The Leukemia & Lymphoma Society - Fighting Blood Cancers
21 Replies Last post: Oct 30, 2009 11:30 AM by hero4   1 2 Previous Next
rgaild   65 posts since
May 20, 2009
Currently Being Moderated

Oct 28, 2009 10:30 AM

3 yrs OT with the h1n1 virus....

My son was dx at 21 months, he is 7 now, 3 years ot. I was struggling with do I give my kids the h1n1 vac or not. Well my girls got it 2 weeks ago (the h1n1 flu, not the vac.) it lasted 7 days, they were pretty miserable but not too bad. My son however got it Friday the 23. Prior to Friday he was feeling fine, a slight cough that sounded like he was clearing his throat, no big deal. Friday at 2am he woke up with a horrendous cough fever 103.2, stuffy runny nose, body aches, headache. I took him in right away 8:30 Friday morning hoping they would give him Tamiflu, but because he is not pregnant, an infant or no longer immune compromised they would not give him the tamiflu.My son reacts horrible to respitory illness, gets "cold/illness induced asthma".  When the Dr listened to his lungs she said there was crackling in his lower right lung dx him with h1n1 (guessing they won't test unless you meet certain qualification) and bronchitis, so she perscribed amoxicilin for 10 days. He fought with high fevers Friday and Sat, Sunday he went all day without a temp and his cough was much better. Midnight Sunday night he woke up with a much worse cough, high fever, runny nose...everything all over again. I took him back in fearing the bronchitis was now in both lungs, luckly the Dr sid his lungs sounded clear, I was surprised because he sounded awful. Again he said it the flu, that, that is what this flu does, makes you think you are better then hits again harder, so finish the amoxicilin and come back Friday is he is still having fever and or cough. He is still running high temps, just took it now 102.9, tylenol does nothing, motrin keeps it under control for the most part but the fever come back before his next does is due. He was coughing so much last night I had to get him up at 1am to give him a nebulizer treatment, which works ok for an hour or so.

 

I just wanted to let you guys know how bad this flu is, I was really leaning on not giving my kids the vac because of the possible side effects you keep hearing, now obviously we no longer need the vac, but if I had known this is how he would react and it was acually available I would without question give the vac..I'm not saying all of you should run out and give it to your kids, its really is a personal choice. I just really wanted you know how bad its hitting my son.

 

I was googling stuff on the internet, I know I really should just stay away from it sometimes, I found this atricle, which is something I've always worried about, here is the link:

http://www.foxnews.com/story/0,2933,187869,00.html#

StillSarah'sMom   35 posts since
Apr 6, 2009
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1. Oct 28, 2009 10:53 AM in response to: rgaild
Re: 3 yrs OT with the h1n1 virus....

Sorry that your little guy is having a hard time with this stuff!  Right now the h1n1 vaccine isn't even available in our area yet unless you're pregnant or otherwise at high risk.  I have been going back and forth about it too, for my daughter who's also been OT 3 years. She's 17. Since we can't get it yet it's sort of a non-issue at the moment, but I'm all for it when/if it becomes available.

 

I'm sort of shocked that his doc wouldn't give him Tamiflu-here they've been giving it to everyone that's dx'd w/flu, regardless of risk.  Maybe it's starting to run low or something?  I just know that all of the kids at school-primary through high school- have gotten it, providing they were in the 48 hour window.

 

I, too, have seen links between a variety of viruses and leukemia.  Other than making sure that kids get vaccines when they're available there's not much to be done about that so I try not to think about it.  My personal effort to maintain what little sanity I still have!

 

Hope your son gets getter soon, I know it's hard to see him feeling so miserable!  Glad the nebulizer gives him a little relief from the cough-maybe they can give him something for it?

 

Patty

mom to Sarah, dx age 12 1/04, OT 8/06.

kimmeebee   267 posts since
Apr 4, 2009
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2. Oct 28, 2009 11:53 AM in response to: StillSarah'sMom
Re: 3 yrs OT with the h1n1 virus....

This fascinates me. I don't recall Emma having a virus prior to being diagnosed so I'm not sure that we fit the bill. But I think it's further evidence that the benefit of flu shots outweigh the risks. Why people are so reluctant to get vaccinated is beyond my comprehension.

