Hey there Kayla. You definitely beat me in the "young people with weird diseases" category. I was diagnosed when I was 18 with Essential Thrombocytosis, I'm 22 now. It is another one of the myeloproliferative disorders that PV falls into. I would recommened joining us over in the "Living with" section, and select "myelodysplastic syndroms...." and we hang out in the "Living with PV and ET, our new home" thread. come on over and meet the rest of the girls.
What type of treatment have you been on?
