Hi

I am so sorry you are in this situation, I am also in a similar situation. I would try a cancer treatment center. I cannot get a real diagnosis either, I had a cervical lymph node biopsy 8 weeks ago and have had all sorts of problems since. My pathology report said lymphoproliferative disorder is suspected, but each doc I see either tells me it is nothing, or makes me feel stupid. I know my body and I know something is wrong. I live in a small town with few resources. My latest dilema is the fact that my shoulder has a huge knot that they keep putting steroid injections in and after a few days the pain is twice as bad. I had 0 pain before the biopy (it was excisional)  How did you get them to do a second biopsy, and if you don't mind my asking, what were the results of your pathology report? Hope you feel better soon.

I too had all of your symptoms except the weight loss. I am 39 years old also and have been deeling with this for a few years but the fevers are starting to get worse. I was originally dianosed with crohns from my gastro doctor. I had an appt with her and she was not there so I saw another gastro doc who told me I didn't have crohns and said I should have a pelvic and abdomal ct scan which I did. The results I have a 8.3 cm lymph node mass behind my stomach and larger than normal nodes in groin area. Then was sent to a cancer doc he ordered a pet/ct scan which showed hot spots in the gut and groin, under right armpit and left side of neck. Because of the pet scan there are going to take out the node in my neck that is hot and biopsy it. Just from reading your post it sounded like you have not had those tests you need to get them dom it is called a pet/ct scan it will tell you if cancer has spread and to where I wished somebody would have told me about that test along time ago. I am going to start chemo next week.