 

I hope your son feels better! And you might consider getting a second opinion on the Tamiflu. I'd fight that one.

greeney   189 posts since
Apr 9, 2009
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3. Oct 28, 2009 12:00 PM in response to: rgaild
Re: 3 yrs OT with the h1n1 virus....

Yeah I hope your son feels better soon also, it's always a worry when they get ill with any virus, but can I ask you how can the doc's be sure it's H1N1 and not another flu when they aren't tested for it? It's not my intention to sound callous and hope I'm not comming across that way but any flu is dangerous with underlying conditions. We've already had the swine flu outbreak come and go around here without major hospitalizations or much fuss, my eldest daughter, 19, caught a flu but without testing the doc's couldn't identify which strain it was, she was fine after about a week or so with only 1 day absent from work, personally I don't think the swine is any worse than the normal yearly flu outbreaks. I like yourself need to be sure I'm not damaging the immune system of my kids by over vaccinating, there is too much debate and when any logical doubt is involved I opt out, we have never had flu shots and do not intend on starting now either.

 

The link you posted creates many questions, our Alyvia had a few virus's the year she was Dxed but we also have a transformer above there climbing tree which is only metre's from there heads when up in the tree (which they are no longer allowed to climb) we also live in a farming community with pesticides/insecticides splashed around like water, we have a high cancer rate in our community as well. So it's impossible to pinpoint a cause with so many possibilities surrounding us, I don't even concern myself with the how's/why's this happened to Alyvia, if I did I'd do my head in, nobody has the answers and it's simply all speculation.

 

Jenn

greeney   189 posts since
Apr 9, 2009
Currently Being Moderated
4. Oct 28, 2009 12:11 PM in response to: kimmeebee
Re: 3 yrs OT with the h1n1 virus....

Squalene, formaldahyde, aluminum, mercury, thats enough to turn me off, how could these poisons not have some sort of detrimental effects on the body over time, and time and time again of these doses for many years, who knows how long it takes for the effects to come out, maybe 20-30 years down the track, why is cancer so prominent these days? Just some food for thought.

 

Jenn

Fontenrose   186 posts since
Apr 3, 2009
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5. Oct 28, 2009 2:05 PM in response to: rgaild
Re: 3 yrs OT with the h1n1 virus....

The flu link is interesting. I believe the 'perfect storm' theory, where a rare combination of occurances stops the body from cleaning up stray cancerous cells, as it would normally.  Genetics, viruses and environmental chemicals might also participate. We may reduce cancer rates by eventually learning how to turbo-charge natural processes, repair genetics and outlaw certain chemicals.

 

You should read "Slow Death by Rubber Duck", it's a real eye-opener about the cancer dangers of some plastics.(sing)  5-4-1 and 2, these are plastics good for you.

 

Vaccines are statistically less risky than the illness. If we can just get the immunization rate for most illnesses (maybe not flu) up to 80%, then the immune-compromised are protected by herd immunity. People who don't get immunizations are free-riders on the shots other people get, until the rate falls below 80%, then wham! we see mumps sterilizing men, and whooping cough killing babies again.

 

The Atlantic magazine this month has an interesting article on flu vaccines, saying that shots for seniors may be wasted, since they do not get a strong immune response to the vaccine, but that seniors might be better protected by immunizing kids, who spread most illnesses around, and have a strong immune response to the vaccine. (Contrary to what people think, getting the vaccine is a good challenge for your immune system.)

greeney   189 posts since
Apr 9, 2009
Currently Being Moderated
6. Oct 28, 2009 6:11 PM in response to: Fontenrose
Re: 3 yrs OT with the h1n1 virus....

Whooping cough has mutated and there are different strains already in the population, what if in years to come technology actually finds that certain vaccines are a threat to the immune system, how guilty would one feel then knowing that you have caused a disease for one's child in there later years. Imagine if thalidamide had been a mass herding of pregnant women, we'd have more people with missing parts than we would care to be reminded about, I should know my brother was a victim. My daughter had the gardisal injections, we stopped after the 2nd dose due to side effects, she was on antibiotics for 6mths after trying to cure the shocking rash it caused over her face and are still dealing with this till this day.

