Hello everyone. My name is Rebecca. My fiance was just diagnosed with acute luekemia.I am very sad and angry.Four weeks ago he complained of pain in his neck area.They kept perscribing him antibiotic after antibiotic.Nothing worked.Low grade fevers night sweats chills the whole bag of tricks.He was admitted to the Hospital where they did every test under the sun. Finally someone got the bright Idea to do a bone marrow biopsy.It's luekemia.I cannot stop crying.I am exhausted and afraid all the while trying to be strong for him and our baby girl,who was just born in April.I feel like this is a nightmare.They admitted him to AGH cancer center and they are preparing him for aggressive chemo therapy.Can anyone explain to me what to expect, how to comfort and above all keep my sanity.They have not narrowed down his subtype yet so I don't know exactly what kinda meds he will be getting.I am afraid because he was not in the best shape when they admitted him
Hi Rebecca,
I'm so sorry about your fiance's diagnosis and what a surreal and terrifying time it is for you and for him.....
There are forums specific to Leukemia (both ALL and AML) on here. If you go to the "Living With..." title and click then there will be a list of the different diseases and you can chose which one is appropriate. Lots of folks on there who can walk with you on the journey and offer reassurance or direction.
Sorry I can't be more help than this but I know nothing much about the leukemias as I have lymphoma. I wish you and your sweetie all the best!
Sharon
Hi Rebecca -
That's what we're here for....to listen, to support, to hold your (virtual) hand as you and he begin this strange and scary journey,
I'm hanging in there with my treatment. I have non-hodgkins lymphoma which isn't often talked about being"cureable" but more "treatable" (like a chronic condition). I've been living with it since 2001 and about to enter the battle for the 7th time with (hopefully) a clinical trial of an experimental drug - that is if I meet all the criteria and I'll know more next month. If not the trial, there are a couple of other tricks up the sleeve to try.
You hang in there too, honey. You don't have to be strong and brave all the time and you are among new friends here who understand and "get it". This is a place where you're safe to cry, laugh, vent, howl at the moon if that's the mood you're in at the moment.
Sharon
Rebecca, My closest friend was diagnosed with ALL about 2 and a half years ago. She was advised to have hyper C-VAD chemo and prepare for a stem cell transplant.She did both and is now cured I am sure. The high dose chemo was to get a remission immediately and then get her into transplant once she was in remission and they found a donor. Our onc. at Hackensack UMed said that if a person gets a remission and then relapses the chances of a successful transplant aren't as high as going into transplant right after first remission is achieved. Except for some gvhd issues, she is back to her life and expects to see grandchildren in the future. It was tough but doable. ALL responds well to chemo and is curable with an SCT. Best of luck. Judy