My bf was just diagnosed October 6th of this year. His subtype is M2.He is 47 years old and was in pretty good shape before all this.They said his blast are 7%.He just started hi remission induction.I need to hear how people live with this, how they cope day to day and what are the chances of Long term remission.Can people just do Chemo or must they have the BMT and the SCT?
Screw the stats. Those only tell you how many people out of 100 survive. They don't tell you what your chances of survival are. If one person survives out of 100, there's no reason to think it wouldn't be your husband. So blow those off. Right now he has a 100% chance of beating it.
I'm not sure how many people get away without some kind of transplant with m2. However, given the specific circumstances, some folks are able to do a auto transplant (meaning they use their own cells) pretty well. The call for transplant depends on so many variables, it would just be irresponsible to make a suggestion about that on our end. Hopefully, you'll ve able to ask your doc those kinds of treatment-related questions.
We do have a forum for AML patients and caregivers. Clink on the "Living with..." link on the main menu and you'll see AML as the second one down.
Blessings
Another reason to throw the statistics out is his age. I was 46 when I was diagnosed and was told that anyone under 50 is considered a young AML patient. Quite often the people who get AML are those who are older and have other health problems going in or those who have had other cancers since chemo and radiation can cause AML.
So just go into this with a fighting attitude and be determined to face anything head-on. I also don't know any statistics on how many people get through it without a transplant. While the information is scary, educate yourself on what a transplant involves. If he needs to face it, the information will benefit you. I had one 2 years ago and they're worth the fight in my opinion.
Take care,
Kelly
Well right now Dr Greenberg is trying torule out MDS.This happened all of a sudden so will see how he does with his induction.TY Guys
I was diagnosed in May of 2008 with AML M4. This friday I will be in remission 17 monthsand I was 47 when I was diagnosed. I agree with Tex and KyGuy, they have the statistics, but it all depends on you and your outlook. I try to stay upbeat and live everyday like it was my last. My father was diagnosed in March of 1992 with AML, he passed away in November of 1992. His oncologist figured he was in remission for only 2 months. But he was 57 and had Chrones Disease besides the AML. In 1992 the "odds" was a 20% survival rate, now it's 80% I believe. But odds are odds and that really doesn't count, it's what you have in your heart that counts.
Rebecca - My husband's cousin was dx with AML in her early 40s (I am not sure how old she was exactly but I know it was her early 40s). Anyway, she had induction chemo and 7 rounds of consolidation chem and NO BMT or SCT and she reached her 6th anniversary of complete remission this past September!! Survival is definitely possible. ANYTHING is possible. Just keep the faith.
Hugs, Polly
Thank you very much Polly.I will keep up with you're mom's thread and keep me posted.Hoping she is able to spend x-mas with the grandchildren.My mom passed on Aug 14th 2008 of Lung cancer.(She was a heavy smoker) but nothing, and I do mean nothing gave her more joy than her grandkids.And don't forget to take care of you.As women we know we can take care of everyone else,but sometimes we forget to take care of us.
I was diagnosed with AML M2 in march 2008, I had an autologous stem cell transplant, which is when they give you back your own cells. My doctors gave me a choice between getting the transplant or going through what basically amounted to an extra round of chemo, I opted for the transplant, but it may not be necessary.
Lolita did you have normal cytogenetic's??
I am going to sound really stupid right now, but I don't know. How do you what kind of cytogenics you have?
They must have been normal
I dont know if this makes a difference or not, but I am also a breast cancer survivor, and I had radiation, and although the doctors swear that the radiation did not cause my AML, I don't believe them.
lolita wrote:
My doctors gave me a choice between getting the transplant or going through what basically amounted to an extra round of chemo,
But didn't you have to go through chemo before the transplant?
AML that was caused by radiation has only been documented to occur from massive amounts of it. Some say a Hiroshima like exposure. It probably takes a lot less than that as some people have gotten radiation-related AML who work with radiation. But the amount used in your radiation therapy shouldn't be anywhere near enough, especially if it wasn't focused on your marrow.
On the other hand, a lot of women get AML as a secondary cancer from breast cancer treatment. If there was something other than just bad luck in your getting AML, I'd be more suspicious of the chemo than the radiation.
Blessings
Thats the strange thing about the AML I had, I didnt have chemo to treat the breast cancer, I just had a lumpectomy, radiation and tamoxifen which is a drug that suppresses estrogen. And according to my doctors the AML was not related to the breast cancer. My radiation oncologist did tell me that there was a half of a percent chance that the radiation can cause cancer like 10 to 15 years later. But my current oncologist told me what you just said about the radiation, but I dont know, maybe I am just looking for a reason where there is none, but it still seems suspicious to me.
You know, I think we all have things we wonder about. Many of us have pet theories about how we got it. All of mine have been shot down or are pretty well nonsensical. One of my thoughts has been similar to yours. I've had multiple spine injuires, before I got osteoporosis. I've had a lot of radiation on my backbone where the marrow lives. Years before my AML dx, I started refusing spinal x-rays unless abslutely medically necessary.
I have just learned enough in the past few years I just don't think the radiation was enough, even considering the area exposed. I think I just got the damned disease because someone had to get it and why not me?
Thing is, in the long run, almost all of us will never know why we got the disease. If it helps to have something to suspect, I don't guess there's really anything wrong with that. ![]()
Blessings