How can vaccines be stastically less risky when not enough is known about the immune system, when there is a clear picture of immunity v vaccines is when I will have some kind of renewed confidence, once again too much speculation and not enough of the factual.

 

http://socioecohistory.wordpress.com/2009/04/30/dr-russell-blaylock-on-1976-swine-flu-and-current-outbreak/

 

Jenn

hero4   180 posts since
Apr 4, 2009
Currently Being Moderated
7. Oct 28, 2009 6:52 PM in response to: rgaild
Re: 3 yrs OT with the h1n1 virus....

If something like that "were" to happen in the future, I would not feel guilty because I believe I'm giving my child the best possible medical care that I know of at this present time.  If this is what we know now is safe and the best for our children, then by all means, that is what our children get.  It would be the same for say breastmilk - what if we found out far in the future that it actually causes our children to get certain diseases - would every mother that breastfed her child feel guilty - maybe a bit, but at the time, that was the best known medical advice to give.  We have to go with what we know now and go from there.  We have to put trust in the doctors and nurses and scientists.  We can't assume that certain things may happen.  We have to protect our child.  We trusted them with the protocols are children are on for their leukemia treatment - those may not be the best in the future, but for now its the best thing for them so we do it.

greeney   189 posts since
Apr 9, 2009
Currently Being Moderated
8. Oct 29, 2009 9:09 AM in response to: hero4
Re: 3 yrs OT with the h1n1 virus....

I rushed in with the gardasil vac and I do regret and feel the guilt of not looking into it further before leaping, I will never just trust again, either does my mum, she is reminded everyday. The point is we don't know now what is safe, there are many unanswered questions in regards to the adjuvants contained in vac's, big Pharma's are only interested in the short term and big money, ignorant to the long term and appropriate studies to find the answers, simply inject and if it doesn't kill instantly is there only concern.

Breastmilk is a naturally occurring produce of the body, there is no medical intervention involved, adjuvants are not, they are foreign to the body, doctors etc.. are not gods and don't have all the answers which is continuously demonstrated here.

When it comes to chemo for our kids, they actually have a fatal disease, we have no choice in the matter, chemo is there only chance at survival, trust doesn't even come into it, and try saying no anyway, your child would be taken away, it is forced upon parents, there is no decision it was made for you, to object is not an option, with vaccinations it is a preventative to possibly avoid deadly disease, our kids aren't dying, we have a choice and I for one am not just going to trust especially when there is an agenda and to assume works both ways, research and definate answers is whats required.

 

Jenn

hero4   180 posts since
Apr 4, 2009
Currently Being Moderated
9. Oct 29, 2009 9:20 AM in response to: rgaild
Re: 3 yrs OT with the h1n1 virus....

Your comment can go both ways though.  Many people can say to you "how could you not get your child vaccinated?" - kids in the pre-teen to teenager age group are dying here in Canada that have no previous medical condition.  They are getting the H1N1 flu and then dying upon 24 hours of diagnosis!!!!  The vaccine will prevent that.  As a parent, knowing this, how could you not get your child vaccinated?  That is where I stand!

Shakinquaker   313 posts since
Apr 5, 2009
Currently Being Moderated
10. Oct 29, 2009 12:50 PM in response to: greeney
Re: 3 yrs OT with the h1n1 virus....

I didn't have time to read your link- I will go back and read it later.  But I did want to comment.  I feel fairly strongly about vaccines.  I have never been able to find good, verifiable studies that indicate vaccines are dangerous.  I have seen multiple studies that verify the benefit.  What if we find out in 10 years that vaccines cause cancer?  That would suck.  But I can't live there.  What if it's microwaved food?  Laundry detergent?  The insulation in my house?  As far as I know TODAY, all of them are safe.  I also know that children die from chicken pox, whooping cough and the flu.  And that children with immune suppression are more likely to die.  There is far too much about our world that has changed in the last 60 years to point to vaccines and call them for causing any health problem in our society.  Plastic use, microwaves, cell phones, wireless phones, computers, time in front of TV, travel, number of cars, number of planes in the sky, earlier/better detection, length of life, antibiotics, type of clothes, importing food, how often we cut grass, the list goes on and on and on.

killerbees19   52 posts since
Apr 3, 2009
Currently Being Moderated
11. Oct 29, 2009 9:25 PM in response to: hero4
Re: 3 yrs OT with the h1n1 virus....

