The Leukemia & Lymphoma Society - Fighting Blood Cancers
5 Replies Last post: Oct 24, 2009 4:26 PM by vpark  
bb50   32 posts since
Apr 26, 2009
Currently Being Moderated

Sep 16, 2009 11:13 PM

H1N1

Does anyone know if Hodgkin's patients - IN REMISSION - are considered any more at risk for complications from H1N1 than the general population?  Are you getting the vaccine when it is available?  Take Good Care - Bev

Mike   24 posts since
Apr 14, 2009
Currently Being Moderated
1. Sep 17, 2009 5:54 PM in response to: bb50
Re: H1N1

Hi Bev

My transplant Dr told me definatly NOT to get the shot. It is only +59 day's since my transplant even though I am in remission it isn't a good idea. He did advise that my wife & daughter must get it though. I guess the best thing to do is to call your Dr. & get his opinion.

 

Mike

Momof2   60 posts since
Apr 4, 2009
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2. Sep 18, 2009 2:05 PM in response to: bb50
Re: H1N1

I think if your counts are normal now, that you are not at any greater risk, as far as they know right now.  The only patterns I have heard of in terms of bad outcomes with H1N1, have been pregnant mothers, asthma sufferers, and anyone with a weakend immune system.

 

Reese is also a type-1 diabetic in addition to being a Hodgkin's survivor (1 year remission now), and he IS considered high risk for H1N1 because of his diabetes, not because of his Hodgkin's history.  Either way, I do not like H1N1, and though I am very cautious about vaccines, Reese will be getting the H1N1 vac. at the orders of both his Onc. and Endocrinologist.

Denise   83 posts since
Jun 16, 2009
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3. Sep 21, 2009 12:14 PM in response to: bb50
Re: H1N1

Hi Bev-

Since I am not in remission, I don't have an answer to your question. I have been worrying a lot about this virus and have spoken to my oncology team several times. They told me that it is OK to get the vacine as long as my counts are up. They also do not seem in the least bit worried if I were to catch the virus. Their positions seems to be that if I were to get flu symptoms (of any kind) that they will be interceding quickly because I would be letting them know. I don't know though, because I worry about the compromised immunity part. This is a troubling and confusing state of affairs.

sope   11 posts since
Sep 25, 2009
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4. Oct 21, 2009 8:10 AM in response to: bb50
Re: H1N1

Hi there,

 

I have been in remission for about 2.5 yrs and when I saw my Onc 2 weeks ago he said I SHOULD get the vaccine. Now it is just a matter of where to find it. Good luck with your research.

 

Sope

vpark   20 posts since
May 25, 2009
Currently Being Moderated
5. Oct 24, 2009 4:26 PM in response to: bb50
Re: H1N1

I have been in remission for about 2 months now and just finished radiation last week. I got the H1N1 vaccine today on my doctor's orders. If you have access to it, I definitely think it's smart to get if your counts are up!

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