my family last week and my mom had given me a birthday card, which I saved to open during the trip.  She wrote the same sort of things on the card that she usually did, but I realized it was the first time she signed it "love, Mummy", rather than, "love, Mummy and Daddy."  (my mom is English, which explains the "Mummy"!).  It hit me at that moment how SHE must have felt writing those words. To have to sign my birthday card on behalf of herself alone, without my dad, for the first time. I could feel the pain she must have felt at that moment, and it brought tears to my eyes.  Little things like that are going to keep reminding us of our loss.  We will get through those moments one by one.

 

I am so proud of you for how strong you have been, to continue so many of your mom's Christmas traditions. She would be so proud and pleased.

 

Hugs,

Leslie

More Like This

  • Retrieving data ...