Hero4 - I must interject, I am also from Toronto, and there has been one (1) boy, not "kids" as you mention, die from H1N1.  One boy.  In a city with a population of 4 million people.  Not to diminish the pain his family is feeling, but one out of 4 million hardly merits mass hysteria.

 

I think that it's human nature to be reactionary, and when the media makes it sound like people are dropping dead in the streets by the hundreds, it's hard not to be scared.

 

But I think it behooves us all to take a look at this with some common sense.  I am very much pro-vaccine - when was the last time you met someone with smallpox?  Thanks to mass vaccinations, we have all but eradicated smallpox, polio, etc.  But these are vaccines that have decades of historical data to back them up.  We know the rates of effectiveness, long-term side effects, etc.

 

We know none of this for H1N1.  This virus has been around for years in pigs, granted, but only for a couple of years in humans.  Which means we have only been trying to fight it for a couple of years.

 

Other vaccines require 10 years of testing before being made available to the general public.  This one was made from a variant of an existing vaccine, which is how it got around the 10 year requirement.  So do we even have enough data to know whether it will even work against H1N1?  I am not willing to inject something which is unknown and unproven into my children's bodies because CNN likes to play the boogeyman and scare up ratings.

 

Being from Toronto, I also remember the last "global pandemic" that threatened to wipe out whole towns.  Remember SARS?  Media outlets showed people walking on the streets with masks and called it Death Watch 2003.  The WHO predicted over 1 million deaths worldwide.  The total death toll for SARS was, in fact, 916 people. (http://www.who.int/csr/sars/country/2003_08_15/en/index.html)

 

And what about the bird flu from 2 or 3 years ago?  What about that pandemic?  My point is simply this: Use your head.  Dialogue & debate should be based on scientific data, not "my mother's cousin's neighbour saw somebody in the parking lot cough, now we're all gonna die".

 

Marlene

SweetPotato   40 posts since
Apr 4, 2009
Currently Being Moderated
12. Oct 29, 2009 11:44 PM in response to: rgaild
Re: 3 yrs OT with the h1n1 virus....

rgaild wrote:

 

I just wanted to let you guys know how bad this flu is, I was really leaning on not giving my kids the vac because of the possible side effects you keep hearing, now obviously we no longer need the vac, but if I had known this is how he would react and it was acually available I would without question give the vac..I'm not saying all of you should run out and give it to your kids, its really is a personal choice. I just really wanted you know how bad its hitting my son.

 

 

Thank you for letting us know about your H1N1 experience.  It sounds so miserable and scary!  I do hope his fever is gone now and is recovering nicely.


I did give my children (my 7 year old daughter is 7.5 months off treatment) the H1N1 shot the other day (sort of feeling like damned if I do, damned if I don't) and am hopeful we can avoid such high fevers and prolonged sickness.  I know I would be terrified if she was to contract it and be so sick this soon off treatment.  Again, thanks for sharing your son's reaction to the H1N1 flu.

 

--Paulette

www.tootandotto.blogspot.com

greeney   189 posts since
Apr 9, 2009
Currently Being Moderated
13. Oct 30, 2009 3:50 AM in response to: hero4
Re: 3 yrs OT with the h1n1 virus....

Hmmm.......do I detect a hint of aggression, I do believe I have explained the reasons as to why I exercise caution, and just for the record I am not anti-vaccination oriented if I were we would not be suffering the side effects. To choose and administer the most important vac's is a choice I practice therefore for us the flu vac is not a necessity.

I also don't believe I have disrespected your choice of doing so, your choice not mine. Like I have stated previously vac's are not a clear cut picture, there is much food for thought to consider and believe can be discussed amicably.

 

Jenn

greeney   189 posts since
Apr 9, 2009
Currently Being Moderated
14. Oct 30, 2009 3:57 AM in response to: Shakinquaker
Re: 3 yrs OT with the h1n1 virus....

Yes, I agree with your comments in regards to modern society, the list does go on and on and on, therefore I minimise the effects which includes vaccinations. I do not trust studies attached to pharma companies, there have been problems in the past with the production of vac's that the pharma's have tried to sweep under carpet.

 

Jenn

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