Hi,
new to the site. My family and I are caring for my independent, single, 42-year old brother who is about to have a SCT. We are all concerned about being there for him without him feeling as if he's lost all autonomy. Any intial thoughts? It's a very crowded apartment!
As a single fellow who has always enjoyed my independence, I think you should say exactly what you said in your message, “We want to be here for you, but we do not want you to feel as if you’ve lost your autonomy. How can we do this?” That’s perfect.
Since I have no experience with SCT, I cannot help you with any details of caring for someone who has recently had one. I expect you will get a lot of information from his treatment centre. No doubt there will be an emphasis on keeping him free from germs and making sure he gets his blood tests. This would be on top of the usual things one does when caring for someone recovering from a major medical procedure.
Joe
When your brother has his SCT he will be very glad to have you there. Crowded place or not. He will need a lot of care and will not be able to do much for himself. You will know. My husband is very independent, but since his cord blood stem cell transplant he has realized that sometimes you have to let others do for you. He is still in the hospital at day 21, and will be there for a while. No engraphment yet, could be days or weeks. Your brother is lucky to have you both. He will need you more than you can imagine right now. Sending prayers your way, Rose
Thanks so much for your kind words. It helps to know it will be a long road.